Could use some prayers...I so need a break - HER2 Support Group Forums

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Could use some prayers...I so need a break

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05-04-2012, 02:29 PM	#1
Joan M Senior Member Join Date: Oct 2007 Posts: 1,851	Re: Could use some prayers...I so need a break Sheila, I'm praying hard for you as always. That you'll start getting Taxotere soon. And also that the weeks will fly by for FDA approval of pertuzumab (or whatever they'll end up calling it). Hang in there. Hoping to see you again at one of the conferences. Joan __________________ Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2021 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!!

05-04-2012, 04:43 PM	#2
dawny Senior Member Join Date: Oct 2011 Location: Geelong, Australia Posts: 250	Re: Could use some prayers...I so need a break Sheila, I really hope you do get that break, sending you good vibes Dawn __________________ Dx May 27 2011, age 43 Stage 1V 3.6cm breast lump, spot on lungs, nodes chest + neck HER2+ ER/PR- Abraxane weekly - 16 weeks Herceptin every third week September 26 2011 N.E.D! Herceptin ongoing 8th Dec 2011 Brain MRI - clear 20th Dec 2011 bone/cat scan clear still NED April 2012 scans show axillary node lump - ? what to do... June 2012 Axillary node dissection 1/11 nodes affected, a wide local excision shows DCIS. Now what to do again? Watch and scan 3 monthly April 2013, two spots in nodes to chest wall, start TDM1 (Kadcycla) as part of clinical trial July 2013 stable Oct 2013 progression off TDM-1 (Kadcycla) Nov 2013 radiation to lymph nodes in sternum Dec 2013. Mastectomy right side, pathology shows tumour was HER-2 negative, no wonder TDM-1 (Kadcycla) didn’t work! April 2014 NED. On Herceptin only August 2014 NED. On Herceptin only March 2015. NED. On Herceptin only September 2015 NED on Herceptin only March 2016. Pulmonary embolism, Clexane injections daily forever. Still NED On Herceptin only Nov 2016. Bone Mets in ribs - Radiation. Don’t know if bone Mets are er-/pr-/HER2+ or triple negative. Can’t give self injections on to tablets (Xarelto) for blood clots. 2017 NED - On Herceptin only 2018 NED - On Herceptin only 2019 NED - On Herceptin only 2020 NED - On Herceptin only 2021 NED - On Herceptin only

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