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Old 02-04-2014, 08:21 PM   #1
crb
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Port or not??

After meeting with the oncologist last Thursday, it was briefly mentioned about putting in a port. The breast surgeon wanted a sentinel node biopsy prior to the chemo, but stated she didn't put the port in - another surgeon was needed for that. She squeezed me in the next morning for the biopsy (couldn't do it any other time for about a week & a half and didn't want to hold up chemo) & we didn't have time to set up the 2nd surgeon for that operation.

So now I have my first chemo date set up for next Thurs (didn't realize it was going to be ALL day - onco said a few hours) and I'm second guessing if I should have the port placed and if I should try to get it done before next Thurs or just wait until after and see how my veins hold up? I'm usually OK with needles, but just noticed my wrist is nicely bruised from the last IV. Also, now that I have consulted "Dr. Google", I am really thinking the port is the way to go.

Any thoughts??
Thanks!!
__________________
1/17/14 Day after 44th b-day, Got dx of 2 malignancies Rt breast; ER/PgR- HER2+
1/21/14 Biopsy of spot on left; normal
1/28/14 PET scan - CLEAR!
1/29/14 BRCA normal!
1/31/14 Sentinel node biopsy
2/5/14 Nodes are CLEAR! Stage I/IIa, N0, M0
2/13/14 Start Chemo, 6 rounds for 18 weeks prior to surgery
2/28/14 Port placed
3/6/14 Chemo Round 2
3/27/14 Chemo Round 3 (halfway done!)
4/11/14 u/s shows 2cm tumor about 2x5mm now!
4/17/14 Chemo Round 4
5/8/14 Chemo Round 5 and Daughter's Birthday :)
5/27/14 Last Chemo Party - Round 6
6/17 14 Herceptin only until next Feb.
6/20/14 BMX/Immediate reconstruction DONE
6/30/14 Path report back...NED!
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Old 02-04-2014, 08:42 PM   #2
jaykay
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Re: Port or not??

The port is a blessing - go for it. The surgeon will arrange for another dr to place the port. Save your veins and remember that you have a year of herceptin that will be given via the port.

Best,

Janis
__________________
March, 2000: 48, Post menopausal (5 yrs HRT) Left breast, IDC 3mm/DCIS 1.6cm, ER+/PR-/Her2+++, mod differentiated, MIB low, lumpectomy, node neg via SNB, rads=33 Stage 1a
June, 2000: Tamox 4.5 years,Femara for 5 years (end in Jan. 2010)
Sept, 2012: 61, Via mamm, ultrasound, biopsy, right breast, 2.3cm tumor, ER+/PR-/Her2+++, poorly diff, KI67 60-70%
BRCA 1 and 2 negative
October, 2012: Bi Mast with tissue expanders, port placement
Final Path: IDC 2.8cm, DCIS, 1/4 sentinal nodes positive (@#$%). Stage IIB
Nov 29, 2012: Begin TCH/6x/every 3 wks, H for 1 year/every 3 weeks.
March 14, 2013: Finished chemo
April 9, 2013: Begin radiation 28x
May 22, 2013: Finished rads
June 1st, 2013: Started Aromasin for 5 yrs.
July 15, 2013: Switched to Letrozole (Femara). Probably for the rest of my life
October 16, 2013: Exchange surgery
October 31, 2013: Finished Herceptin
December 5, 2013: Port removed
Glad this year is over!
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Old 02-05-2014, 12:09 AM   #3
Aussie Girl
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Re: Port or not??

Oh definitely the port ASAP. Saves a lot of trouble down the line for most of us. Unfortunately it causes some pain and bruising, so get some pain meds from your doctor. The pain goes down in a few days.

A port might delay the chemo a little, but I think it is worth getting - ask your oncologist as it depends on how your tumor is growing and what chemo they are giving.

Good luck

Aussie Girl
__________________
31mm Infiltrating duct carcinoma
Grade 3, ER/PR-, HER2+, Neg Sentinel nodes x 5
49mm field of DCIS
17 June '13: Screen detected impalpable mass, Mammogram neg, US.
25 June '13: Diagnosed after multiple biopsies and MRIs
28 June '13: Left lumpectomey
4 July '13: Left Mastectomy
12 August '13: Commenced TCH chemo
Mid December '13 : TCH finished. Herceptin continuing three weekly.
4 August 2014- Herceptin infusions finished.
END OF THERAPY - YAY!
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Old 02-05-2014, 06:18 AM   #4
Coux92
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Re: Port or not??

