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07-28-2009, 08:38 AM
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#21
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Senior Member
Join Date: Feb 2008
Location: Bayarea,CA
Posts: 679
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Tricia, you are in my prayers. It is such a difficult news to hear but I too have faith in your strength.
hugs,
shobha
__________________
DX: 06-30-2007 - left breast -stage IIIB, Her2/Neu 3+++, ER weakly positive, PR-
Taxol+herceptin weekly for 3 months
FEC+herceptin every 3 weeks for 3 months
BRCA 1 and 2 - Negative
Jan 2008 - Bilateral mastectomy, prophylactic Rt. side.
Radiation for 5 weeks
Completed my yr of herceptin on 07-14-2008
Brain MRI - 3/2/09 Clean
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07-28-2009, 10:04 AM
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#22
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Senior Member
Join Date: Jul 2009
Location: Sardegna, Italy
Posts: 362
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No guilt!
You are so sweet! I'm new here but really wanted to say you that YOU (and all of us!) deserve every day we have of life! You know, our bodies really can live to be 110-115 pretty easily - we just have to believe it! And... well, small other hurdles - like beat the big C! But I believe you can, and will! Thank you for your inspiration! Karen
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07-28-2009, 10:17 AM
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#23
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Senior Member
Join Date: Feb 2008
Location: Georgia
Posts: 1,486
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Tricia,
You are an inspiration to me. I will be praying for you.
Amelia
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07-28-2009, 12:39 PM
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#24
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Senior Member
Join Date: Oct 2006
Location: Louisville KY
Naples FL
Posts: 665
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Tricia
So sorry to hear the results of your test but there
are lots of drugs to try and I will be sending healing
thoughts and my prayers your way. Maybe sooner
than later on some type of treatment.
patb
__________________
patb
Diagnosed June, 06, Stage I, Grade3, ER+PR- Her2positive, No Nodes. A/C X 4. Radiation 33 with boost, Herceptin every two weeks until Nov.
07, Arimedex for 5 years. Mugas and Echo and chest xRay. Bone scan of whole Body, and Back of Brain and spine MRI.
CT scan of Lungs every six months
due to two small places. December
2009, bone scan due to bone pain.
Follow up test in 2010.
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07-28-2009, 01:01 PM
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#25
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Senior Member
Join Date: Feb 2007
Location: Paris, France
Posts: 858
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Dear Tricia. I am so sorry to read that you have to fight again. I hope you will find the right weapons with your onc. to kill the beast, once more, like you always did so courageously. I am sending you strength and love.Michka
__________________
08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20%
FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex
12.2010 Mets to liver,Herceptin+Tykerb
03.2011 Liver resection ER+70% PR-
04.2011 Herceptin+Navelbine+750mg Tykerb
06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum
11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin
02.2012 Mets to lungs, nodes, liver
04.2012 TDM1, Ned in 07.2012
04.2015 Stop TDM1/Kadcyla, still Ned, liver problems
04.2016 Liver mets. Back on Kadcyla
08.2016 Kadcyla stopped working. mets to liver lungs bones
09.2016 Biopsy to liver. no more HER2, still ER+
09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife
01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere
02.2017 30 micro mets to brain breathing getting worse and worse
04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven
06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms
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07-28-2009, 01:06 PM
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#26
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Senior Member
Join Date: Apr 2006
Location: Wilmington, Del.
Posts: 1,126
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You are such a pioneer and a trailblazer. I trust you have many more years of fighting ahead of you. Your oncologist sounds wonderful. A good oncologist is a blessing, like a good husband. (It's easier to switch oncologists!)
__________________
MJO
IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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07-30-2009, 01:48 PM
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#27
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Senior Member
Join Date: Oct 2007
Posts: 1,851
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Re: 6-month checkup
Tricia,
It's hard to cope with the news of another nodule, and thankfully it's only one spot. Your oncologist seems to be right on top of everything.
It seems that you were NED for five years. If that's the case, you stand a very good chance of beating back the cancer to NED again.
Hugs,
Joan
__________________
Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2021 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!!
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