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02-08-2009, 09:27 AM
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#1
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Senior Member
Join Date: Jan 2007
Posts: 368
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2 years and all's well
I just wanted to let the her2 group know that I'm just past my second year out from dx and surgery, and my lastest Ct scan and mammo's are clear. No signs of cancer.
I'm about 7 months out from my last herceptin.
At this point I have no follow up appointments or mammos scheduled.
How long were you ladies (or gents) followed up on by your Onc?
__________________
12/12/06- IDC Stage III, 4x A/C, 35 rads, Herceptin 1 year
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02-08-2009, 12:10 PM
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#2
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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Hi Brenda! So pleased that you are doing so well.
As you can see from my signature, I did extra chemo and extra herceptin. Last herceptin in Dec. 08. At the present time, I see my onc and have blood work every 2 months. At 6 months I will have CT, brain MRI, and PET. He does the blood work the week before I see him and a tumor marker (last one was 35...CA27-29). I hope we can keep this schedule for a year before making the visits further apart.
Best wishes for lots and lots of years of nothing showing up!
ma
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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02-08-2009, 12:15 PM
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#3
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Congratulations Brenda, thats the news we all like to share!
I'll be four years out in the summer so only see my onc yearly now but at two years out I saw her every six months.
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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02-08-2009, 12:16 PM
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#4
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Senior Member
Join Date: May 2006
Posts: 3,142
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2 years and all's well
Good job Brenda. Continued good health to you for many years.
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02-08-2009, 06:02 PM
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#5
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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I will be seeing my onc every 6 months after my May appointment (so really I am still on every 4 months)
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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02-08-2009, 06:20 PM
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#6
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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Way to go, Brenda! You keep on rollin'!
__________________
For Nicola
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02-08-2009, 06:27 PM
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#7
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Senior Member
Join Date: Oct 2006
Location: Southern California
Posts: 900
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I have just passed my three year mark and will see my onc every 6 months and my surgeon once a year.
__________________
Gerri
Dx: 11/23/05, Lumpectomy 12/12/05
Tumor 2.2 cm, Stage II, Grade 3, Sentinel Node biopsy negative
ER+ (30%) /PR+ (50%), HER2+++
AC X 4 dose dense, Taxol X 4 dose dense
Herceptin started with 2nd Taxol, given weekly until chemo done
then given every 3 weeks for one year ending on March 16, 2007
Radiation 30 treatments
Tamoxifen - 2 yrs (pre-menopausal)
May 2008 - Feb 2012 Femara
Aug 2008 - Feb 2012 Zometa every 6 months
March 2012 - Stop Femara, now Evista for bone strengthening
********** Enjoy the little things, for one day you may look back and realize they were the big things. - Robert Brault
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02-08-2009, 06:28 PM
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#8
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Senior Member
Join Date: Jan 2007
Location: Thornhill, Ontario
Canada
Posts: 2,320
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Congrats Brenda - you and I are at just about the same stage - I had my 2 year cancerversary on Dec. 18, 2008 - I finished my last Herceptin 8 months ago. I had a check up with my onc. last week, and he graduated me to every 6 months (I was every 3 months until then).
I see the breast surgeon now once per year. I have alternating breast imaging - MRI, alternating every 6 months with digital mammo/ultrasound. I get the MRI because the mammo/ultrasound missed my BC due to very dense premenopausal breasts. My plastic surgeon found a tumour when he was doing my breast reduction surgery, 4 months later. The breast MRI pre-surgery detected the second tumour.
I wish you many more years of NED.
all the best
caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08
Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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02-08-2009, 08:39 PM
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#9
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Brenda,
Congratulations on your 2nd year out.
That is a milestone...I believe that it is important to maintain breast health care.
I go every 6 months alternating digital mammogram
then MRI or breast gamma imaging. I am now do for a yrly scan. I see my onc. every 4 months (he said 6 would be the norm) but I am more comfortable with every 4 and having my markers checked.
Stay ahead and on top of your health.
Best Wishes,
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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02-09-2009, 05:41 AM
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#10
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Senior Member
Join Date: Feb 2008
Location: Georgia
Posts: 1,486
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Congratulations Brenda. I like hearing news like this.
Amelia
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02-09-2009, 09:33 AM
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#11
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Senior Member
Join Date: Jan 2007
Posts: 368
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I had been on a 6 month follow up schedule when I had these last tests. Two years out seems early to drop back to yearly schedule, so I'll have to call the onc's office and see what they say. Thanks everyone. 
__________________
12/12/06- IDC Stage III, 4x A/C, 35 rads, Herceptin 1 year
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02-09-2009, 10:00 AM
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#12
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Senior Member
Join Date: Feb 2008
Location: Bayarea,CA
Posts: 679
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Congratulations Brenda! May you be blessed with a many many more year for strong healthy life!
__________________
DX: 06-30-2007 - left breast -stage IIIB, Her2/Neu 3+++, ER weakly positive, PR-
Taxol+herceptin weekly for 3 months
FEC+herceptin every 3 weeks for 3 months
BRCA 1 and 2 - Negative
Jan 2008 - Bilateral mastectomy, prophylactic Rt. side.
Radiation for 5 weeks
Completed my yr of herceptin on 07-14-2008
Brain MRI - 3/2/09 Clean
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02-11-2009, 03:31 PM
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#13
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Senior Member
Join Date: Jan 2007
Location: Massachusetts
Posts: 82
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Congratulations to you for reaching the 2 year mark! I finished Herceptin in April 2008. I have been going to the oncologist every 3 months for the first year after treatment, then every 6 months.
Thanks for sharing this happy news with us!
__________________
IDC Stage IIIA
Diagnosed Nov 2006 (routine mammogram), age 51
Lumpectomy, lymph node dissection Dec 2006
3 cm tumor, 8 cancerous lymph nodes
Grade 3, ER/PR -, HER-2/neu +++ (by FISH, average 20 copies per cell)
A/C x 4, Taxol x 12, Herceptin x 47 weeks
35 radiation treatments
Completed treatment on April 3, 2008
Chest port removed October 2009
11 years since diagnosis NED
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