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Old 06-27-2006, 10:06 PM   #1
al from Canada
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update to the update

Thanks for the support guys and please no more posts as I know how you feel, as consider myself blessed for the support but.... daughter came home tonight.
Two weeks or so of home rest and she is as good as new. Docs sending her to specialists to find the causes but, I think I know what may have tipped the scale and... as predicted, my theory just doesn't hold any water with the pros. That said, as a family we will address this recovery with a holistic approach, esp the emotional aspect. You read about long-time relationships and where one dies, the other follows in less than a year; careful what you wish for because....
Thanks again,
Al
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Old 06-27-2006, 10:59 PM   #2
StephN
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Wink Home at last ...

Sorry, but I just HAVE to post and say that I am really relieved that this situation is on the mend.Now that daughter is out of the worst of the situation, the healing can begin in earnest.

This also means a little less running around for you, hopefully.
Take care - all of you.
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"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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Old 06-28-2006, 04:43 AM   #3
bjj
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Similarly to Steph I just have to say how pleased I am that hear that Linda's daughter is back home.

Love

bjj
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Old 06-28-2006, 05:29 AM   #4
Barbara H.
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Glad your step daughter is home

Hi Al,
I too am glad to hear the news. I just returned from a trip to Michigan and drove through Ontario to get there and back. Both of you were certainly in my thoughts along the way.
Best wishes,
Barbara H.
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Old 06-28-2006, 10:16 AM   #5
TriciaK
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Okay, Al, we won't post, but we're sending love and prayers anyway! Hugs, Tricia
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Old 06-28-2006, 03:53 PM   #6
al from Canada
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enough!

Thanks guys,
Al
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