 |
02-07-2011, 06:03 PM
|
#1
|
|
Junior Member
Join Date: Feb 2011
Posts: 3
|
New Here
Hi, all. Never got around to joining but I've been lurking here, looking for answers since I got dx'd last May. Glad to be part of this group--well, you know what I mean.
My hair is growing back, fatigue is lessening. I kept working through the whole shebang, taking days here and there and going home early when I was too tired to work. Had no debilitating side effects from chemo (other than fatigue), but it was certainly no picnic. Now on my last week of radiation therapy, I have a burn right at the underside of my breast where it meets the chest. So that's where I'm at.
__________________
Nan
dx'd May 2010, routine mammo. 2009 mammo neg
lumpectomy June 16
re-excision June 29
LNs negative, Her2/neu +. Tumor 3.7 cm
Adriamycin & cytoxan every other week x 4 July-Sept 2010
Herceptin & Taxol weekly x 12 wks. Finished 12/16/10.
Radiation therapy Dec 28 - Feb 10 2011.
Herceptin continues until October 6 2011.
|
|
|
|
02-07-2011, 06:56 PM
|
#2
|
|
Senior Member
Join Date: Sep 2009
Location: Kensington, CT
Posts: 394
|
Re: New Here
Welcome Nan,
This is a wonderful site with lots of knowlegeable and caring people. I am proud to be a HER2 member like you are now.
You are doing really well with your treatments. You're on the home stretch. The rest is easy.
Kris....
__________________
06/08/09 - 55, IDC, IIIA, ER+/PR-/HER+++
Nottingham 6/9 - Grade 2 5.2cm, several nodes
06/23/09 - Neoadjuvant - TCH Herceptin til June
10/07/09 - Finished Chemo
10/27/09 - Mastectomy RB
Path Report: RB No residual tumor pCR,
2 of 15 pos - .5mm largest micromets
12/18/09 - Radiation started (28)
02/05/10 - Finished Radiation
01/11/10 - Started Femara
06/22/10 - Finished Herceptin.. My son's 22nd BD. Hope it's a sign! Hoping for the best.
11/15/10 - Started Walter Reed BC Vaccine trial at
1/04/11 - Sibley Mem. Had to withdraw due to met
01/23/11 - Stage IV - Brain Met 1.6cm 1.7cm
02/03/11 - Gamma Knife (2 fracts to minmize necrosis)
03/01/11 - Gamma Knife
6/11 - Necrosis
7/11 - Necrosis stopped & Tumor progression
8/11 = Now think it's really necrosis
9/11 - Avastin every two weeks -- It's working!! Necrosis is shrinking.
12/11 - Necrosis gone AVASTIN worked.
12/11 - Bone &CT found
Oct '10 - Ran Hartford 1/2 Marathon to Thank Dr. Slamon for Herceptin!
|
|
|
|
|
02-07-2011, 07:25 PM
|
#3
|
|
Senior Member
Join Date: Jul 2008
Location: New Boston, NH
Posts: 275
|
Re: New Here
Welcome to the group! Glad you found us.
__________________
-Sarah-
Jan '07 felt lump (PCP "thought" it was a cyst)
Nov '07 "bloody nipple discharge" (OB-GYN "thought" I had fibrocystic breasts and told me to take 400 IU's of Vitamin E)
Note: Mother was dx w/BC in 2004 (ER/PR+ & HER2+) & mets to brain April 2007 (she passed away June 17, 2008)
2/1/08: Biopsy Dx: DCIS (age 34)
2/22/08: Surgery R-side Mast
2/28/08: 1st Path Rpt Dx: IDC 1.8cm tumor & DCIS 2.1cm
2nd Path Rep DFCI - IDC (0.9cm) & DCIS (2.1cm)
Stage 1b/Gr 3; ER+(5%), PR+(2%), HER-2+++
5/5 nodes NEG; Clear Margins
Chemo: AC 4 rnds (1st one 3/31/08) finished 6/2/08
TH (Taxol/Hercepin) 12 weeks (1st one 6/25/08) finished 9/8/08
Herceptin 9 mos (every 3 weeks) finished 6/8/09
BRCA 1/2 NEG
Bio: Age 39, married to James 1999, 2 boys 12 & 10 yo
|
|
|
|
|
02-07-2011, 07:41 PM
|
#4
|
|
Senior Member
Join Date: May 2010
Location: Elizabethton, TN
Posts: 418
|
Re: New Here
Nan - I also say welcome to a place where you'll find lots of caring and support. I'm just a few months ahead of where you are. I'll finish Herceptin in late May. You've been through the worst of it already - you're in the home stretch. Good luck on the rest of your treatments.
