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Old 08-01-2008, 12:44 PM   #1
karen raines hunt
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Join Date: Nov 2005
Location: Colorado
Posts: 76
Tri for the Cure

Hi,

I rarely post, but read postings quite often. I am competing in the "tri for the cure" this weekend in Denver. I am part of a relay team. I will do the swim, and 2 of my friends will bike and run. The money, of course, supports the Komen foundation. My plans are to "scope it out" this time and next year do the triathlon alone in the survivor category.
Also, I am having a repeat MRI of my spine on Monday. I was having (and still am) back pain. My oncologist ordered MRIs from my cervical area to my lumbar area. There was a suspicious lumbar vertebra that needs to be evaluated again. The first MRIs were 3 months ago. I am nervous! My only child, Sarah, graduated from high school in May and will be attending Tulane Univ in New Orleans. We are leaving on Aug 16th to drive Sarah to NO. I don't want my health to interfere with Sarah's plans.

Karen
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Karen Raines Hunt
Dx April 2005 at age 46
stage 3A, very large (12cm) tumor
2 positive axillary lymph nodes
ER+/PR+, Her 2 +++
Bilateral mastectomy, radiation, reconstruction, A/C, Taxol, Herceptin, Tamoxifen, Aromasin
5 yrs since diagnosis and NED
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Old 08-01-2008, 12:52 PM   #2
Mary Jo
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Location: Sheboygan, WI
Posts: 2,582
Karen,

Good for you in your attempt at the "tri for the cure!" Enjoy every moment and thank God along the way that you are strong and able to be a part of this endeavor.

Also I pray that your MRI comes back normal and all is well.

Love to you....

Mary Jo
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"Be still and know that I am God." Psalm 46:10

Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
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Old 08-01-2008, 05:57 PM   #3
Joan M
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Posts: 1,851
Karen,

Best of luck with the "tri for the cure."

Since your back is bothering you, it's good that you're swimming.

Your back pain may be caused by arthritis or disc disease. I have the latter and it has shown up on bone scans. I'm praying for a good result for your MRI.

Best wishes to Sarah as she starts college.

Joan
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Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2021 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!!
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Old 08-02-2008, 06:58 PM   #4
juanita
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Location: indianapolis, indiana
Posts: 1,544
Good Luck!!!!!
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dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
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Old 08-02-2008, 07:34 PM   #5
Becky
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Location: Stockton, NJ
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Go, go, go
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Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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