I felt I had good veins and since I was getting TCH as apposed to the AC (more toxic to the veins), we felt I should be OK forgoing the port. I made thru chemo fine but have had some difficulty with the first few solo herceptin infusions, my veins were worn out. It took warm packs, a few sticks and good hydration to get through. Now my veins seem to be recovering and the last two infusions I had easy IV access once again. I hope it continues. I do herceptin till June.I have to say, I have had some second thoughts of skipping the port. Hope this helps and I hope chemo is kind to you but deadly to the cancer.
Elizabeth
__________________
3/11/13- normal mammo and US
4/30/13 Found pea sized lump while showering
5/10/13 core bx
5/15/13 dx IDC 1CM,
5/20/13 BRAC 1&2 neg
5/28/13 lumpectomy and SNB, ER/PR/Her-2+, Nodes neg,positive margins
6/13/13 revision of margins . Now clear
6/26/13 first TCH
Chemo Ninja~kutaki Zika Zukuchiri
10/18/13-Bx of calcification-neg whew
11/7/13 Started Radiation.
01/2014- Started Tamoxifen
06/09/14-Steriotactic BX left breast calcification-Benign
06/18/2014-completed one year of Herceptin!
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Old 02-05-2014, 08:51 AM   #5
caya
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Re: Port or not??

Get the port.

all the best
caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08

Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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Old 02-05-2014, 09:53 AM   #6
crb
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Re: Port or not??

Would anyone suggest trying to get the port prior to 1st chemo next Thurs (and possibly have to put off chemo for another week)? Or just suck it up and see how it goes - surgeon said I can do after 1st treatment also...
__________________
1/17/14 Day after 44th b-day, Got dx of 2 malignancies Rt breast; ER/PgR- HER2+
1/21/14 Biopsy of spot on left; normal
1/28/14 PET scan - CLEAR!
1/29/14 BRCA normal!
1/31/14 Sentinel node biopsy
2/5/14 Nodes are CLEAR! Stage I/IIa, N0, M0
2/13/14 Start Chemo, 6 rounds for 18 weeks prior to surgery
2/28/14 Port placed
3/6/14 Chemo Round 2
3/27/14 Chemo Round 3 (halfway done!)
4/11/14 u/s shows 2cm tumor about 2x5mm now!
4/17/14 Chemo Round 4
5/8/14 Chemo Round 5 and Daughter's Birthday :)
5/27/14 Last Chemo Party - Round 6
6/17 14 Herceptin only until next Feb.
6/20/14 BMX/Immediate reconstruction DONE
6/30/14 Path report back...NED!
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Old 02-05-2014, 10:01 AM   #7
caya
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Re: Port or not??

I got my port after my 1st chemo - they couldn't schedule me in beforehand and onc. did not want me to delay my chemo.
Don't delay chemo, one vein IV will be okay. You can get the port afterwards.

all the best
caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08

Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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Old 02-05-2014, 01:07 PM   #8
tricia keegan
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Re: Port or not??

I hated the idea of a port but finally had to ask for one after my third chemo by which time my veins had already been damaged and they still are today, I'd say get a port as it really does make the whole thing far easier.

Although they say a few hours, there's always delays in waiting for blood results or the pharmacy etc and it takes longer for the first infusion anyway, good luck.
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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Old 02-05-2014, 06:51 PM   #9
Laurel
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Re: Port or not??

Port. ASAP. You will not regret it.
__________________

Smile On!
Laurel


Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara

15 Years NED
I think I just might hang around awhile....

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Old 02-05-2014, 07:02 PM   #10
Debbie L.
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Re: Port or not??

I think it's possible, with decent veins and a good nurse, to get thru fairly smoothly without a port (I did). But having said that, it also needs to be said that I've never heard anyone who did get a port say that they regretted the decision, as you've seen from most of the responses so far.

Whether you get it before or after the 1st chemo is probably not of much importance. Do whatever fits your schedule and life.

So glad to hear about the negative nodes. How did the recovery go?
Debbie Laxague
__________________
3/01 ~ Age 49. Occult primary announced by large (6cm) axillary node, found by my husband.
4/01 ~ Bilateral mastectomies (LMRM, R elective simple) - 1.2cm IDC was found at pathology. 5 of 11 axillary nodes positive, largest = 6cm. Stage IIIA
ERPR 5%/1% (re-done later at Baylor, both negative at zero).
HER2neu positive by IHC and FISH (8.89).
Lymphovascular invasion, grade 3, 8/9 modified SBR.
TX: Control of arm of NSABP's B-31 adjuvant Herceptin trial (no Herceptin, inducing a severe case of Herceptin-envy): A/C x 4 and Taxol x 4 q3weeks, then rads. Raging infection of entire chest after small revision of mastectomy scar after completing tx (significance unknown). Arimidex for two years, stopped after second pathology opinion.
2017: Mild and manageable lymphedema and some cognitive issues.
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Old 02-05-2014, 07:20 PM   #11
sassy
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Re: Port or not??

