Mamace (Kim) how are you?

[Ellie F]

Hi Kim
Glad to hear from you but sorry the darn thing came back! Really pleased you are stable and sure NED will be back.I told my onc last year about you following a discussion about herceptin resistance. He argued (as I believe Dr Slamon does) that resistance occurs in most patients after a few years. What I think is clear is that there is probably a subset of women who do NOT gain resistance.this is encouraging but also confusing as I guess currently we have no way of knowing who is in which group. If it were clearer we could continue herceptin for women in high risk groups for recurrence.
I was interested to hear how well you felt off herceptin. I have been having it for 4 years and feel that there are cumulative effects the longer time you have it but can't seem to find anymore info? However despite side effects I am grateful for the benefits this drug brings to so many of us.
Hugs
Ellie