__________________
Joni -64 yrs old -
3/01/10: found lump in rt.breast
3/12/10: mammogram/ultrasnd/biopsy-invasive bc & DCIS; 2 tumors (2cm er-/pr-/HER2-& 1.8 cm er-/pr-/HER2+); grade 3;poorly differentiated
3/24/10:sent.node biopsy clear
3/31/10:bi-lateral mx.;atypical ductal hyperplasia-lft side
4/21/10:wound revision-infection/scarring 4/28/10:seromas both sides
5/21/10:port installed,TCH chemo (6 x 3 wks); Herc,-1yr; 33 rad tx after chemo
07/2010: port not working-2nd port didnt'work;3rd port opposite side.
07/2010: 2 weeks after 3rd port surgery, threw 3 pulm. emboli-IVC filter installed; warfarin
08/2010: hospitalizations w/3 of chemos; decision to stop after 4th-on to radiation in Oct 2010;Herc cont.
12/03/2010 - finished 33 rads Hooray!! cont. Herc. every 3 wks
4/2011 - pneumonia ??? Nope-radiation pneumonitis. No more Herc.
5/2011 - NED!!! port out.
8/2011 - clean PET & CT scans.Still NED
7/2012 - Still NED/very blessed.
2/2013 - 6 mos checkup-all clear. CA2729 down frm 13 to 11.
|
|
|
|
|
02-07-2011, 08:35 PM
|
#5
|
|
Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
|
Re: New Here
Welcome to a group of caring, sharing, insightful, informed, just all around good folks ready to lend an ear to listen, a shoulder to cry on, a hand to hold and time to celebrate with you as you reach each milestone.
If you need us......we are here.
__________________
Rhonda (Sassy)
dx age 45
DX 2/15/05 Stage IIb (at surgery)restaged IIIa
Left mast .9cm tumor 5 of 14 nodes
Triple Positive
4 DD A/C
12 Taxol/Herceptin
33Rads
Strange infect mast site one year aft surg, hosp 1 wk
Herceptin for total of 18 months
Lupron Monthly 4 yrs
Neurontin for aches, pains and hot flashes(It works!)
Ovaries removed 11/09 stop Lupron and Neurontin
Arimidex 6 yrs (tried Femara, no SE improvement)
Tried Exemestane-hips got so bad could hardly walk
Back to Arimidex for year seven
Zometa 2X Annual for 7years, Lasix
Stop Arimidex 5/13
Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa
5/14 Start Tamoxifen
3/15 Stem cell transplant to stimulate femur bone growth/healing
5/15 Complete fracture of right femur/Titanium rods both femurs
9/16 Start Evista stopTamoxifen
3/17 Stop Evista--unwelcome side effects!
NED and no meds.......
14 YEARS NED!
|
|
|
|
|
02-07-2011, 09:07 PM
|
#6
|
|
Senior Member
Join Date: Oct 2010
Location: Perth Australia
Posts: 45
|
Re: New Here
Welcome. I have only just joined also the forum is so helpful these ladies know everything!
Diane
|
|
|
|
|
02-07-2011, 09:50 PM
|
#7
|
|
Senior Member
Join Date: Oct 2010
Posts: 229
|
Re: New Here
Welcome, i am fairly new also! You will find so many positive encouraging people here. If you have any questions ask as we all have experiences to share. Take care!
