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Old 09-21-2008, 07:09 PM   #1
Jean
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Wondering.....
This may seem like a strange question....but here it is..
When a patient is accepted into a trial do they have to pay for the drugs...since the drug/or/drugs are not approved by the FDA yet and therefore not covered by insurance?

I was under the impression when in a trial the patient did not have to pay for the drugs.


Thanks,
Jean
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TOPO 11 neg. 4/06
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Old 09-21-2008, 07:21 PM   #2
BethC
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Jean,
I'm participating in a trial with Femara. The trial lasts 2 years and all tests and drugs administered during that time are paid for by the trial. Cool!

Love,
Beth
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Herceptin every 3 weeks until 9/24/08
Lump. and node dissection 2-12-08
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oophorectomy 5-6-08
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Old 09-21-2008, 09:35 PM   #3
Bill
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Jean, when Nikki was in the Lapatinib/Tykerb study, the L/T was free. I hope that info. helps.
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Old 09-22-2008, 11:00 AM   #4
chrisy
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Jean,
Usually the drugs are free, tests, labs, scans etc that would be in the normal course of treatment are usually not free (but are covered by insurance)
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June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
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Old 09-25-2008, 05:54 AM   #5
MJo
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I joined a Femara study. Get free Femara. Six months worth at a time. I think my health insurance will still be billed for my oncology visits and tests. By the way, the Femara must come straight from the manufacturer, because the pills don't have the pretty colored coating. They are an ugly gray-brown.
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3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
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