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04-26-2008, 12:34 AM
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#1
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Senior Member
Join Date: Apr 2006
Posts: 131
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my radiation treatments are completed
Hello to all , I want to give good news
I finished 34 radiation treatments.. not too bad..and the Dr. has put me on Tykerb...The Tykerb has me doing the fun run , but I will deal with it...
The Dr. said last visit, that he is "running" out of meds to give me?
I thought there was more out there , than this... for IBC.
Too date , I have taken gemzar, taxol, 4 doses of herception, and Tykerb.
Any suggestions? I have an appointment at MD Anderson, Orlando on May 6.. to see if they have any ideas..
I also want to let ya'll know that my ejection rate which has been running around 25% for a year,... is now... drum role 40-45%.
I have a lot of folks praying for me..
thanks for any help, suggestions, Ideas...Charlotte
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04-26-2008, 08:56 AM
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#2
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Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
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Congratulations! I am so glad that your ejection rate had gone up. Because that is good news for me - give me some hope that my MUGA result might be different 6 months from now. We love good news. Thank you.
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
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04-26-2008, 11:54 AM
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#3
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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Congratulations on completing radiation. I am glad you are seeing another onc as you have lots and lots of other options in chemo. Navelbine, Taxotere, Abraxane, Imprexa, Adriamycin, Doxil, Epirubicin, Carboplatin.
Keep the faith - there is the right combo out there for you (didn't see if you did Xeloda).
Have a nice weekend.
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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04-26-2008, 04:46 PM
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#4
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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Congratulations on finishing your rad. treatment! Becky hit all the other chemos. I could think of, and then some. I think she meant "Ixempra". I would think you still have quite a few options left. Take care, Charlotte, and keep us posted
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04-26-2008, 06:27 PM
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#5
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Senior Member
Join Date: Apr 2008
Posts: 1,477
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Great news about the radiation treatments and glad you have your appointment on the 6th- please let us know what the recommendation is after your visit.
Best,
Karen
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04-27-2008, 12:17 PM
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#6
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Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
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Charlotte,
Yippee on finishing your rads tx!!! I am hopeful that this will keep your recurrence to your skin at bay. I am hopeful that the docs at MD Anderson will have some more options if you need them.
Hugs,
Lexi
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04-28-2008, 06:16 AM
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#7
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Senior Member
Join Date: Apr 2006
Location: Wilmington, Del.
Posts: 1,126
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Yup. When your sisters on this group know of more options than your onc, it's time for another opinion. I am glad you are going to MD Anderson.
__________________
MJO
IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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04-28-2008, 06:13 PM
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#8
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Senior Member
Join Date: Oct 2007
Posts: 1,851
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Charlotte,
I'm happy to hear that you're finished with your radiation and know the relief you feel.
It's great news that you're MUGA score has improved, which will give you more chemo options. Way to go! Navelbine may be another chemo you take in this regard. You may also want to inquire about Avastin. Good luck at MD Anderson! They will find the right treatment for you.
Joan
__________________
Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2021 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!!
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