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John21 10-02-2008 05:41 AM

Help
 
My wife needs help. Her is what I have so far. She is stage IV with Mets to the bones and especially the lower spine and pelvice area. She has had her ups and downs over the last 5-6 years, but for the most part has lead an active life until the last year. Slowly she is loosing the ability to use her left leg. Some of the bone tumor is somehow pressing on the sciatic nerve causing major pain and numbness in her foot. The doctors are unsure what to do. It is very atypical. The pressure is not a disc or mri visible impairment. It occurs lower behind the pelvic area somewhere(thats the part that kills me - somewhere) How can they not know where. Well she is on major pain meds which are not great and do not work well. We did radiation earlier, but I think we may have missed the spot. They seem not to want to do surgery, then what then! This process is very lengthy. My latest fear which happened is that she will fall. She did twice in two days greatfully she did not break anything. If any one has a suggestion, please please help. I am running out of options.

John - Husband

rebecca0623 10-02-2008 08:03 AM

John - I have no advice but wanted to post and say I am so sorry to hear about your wife and the struggles you are having. I will hold you both in my heart and wish you strength to get through this.

mts 10-02-2008 08:12 AM

Can you get a 2nd opinion from someone other than the ones currently managing her care ?
Maybe even outside of the cancer realm ?
Maria

BethC 10-02-2008 08:41 AM

Can you get an appointment with a neurologist?

Lani 10-02-2008 08:54 AM

what type of MRI did they do? Only a L/S spine or
 
also a pelvic MRI--did they do an MRI of the leg?

Did they do an EMG with Nerve conduction velocities(NCV)?

It is like a traffic report looking to see where the traffic of electrical signals
got caught up when not enough are flowing down the leg to the foot.

An orthopaedic surgeon or a neurosurgeon can order these studies--whether or not they plan to operate.

Is there a major cancer center or university teaching hospital near you?

All my best thoughts and prayers

juanita 10-04-2008 07:48 PM

just sending hugs and prayers!

Faith in Him 10-04-2008 07:51 PM

John,

Sending you and your wife prayers that you get the answers you need.

Tonya


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