__________________
Diagnosed: Feb 2010 @ 46 yrs old
Invasive Ductual Carcinoma, left
2/28/10 Bilateral Mastectomy (tissue saving for future reconstruction)
3.2 cm 2/18 +lymph nodes
Stage 2b; E+/P+/Her2 +++
Nottingham score grade 2
Ki67 30%
3/2010 A/C 4 DD/2wks
5/2010 Herceptin/Taxotere 4D/3wks
8/2010 Herceptin until May 2011
Tamoxifin 20mg
9/2010 RAD 34 treatments
Pet scan Aug 2010 clear
Port removed July 2011
Bone scan, chest MRI 12/11 clear
Vaccine trial began Oct 2011
|
|
|
|
|
02-07-2011, 10:46 PM
|
#8
|
|
Senior Member
Join Date: Oct 2010
Posts: 92
|
Re: New Here
Welcome! I am fairly new also and I just finished radiation last Friday. I'm glad to hear you're doing well!
__________________
Dx June 2010
ER- PR+ Her2+++, Stage 3C
A/C x 4
Mastectomy 8/18 nodes+
Taxol/Herceptin x 4
35 rads
Continue Herceptin for 1 year
|
|
|
|
|
02-08-2011, 01:59 AM
|
#9
|
|
Senior Member
Join Date: May 2010
Location: Melbourne, Australia
Posts: 434
|
Re: New Here
Well done Nan. You are obviously mad of strong stuff to have worked through all that. The rest will surely be much easier.
Trish
|
|
|
|
|
02-08-2011, 03:57 AM
|
#10
|
|
Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
|
Re: New Here
Welcome, Nan.
Please check with your (radiation) oncology nurse about the cream for burns. I was given a sample lotion (?) in 2004 when I was experiencing burns on the radiation site. It worked very well.
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
|
|
|
|
|
02-08-2011, 04:08 AM
|
#11
|
|
Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
|
Re: New Here
Here's a thread with some good discussions on 'radiation burns' and nail issues:
http://her2support.org/vbulletin/sho...ighlight=nails
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
|
|
|
|
|
02-08-2011, 07:05 AM
|
#12
|
|
Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
|
Re: New Here
Hi Nan and welcome, I'm glad you found us and hope your burn heals very soon!
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
|
|
|
|
|
02-08-2011, 08:17 AM
|
#13
|
|
Senior Member
Join Date: Nov 2010
Location: PA
Posts: 297
|
Re: New Here
Welcome Nan, Yes you have found the right site. You can always stop in when you have a question or just to visit. I found that Eucerin worked well on my radiation burns but check with your Dr. Best wishes. Mary L
__________________
Mary L from PA Diag: Oct 2003 w/6mm mass, IDC grade III ductal carcinoma in-situ, IBC stage IIIB. tx A/C followed by Taxotere(only able to have 2 tx, allergic), mastectomy, 3 0ut of 7 positive nodes. 35 rads. Recurrence 9 months later, skin mets to mastectomy site. Tx Carboplatin/Herceptin. Stayed on Herceptin almost 5 years, had 3 more recurrences when I had to stop Herceptin due to my ejection fraction getting too low. Herceptin stopped and ned 3 years in Oct. 2010.
|
|
|
|
|
02-08-2011, 08:48 AM
|
#14
|
|
Senior Member
Join Date: May 2010
Location: Elizabethton, TN
Posts: 418
|
Re: New Here
Hi Nan - my radiation folks gave me several things - silvadene cream and a gel to use on my burns. It healed very quickly with those. They gave them to me during the treatments as soon as they noticed skin changes and I used them immediately after the treatments so that may have helped prevent worse burning. They should still give you something now to help with healing.
__________________
Joni -64 yrs old -
3/01/10: found lump in rt.breast
3/12/10: mammogram/ultrasnd/biopsy-invasive bc & DCIS; 2 tumors (2cm er-/pr-/HER2-& 1.8 cm er-/pr-/HER2+); grade 3;poorly differentiated
3/24/10:sent.node biopsy clear
3/31/10:bi-lateral mx.;atypical ductal hyperplasia-lft side
4/21/10:wound revision-infection/scarring 4/28/10:seromas both sides
5/21/10:port installed,TCH chemo (6 x 3 wks); Herc,-1yr; 33 rad tx after chemo
07/2010: port not working-2nd port didnt'work;3rd port opposite side.
