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04-24-2006, 08:58 PM
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#1
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Senior Member
Join Date: Jan 2006
Location: New Jersey / Miami, Fl
Posts: 50
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NBCC Patient Advocacy Training Conference
Is anyone else attending the NBCC Patient Advocacy Training Conference this weekend?
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04-25-2006, 04:45 AM
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#2
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Shannon
If thats the one in Washington, I think Michelle was going.
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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04-25-2006, 07:22 AM
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#3
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Senior Member
Join Date: Sep 2005
Posts: 95
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Yes, I believe Michelle is going. I will be there as well. Feel free to email me directly if you would like to connect at the conference. clgilman1@yahoo.com.
I hope to meet you there.
Cynthia |
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04-25-2006, 11:53 AM
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#4
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Senior Member
Join Date: Nov 2004
Location: Henderson, NE
Posts: 413
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yes, i'm going too! are you staying there are driving back and forth? I say your from new jersey. I will be staying at the renainsanse? hotel. I would LOVE to meet up with you! I'm not too sure about walking around DC by myself!
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04-25-2006, 03:06 PM
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#5
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Senior Member
Join Date: Jan 2006
Location: New Jersey / Miami, Fl
Posts: 50
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I'm staying at the renaissance
I will be staying at the renaissance hotel. Are you? It would be nice to meet up.
Have you attended this training conference in the past? Which workshops are you attending. As soon as I get up and look at my form I send you which ones at which times I have signed up for.
My onc says he ususally speaks but this year he could not make it.
shannon
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04-25-2006, 09:02 PM
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#6
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Senior Member
Join Date: Nov 2004
Location: Henderson, NE
Posts: 413
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Shannon, I'm staying there too! I'm so glad i will "know" someone now! I didn't sign up for any of the talks yet. How did you sign up for them? I guess i didn't know i was supposed to. oops. Have you been to DC before? Are you going there with someone or one your own? What kind of clothes are you taking? Sounds like a dumb question but i don't know what the weather is there. Excited to meet you Shannon
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04-25-2006, 10:46 PM
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#7
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Senior Member
Join Date: Jan 2006
Location: New Jersey / Miami, Fl
Posts: 50
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i registered in advance ...
I registered in advance, in order to apply for their "scholarship". I was asked to select workshops on the application. I know registration also takes place the first morning. Since I was awarded the scholarship, I have been set up to share a room with another recipient. I don't know this person. So basically, I will be on my own.
If you are up for exploring DC, I am. I have been to DC before, but only for the day and it was a few years ago. I really enjoyed it. The Metro (subway) is awesome and eliminates the need for a car. The college areas are really funky and full of all types of cuisines and cafes. The museums and monuments are amazing.
It is usually a bit warmer in DC than here in NJ. However, the weather has been crazy here. Last week it was beach weather (in the low 80s), then last weekend it was winter again (40's). It has warmed up again this week, so I am looks like DC will be nice (60-70s). I just check the forcast and it says sunny/65 through the 4/30.
It will be really nice to meet you if we have the chance.
Shannon
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04-26-2006, 05:08 PM
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#8
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Senior Member
Join Date: Nov 2004
Location: Henderson, NE
Posts: 413
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Shannon, i too will have a room mate picked. Wouldn't that be a ironic if we got the same room?! Let's plan on hanging together. I don't want to walk around by myself at night! I will give you my cell number so we can call each other. I'm getting into Washinton around 11:30 am sat. What about you? My cell is 4023668993 We can meet up sat.
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05-11-2006, 07:15 AM
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#9
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Senior Member
Join Date: Nov 2005
Posts: 943
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Thanks for being our advocate in appearance at many bc events for her2 Michele! I enjoy hearing your conference updates and viewing your conference/events photos, thanks
__________________
Robin
2002- dx her2 positive DCIS/bc TX Mast, herceptin chemo
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