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Old 09-02-2011, 05:39 PM   #1
bejuce
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Going camping for 2 nights and forgot my Tamoxifen

This will be the first time I'll go without it for
2 nights. Will that be ok???

Thanks!!!
__________________
ER+ (30%)/PR-/HER-2+, stage 3

Diagnosed on 02/18/09 at 38 with a huge 12x10 cm tumor, after a 6 month delay. Told I was too young and had no risk factors. Found swollen node during breastfeeding.
March-August 09: neo-adjuvant chemo, part of a trial at Stanford (4 DD A/C, 4 Taxotere with daily Tykerb), loading dose of Herceptin
08/12/09 - bye bye boobies (bilateral mastectomy)
08/24/09 - path report shows 100 % success in breast tissue (no cancer there, yay!), 98 % success in lymphatic invasion, and even though 11/13 nodes were still positive, > 95 % of the tumor in them was killed. Hoping for the best!
September-October 09: rads with daily Xeloda
02/25/10 - Cholecystectomy
05/27/10 - Bone scan clear
06/14/10 - CT scan clear, ovarian cyst found
07/27/10 - Done with Herceptin!
02/15/11 - MVA-BN HER-2 vaccine trial
03/15/11 - First CA 15-3: 12.7 and normal, yay!
10/01/11 - Bone scan and CT scan clear, fatty liver found
now on Tamoxifen and Aspirin


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Old 09-02-2011, 06:45 PM   #2
Bill
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Re: Going camping for 2 nights and forgot my Tamoxifen

Hey there! It's not really my area of expertise, but my gut feeling is that you'll be fine. I'm sure the experts will chime in here, but I wouldn't worry too much. Just enjoy your time camping and get back on track when you return. Try to relax and have a good time. You deserve it.
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Old 09-02-2011, 06:53 PM   #3
Laurel
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Re: Going camping for 2 nights and forgot my Tamoxifen

Marcia,

Well, I feel compelled to disclose that I am NOT a doctor before dispensing my advise, HOWEVER, I did play doctor once when I was 6, but I digress....

Anyway, a few missed doses of the old cancer cocktail will not harm you. I know this because my onc. had me take a few days off to try to ascertain the etiology of a wicked migraine. She told me that a holiday of a couple of weeks would not be deleterious in any way, so rest easy and enjoy the mosquito bites. Have a s'more for me!
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Smile On!
Laurel


Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara

15 Years NED
I think I just might hang around awhile....

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Old 09-02-2011, 07:02 PM   #4
BonnieR
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Re: Going camping for 2 nights and forgot my Tamoxifen

I will make the same disclaimer as Laurel! And then add that I think you will be fine. I too was given a vacation once between switching AIs and the onc said no worries.
Laurel mentioned mosquito bites and actually, that could be worrisome for you if you are prone to lymphedema having had nodes removed. Protect you arms from sunburn and bites.

Enjoy the experience. Keep the faithl

ETA: Hey Bill!!!
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Bonnie

Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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Old 09-02-2011, 07:33 PM   #5
Laurel
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Re: Going camping for 2 nights and forgot my Tamoxifen

Good one, Bonnie! And no rolling naked in the poison ivy either!
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Smile On!
Laurel


Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara

15 Years NED
I think I just might hang around awhile....

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Old 09-02-2011, 07:43 PM   #6
Becky
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Re: Going camping for 2 nights and forgot my Tamoxifen

Tamoxifen is active in the body for about 3 weeks. Even if it wasn't - no big deal. Enjoy
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Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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Old 09-05-2011, 05:42 PM   #7
bejuce
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Re: Going camping for 2 nights and forgot my Tamoxifen

Thank you so much for your replies! We were on our way to the camping site when I realized I had forgotten my Tamoxifen. I exclaimed out loud and my husband was ready to turn back. I then typed this message on my iPhone and called the cancer center which told me it would be no problem. I then thought about stopping at a Walgreens nearby and was able to get a 2-pill supply for the weekend in 15min.

When I got back in the car, my sweet 9-year-old said that she'd rather pitch the tent in
the dark and go home to get my medicine than let me
go without it. I love my family so very much.

In any case, we had a blast. Lots of bug bites but thankfully somehow they got me
in my ankles rather than my arm.

Hope you all had a wonderful weekend!

Love,

Marcia
__________________
ER+ (30%)/PR-/HER-2+, stage 3

Diagnosed on 02/18/09 at 38 with a huge 12x10 cm tumor, after a 6 month delay. Told I was too young and had no risk factors. Found swollen node during breastfeeding.
March-August 09: neo-adjuvant chemo, part of a trial at Stanford (4 DD A/C, 4 Taxotere with daily Tykerb), loading dose of Herceptin
08/12/09 - bye bye boobies (bilateral mastectomy)
08/24/09 - path report shows 100 % success in breast tissue (no cancer there, yay!), 98 % success in lymphatic invasion, and even though 11/13 nodes were still positive, > 95 % of the tumor in them was killed. Hoping for the best!
September-October 09: rads with daily Xeloda
02/25/10 - Cholecystectomy
05/27/10 - Bone scan clear
06/14/10 - CT scan clear, ovarian cyst found
07/27/10 - Done with Herceptin!
02/15/11 - MVA-BN HER-2 vaccine trial
03/15/11 - First CA 15-3: 12.7 and normal, yay!
10/01/11 - Bone scan and CT scan clear, fatty liver found
now on Tamoxifen and Aspirin


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Old 09-05-2011, 06:20 PM   #8
Bill
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Re: Going camping for 2 nights and forgot my Tamoxifen

Marcia, I'm glad you had such a good time camping and everything worked out. Now is the best time to plan your next trip!
(Hey, Bonnielass!)
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