HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Today's Posts

Reply
 
Thread Tools Display Modes
Old 03-24-2011, 09:10 PM   #1
ElaineM
Senior Member
 
ElaineM's Avatar
 
Join Date: May 2006
Posts: 3,142
Wink Re: brain mets

I am so happy to hear from you Pam. I wish I were closer, so I could make you some homemade thin creamed vegetable and bean soup or fruit juice. I do that for myself and I did that for a friend who had to have her jaw wired shut last years as a result of an accident.
If you don't feel like cooking or don't have anyone to help you cook I have a suggestion or two. Instant white miso soup with instant rice plus a little canned salmon and a few frozen veggies thrown in the soup might help. Also if you have a blender you might want to pour in some milk, almond milk, soymilk, rice milk or yoghurt. Add protein powder from a health food store and a little frozen fruit in small pieces like blueberries. Add water if desired. You can add a little honey, cinnamon or brown sugar if you want, but I never add extra sweeteners when I make it for myself. Cold cereal with milk or yoghurt is pretty good with a cup of tea. You can also get instant oatmeal. Just add hot water and some dried fruit like raisins.
Whatever you decide to do I hope the WBR kills all the mets, so you can get back to chemo as soon as possible.
Take good care of yourself. I have my fingers crossed for you friend.
__________________
Peace,
ElaineM
12 years and counting
http://her2support.org/vbulletin/showthread.php?t=48247
Lucky 13 !! I hope so !!!!!!
http://her2support.org/vbulletin/showthread.php?t=52807
14 Year Survivor
http://her2support.org/vbulletin/showthread.php?t=57053
"You never know how strong you are until being strong is the only choice you have." author unknown
Shared by a multiple myeloma survivor.
ElaineM is offline   Reply With Quote
Old 03-25-2011, 09:28 AM   #2
MJo
Senior Member
 
MJo's Avatar
 
Join Date: Apr 2006
Location: Wilmington, Del.
Posts: 1,126
Re: brain mets

Sending up prayers for you. Looking forward to hearing that those nasty spots are gone, you're eating and sleeping again and doing something fun to reward yourself for this rough time. Keep up the courage.
__________________
MJO

IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
MJo is offline   Reply With Quote
Old 03-25-2011, 10:47 AM   #3
StephN
Senior Member
 
StephN's Avatar
 
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
Re: brain mets

Dear, dear Pam.
So sorry to hear this state you are in. It goes with the territory though.

Besides the rads themselves, the Decadron is a killer. It is muscle wasting and everyone here who had to take it said their legs weakened while on it.

When It was my turn to take that drug, I tried to concentrate on proteins to keep up my strength. Scrambled eggs in chicken broth. Eggs were always an easy choice. Noodles in chicken broth. Egg salad sandwich. Apple sauce or grated apple when my mouth was bad was tolerable. Bananas.

Do you have a friend or church member who can help with some cooking/shopping? Hope by the end of next week this will become a memory and the weight loss will have halted. Cyberhug coming your way!
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
StephN is offline   Reply With Quote
Old 03-25-2011, 12:19 PM   #4
ElaineM
Senior Member
 
ElaineM's Avatar
 
Join Date: May 2006
Posts: 3,142
Wink Re: brain mets

Thanks Steph. I forgot the eggs. I boil 3-4 eggs and keep them in the refrigerator for a quick snack with a cup of tea or eat one with a bowl of cereal and almond milk.
I am vegetarian, so sometimes I get some of those packaged instant noodles. I throw away the soup base and add water and instant miso soup plus a few frozen veggies and some edamane or other beans. Great comfort food !!!!!! I use Bragg's amino sauce in water if I am cutting back on salt. Miso tends to be a little salty.
I hope you are feeling better today Pam.
__________________
Peace,
ElaineM
12 years and counting
http://her2support.org/vbulletin/showthread.php?t=48247
Lucky 13 !! I hope so !!!!!!
http://her2support.org/vbulletin/showthread.php?t=52807
14 Year Survivor
http://her2support.org/vbulletin/showthread.php?t=57053
"You never know how strong you are until being strong is the only choice you have." author unknown
Shared by a multiple myeloma survivor.
ElaineM is offline   Reply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 07:28 PM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2024, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter