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05-13-2011, 05:27 AM
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#1
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Senior Member
Join Date: Sep 2005
Location: MN
Posts: 731
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headaces after wbr?
I finished my wbr March 30. I don't have any of the symptoms I was having before radiation - severe headache, dizzy, motor control etc. But I do have some headache symptoms.
On the left side of my head about midway up from my ear to my crown I have a spot that hurts/aches -it's subtle not severe. On the right side a little lower and more toward the back, the same thing (not at the same time). Before brain mets I wouldn't have given any thought to this. It doesn't last long, i't nothing I'd take an advil for.
I also have a very itchy scalp all over my bald head - sometimes It's hard to tell if it's the scalp irritation or the head hurting. I'm using lotion of the scalp but it continues... ug
When is a headache just a headache? Is this just ongoing 'work' of the radiation - it's supposed to stay active for a month or so after last treatment, right? Is this a sign of more trouble? I have a brain MRI on May 24.
My paranoia runs deep............ Thanks. Pam
__________________
Pam
6/01 IBC er+ her2+stage IIIb; mastecomy
7/01 AC, taxol; radiation
2/02 tamoxifen
9/02 stage IV bone mets femara
1/03 taxotere/herceptin/aredia
6/03 herceptin, aredia & faslodex
1/04 navelbine, herceptin, aredia
2/05 herceptin/aredia
7/05 xeloda/herceptin/aredia
3/07 xeloda/tykerb/aredia
5/08 taxol/avastin/aredia
2/09 gemzar/herceptin/zometa
7/09 Taxol/Carbo/Herceptin, zometa
10/09 navelbine/herceptin & zometa
2/10 herceptin & tykerb & zometa
4/10 add xeloda &aromasin
10/10 dx with dermatomyiositis triggered by cancer
11/10 restart herceptin, tykerb, zometa
12/10 surgery-place rod in R femur to stabilize bone
1/11 radiation to R femur - 20 tx
2/11 2nd surgery - rod in Left femur
2/11 tx eribulen -- suspended dx brain mets
3/11 brain mets wbr 20 tx
4/11 halaven; discontine 8/11 not working
8/11 radiation to left femur 20 tx'
8-9/11 rad to lower spine
9/11 abraxane/herceptin/zometa
9/12 xeloda/herceptin/zometa
12/12 ablation of liver
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05-13-2011, 06:13 AM
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#2
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Senior Member
Join Date: May 2010
Location: Ireland
Posts: 271
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Re: headaces after wbr?
Pam, am in the very same way as you. I have to wait until June 14th for a scan and every little sensation or minor ache worries me. Unfortunately nothing we can do but wait. I will be hoping for good news for you. Best wishes.
__________________
Delaney, dx 2008 lumpectomy,mastectomy,a/c,paxitaxol, tyverb 1 yr.
dx 2010 mets lymph nodes, skin, lung. start taxotere/herceptin.
Stopped taxtere/herceptin, now on tyverb/xeloda.
Lung mets shrinking.
Back on Herceptin with T/X. Partial response.
Skin mets progressing. Radiation scheduled mid february 2011.
Spot found on hip - radiation to hip beginning mid February 2011.
Now trying Gemzar/Tyverb/Herceptin and Zometa.
CT scan Feb 2011 - lung clear!
Brain mets (specks) - radiation mid Feb.
Brain Scan June'11 - Clear
CT Scan June'11 - Good - skin met active - watch and wait.
Surgery to remove skin met. Surgery to back 2012, four titanium rods inserted. Skin mets reappear. On Navelbine, not working. 4 week washout, start Myocet for skin and lung mets August 2012. Brain scan clear despte intermittent blurry vision (something hiding? Am suspicious but hopeful. )On we go, glad to be here.
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05-13-2011, 06:20 AM
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#3
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Senior Member
Join Date: Sep 2009
Location: Kensington, CT
Posts: 394
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Re: headaces after wbr?
Hi Pam,
Im new to the Brain Mets journey and I do the same thing as you. Every little twing, twitch or slight headache, I think Oh God more mets or it's growing. A few weeks before my Brain MRI (4/21), I had those symptoms but gratefully, it was a good report. I don't know for sure but I think that it happens because the tumor is shrinking and dying that's why I get those feelings.