07/2010: 2 weeks after 3rd port surgery, threw 3 pulm. emboli-IVC filter installed; warfarin
08/2010: hospitalizations w/3 of chemos; decision to stop after 4th-on to radiation in Oct 2010;Herc cont.
12/03/2010 - finished 33 rads Hooray!! cont. Herc. every 3 wks
4/2011 - pneumonia ??? Nope-radiation pneumonitis. No more Herc.
5/2011 - NED!!! port out.
8/2011 - clean PET & CT scans.Still NED
7/2012 - Still NED/very blessed.
2/2013 - 6 mos checkup-all clear. CA2729 down frm 13 to 11.
|
|
|
|
|
02-08-2011, 11:01 AM
|
#15
|
|
Junior Member
Join Date: Feb 2011
Posts: 3
|
Re: New Here
Thanks, everyone. My burn is feeling a little better than yesterday. The rad onc nurses have been helping me with cream and xeroflo. Two more treatments! I am throwing myself a big gala to celebrate on March 11. Anyone whoever said a kind word to me about cancer is invited. It's keeping my spirits up to plan it. Of course, unfortunately, the gala doesn't really mark the end of tx since Herceptin goes on and on and on.
__________________
Nan
dx'd May 2010, routine mammo. 2009 mammo neg
lumpectomy June 16
re-excision June 29
LNs negative, Her2/neu +. Tumor 3.7 cm
Adriamycin & cytoxan every other week x 4 July-Sept 2010
Herceptin & Taxol weekly x 12 wks. Finished 12/16/10.
Radiation therapy Dec 28 - Feb 10 2011.
Herceptin continues until October 6 2011.
|
|
|
|
|
02-08-2011, 04:32 PM
|
#16
|
|
Senior Member
Join Date: Sep 2005
Location: St. George, UT
Posts: 582
|
Re: New Here
Welcome, Nan! This is not a "club" one seeks out normally but what a blessing it is when it is needed! I've fought BC 4 times in 25 years, but the 5 or 6 years since I found this site have been so much easier because of the information, love and caring received here. My thoughts and prayers are with you as well as the many others. Never hesitate to come here to share fears, sorrows, hope and love. You won't find a more caring place. Hugs, TriciaK
|
|
|
|
|
02-08-2011, 07:10 PM
|
#17
|
|
Senior Member
Join Date: Aug 2010
Posts: 58
|
Re: New Here
Welcome Nan. Glad to see you post. Sounds like you have done great. My advice is allow yourself to feel. Emotions are strong. For sure celebrate, I do something everyday that makes me smile and usually cry too. I used to love to joke with the rad techs, all they see is mens privates and womens chests. I think I would rather look at boobies than the alternative. See I just made myself smile.
__________________
Laureen (laurie)
Diagnosed 8/10/06 (found own lump)at 35
Her 2 +++, er-/pr-
4 A/C 8-29-06 to 11-06
Lumpectomy, node dissection- 11/30/06
Pathology report stage IIIC
1 tumor 3 cm
10 of 15 nodes +
12 Taxol 12/18/06-03/06/07
Herceptin 12/18/06- 12/11/2007 done!!! yeah!!!
33 rads started 3/22/07, done!! yeah!! 5/07/07
Lymphedema diagnosed 2/1/07
BRCA1/BRCA2 negative
port out 1/10/08
pregnant after 6 yeas of trying- due mid feb.
Ryder David born Feb. 6th 2009
Pregnant with baby #2, due in early june 2011.
*reach to recovery volunteer
*survivor recruitment committee -relay for life
*imerman angels
*making strides- team courage
*livestrong
*young survivor coalition YSC
|
|
|
|
|
02-09-2011, 01:25 PM
|
#18
|
|
Senior Member
Join Date: Feb 2008
Location: Georgia
Posts: 1,486
|
Re: New Here
Welcome to our group, Nan.
Amelia
|
|
|
|
Posting Rules
|
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
HTML code is Off
|
|
|
All times are GMT -7. The time now is 05:52 PM.
|
Linear Mode