Port definitely.
__________________
Rhonda (Sassy)
dx age 45
DX 2/15/05 Stage IIb (at surgery)restaged IIIa
Left mast .9cm tumor 5 of 14 nodes
Triple Positive
4 DD A/C
12 Taxol/Herceptin
33Rads
Strange infect mast site one year aft surg, hosp 1 wk
Herceptin for total of 18 months
Lupron Monthly 4 yrs
Neurontin for aches, pains and hot flashes(It works!)
Ovaries removed 11/09 stop Lupron and Neurontin
Arimidex 6 yrs (tried Femara, no SE improvement)
Tried Exemestane-hips got so bad could hardly walk
Back to Arimidex for year seven
Zometa 2X Annual for 7years, Lasix
Stop Arimidex 5/13
Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa
5/14 Start Tamoxifen
3/15 Stem cell transplant to stimulate femur bone growth/healing
5/15 Complete fracture of right femur/Titanium rods both femurs
9/16 Start Evista stopTamoxifen
3/17 Stop Evista--unwelcome side effects!
NED and no meds.......
14YEARS NED!
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Old 02-05-2014, 07:51 PM   #12
BonnieR
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Re: Port or not??

Port. Cause even if you start without, it will catch up to you. I went a few treatments without one and the treatment room nurses pretty much insisted I get the port.
When I did get it installed, I had chemo later the same day. Don't recommend that! I had issues with real discomfort and inflammation
I did not love the placement of my port. It was annoying. But a necessary evil. And temporary
Was installed as out patient surgery
Keep the faith
PS: the first chemo is the longest. An all day affair. They go real slow. It gets a little better but always took most of a day Dress real comfy. And warm. It's always cold there bring snacks and water. iPad, iPod etc. I began a journal
__________________
Bonnie

Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10

Last edited by BonnieR; 02-05-2014 at 07:55 PM..
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Old 02-05-2014, 08:21 PM   #13
crb
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Posts: 97
Re: Port or not??

Debbie:
Recovery from the node biopsy was a breeze! Surgeon wanted me to take a few days off work, not drive for a week, etc. Had my mom spend the night Friday (hubby and son were out of town), so the next morning I was at daughter's lacrosse game (taking only 1/4 percocet), Sunday went to practice (friend drove), but by Monday I went to work for a bit and drove no problem. Took a nap or two over weekend. No more pain meds after Saturday - only Tylenol then Advil once or twice this week.

But I'm a bit stubborn and hard-headed...drove myself to the hospital down the interstate while in labor with daughter (contractions every 5 min), had her about 2 hours after getting to hospital (14 min after water broke) with no pain meds/epidural (THAT was not by choice). Could've driven myself home that night
__________________
1/17/14 Day after 44th b-day, Got dx of 2 malignancies Rt breast; ER/PgR- HER2+
1/21/14 Biopsy of spot on left; normal
1/28/14 PET scan - CLEAR!
1/29/14 BRCA normal!
1/31/14 Sentinel node biopsy
2/5/14 Nodes are CLEAR! Stage I/IIa, N0, M0
2/13/14 Start Chemo, 6 rounds for 18 weeks prior to surgery
2/28/14 Port placed
3/6/14 Chemo Round 2
3/27/14 Chemo Round 3 (halfway done!)
4/11/14 u/s shows 2cm tumor about 2x5mm now!
4/17/14 Chemo Round 4
5/8/14 Chemo Round 5 and Daughter's Birthday :)
5/27/14 Last Chemo Party - Round 6
6/17 14 Herceptin only until next Feb.
6/20/14 BMX/Immediate reconstruction DONE
6/30/14 Path report back...NED!
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Old 02-06-2014, 11:29 PM   #14
Catherine
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Re: Port or not??

Get the port. My onc said that I could get a port after first chemo 8 yrs ago. Then there was a cancellation and they squezzed me in. I was happy to have port thru all chemo and then the year of herceptin. All the best!
__________________
Catherine


Found my own lump in the shower
April 2006 at the age of 58
Stage IIB, ER- PR- HER2+++ multi focal tumors, largest 2.3cm
Chemo first: AC/Taxol over 16 weeks
Bilateral mastectomy Sep 06
33 rads after the surgery
1 year of Herceptin completed Dec 07
15 years and no recurrence as of April 2021
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Old 02-07-2014, 04:58 AM   #15
Aussie Girl
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Re: Port or not??

Dear CRB

If I was you I would have the port put in before the chemo, unless your oncologist says otherwise or it just can't be scheduled. A week's delay in chemo is usually OK unless your tumor is growing faster than average.

Aussie Girl
__________________
31mm Infiltrating duct carcinoma
Grade 3, ER/PR-, HER2+, Neg Sentinel nodes x 5
49mm field of DCIS
17 June '13: Screen detected impalpable mass, Mammogram neg, US.
25 June '13: Diagnosed after multiple biopsies and MRIs
28 June '13: Left lumpectomey
4 July '13: Left Mastectomy
12 August '13: Commenced TCH chemo
Mid December '13 : TCH finished. Herceptin continuing three weekly.
4 August 2014- Herceptin infusions finished.
END OF THERAPY - YAY!
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Old 02-07-2014, 12:15 PM   #16
Rolepaul
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Posts: 391
Re: Port or not??

Chemo then the port. Do not delay chemo as some evidence that early chemo prior to immediately after surgery gets cells that break lose during surgery. That is from some unpublished data. Don't ask where you can find it as they were told not to do so.
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