I am praying for you to have a very good MRI report too.
Love & Hugs,
Kris....
__________________
06/08/09 - 55, IDC, IIIA, ER+/PR-/HER+++
Nottingham 6/9 - Grade 2 5.2cm, several nodes
06/23/09 - Neoadjuvant - TCH Herceptin til June
10/07/09 - Finished Chemo
10/27/09 - Mastectomy RB
Path Report: RB No residual tumor pCR,
2 of 15 pos - .5mm largest micromets
12/18/09 - Radiation started (28)
02/05/10 - Finished Radiation
01/11/10 - Started Femara
06/22/10 - Finished Herceptin.. My son's 22nd BD. Hope it's a sign! Hoping for the best.
11/15/10 - Started Walter Reed BC Vaccine trial at
1/04/11 - Sibley Mem. Had to withdraw due to met
01/23/11 - Stage IV - Brain Met 1.6cm 1.7cm
02/03/11 - Gamma Knife (2 fracts to minmize necrosis)
03/01/11 - Gamma Knife
6/11 - Necrosis
7/11 - Necrosis stopped & Tumor progression
8/11 = Now think it's really necrosis
9/11 - Avastin every two weeks -- It's working!! Necrosis is shrinking.
12/11 - Necrosis gone AVASTIN worked.
12/11 - Bone &CT found
Oct '10 - Ran Hartford 1/2 Marathon to Thank Dr. Slamon for Herceptin!
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05-13-2011, 08:41 AM
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#4
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Senior Member
Join Date: Dec 2006
Location: Oregon
Posts: 715
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Re: headaces after wbr?
To all you after WBR....wow, so sorry that all those little twitchs keep you thinking...what is going on. Our thoughts naturally wonder what is going on. Just wanted to send you a note of love and caring. You are brave and I wanted to send extra hugs to each of you today.
Thinking of you,
__________________
Catherine
Found my own lump in the shower
April 2006 at the age of 58
Stage IIB, ER- PR- HER2+++ multi focal tumors, largest 2.3cm
Chemo first: AC/Taxol over 16 weeks
Bilateral mastectomy Sep 06
33 rads after the surgery
1 year of Herceptin completed Dec 07
15 years and no recurrence as of April 2021
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05-13-2011, 10:46 AM
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#5
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Senior Member
Join Date: May 2006
Posts: 3,142
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Re: headaces after wbr?
I hope you will be feeling better soon. Perhaps the radiologist's office or a good dermatologist can offer you something for the itchy scalp. Take good care of yourself.
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05-13-2011, 01:06 PM
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#6
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Senior Member
Join Date: Jan 2010
Location: Matakana which is one hour north of Auckland, New Zealand.
Posts: 89
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Re: headaces after wbr?
Hi Pam i saw my Onc last week. I had the same problems as you. He told me as long as the headache does not stay in one spot it is nothing to be concerned about and the radiation is still working. The radiation seems to continue for a couple of months. I also find if i have a big rest the headaches go.
The other side effect with the ear is called ear plug from the radiation and that should disappear soon. This is from a build up of wax in the inner ear that goes hard from the radiation.
I use 100% Aleo Vera on my scalp and its good now.
I'm not sure when my next scan is, I hope its soon. The other thing I've been told is I can't drive for three years which seems excessive to me. I've got two you children to drive around - not sure what to do about that?
Hope head aches improve
Regards Jacqui
__________________
Oct 2009 Masectomy 6 cm Tumor . Sentinal node biopsy , Node Positive . Her2 + er/pr -.
Nov 2009 X3 Taxane and Herceptin, X3 FEC
March 2010 25 Rads
March 2010 continued on Herception untill 16 Dec 2010
May 2010 Ultra Sound .... ALL CLEAR... NED
August 2010 started vaccine trial University of Washington
7th Dec 2010 finished vaccine trial
20th Dec 2010 Port removed
3rd Feb no longer ned brain mets
23r Feb start VMAT radiation
August 2011 two new mets to brain and others starting to grow again !!!!
August start tykerb and xeloda
Dec 1 MRI all small brain mets gone. Largest shrunk by 50% only three small ones to go 17mm,8mm,6mm. Mets on there way out. Yeah
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