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Old 02-17-2009, 09:52 AM   #1
Believe51
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Location: RHODE ISLAND (Ed getting me a latte on 2nd Cancerversary Cruise 2008) 'BELIEVE': To accept as true or real, To have faith in, To presume ALWAYS BELIEVE
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Thumbs up

Thanks Gerri for the hope and inspiration that I need as I struggle to stay healthy. It was easy for me to gain these extra pounds being just a caregiver.....late appointments, cannot eat (Ed) until the test is over, no time to make dinner, etc. It has been trying but no pain, no gain (no pun)!!

I am proud of your accomplishments, for I know how hard it is to pick up the pieces. Keep up the wonderful work and try to reward yourself daily with little treats you enjoy which are not food related. You certainly deserve it!! Kudos Sweetheart!>>Believe51


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9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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Old 02-17-2009, 11:27 AM   #2
AlaskaAngel
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Thumbs up Pudge as a risk factor for recurrence

Gerri,

I'm delighted with both everyone's posts and your success. Weight loss for the overweight helps in so many ways. I also want to say that the exercise itself is still important in avoiding recurrence.

I am 7 years out from chemo, rads, and some tamoxifen and am NED, and I've had plenty of time to work at this, but have not been as spectacularly successful. In 7 years I have lost 15 of the 25 pounds I had gained. I read your comment, "After treatment ended I started adding more fruits and vegetables to my diet. I thought I was doing a pretty good job of eating a healthy diet but my weight kept slowly climbing." That is what it has been like for me.

Last fall 2 others from this site joined me in keeping a 2-week record of everything we ate and what exercise we did. We each were free to decide what diet to follow and what exercise to do. I want to share what I learned from that, because it was so surprising to me.

In addition, I contacted my cancer center and with the cooperation of the nutritionist there, I provided my 2-week diary to him and had a personal visit with him after the 2 weeks were up.

In that 2 weeks I stayed strictly on a healthy diet of roughly 1,000 calories a day. I also exercised every single day for 30 minutes by jumping rope. At the end I hadn't lost any weight. It was very discouraging.

The conference with the nutritionist was tough on BOTH of us. I feel sorry for the guy. Basically the advice was that I was not eating enough calories for my system to burn what little I was eating, and in my particular situation he advised me to start eating breakfast to get the burning going early in the day, to eat more carbs than I'd been eating, and to eat most of my calories for breakfast and lunch, and less at dinner time. But the kicker for me was that because of the additional 300 calories I would be eating, he said it likely would be necessary for me to exercise a full hour every day 7 days a week, instead of the 30 minutes a day of jumping rope. As much as I don't want to spend that much of my time doing exercise, I would guess he is probably right. I've made the recommended dietary changes but haven't added more exercise, and I have not lost any weight, and have gained a bit during the winter with less exercise.

As I posted in an earlier thread about dieting and menopause, the recommendation for a person who is truly menopausal and had no weight problem prior to doing treatment is to permanently reduce caloric intake by between 200 and 500 calories a day (depending on how big you are). That is a LOT of calories to permanently wipe out of your daily diet. Especially when medical providers don't explain any of this to us.

I think the diets "work" better for those who are younger and may not be entirely menopausal even if they aren't having periods, but I don't really know. I say this because I am very puzzled that your diet worked as well as it did without much exercise.

Anyway, thanks for posting about this topic, because it not only may encourage others to continue to work at it but because every little bit we do apparently does actually help in avoiding recurrence.

AlaskaAngel
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Old 02-17-2009, 11:44 AM   #3
Believe51
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AlaskaAngel, thank you for your post; very inspirational.>>Believe51
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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Old 02-17-2009, 12:41 PM   #4
Gerri
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Thanks to all of you for your input. It's great that we can come here and cheer each other on.

AlaskaAngel: Thanks so much for your insight. I agree that getting rid of excess weight is something we should all be striving to do to stay healthy. I'm as surprised as anyone by my success this time around. I do work hard at this and believe that exercise can only improve my results. Now with less weight on my joints I think I can give walking a try again. I'm sorry to hear that your noble efforts have not been rewarded. I hope I can share a few things with you.

As most everyone knows, Weight Watchers is based on a point system that factors in calories, fat and fiber content. Many people think that a point, is a point, is a point - I don't. I believe that it really matters what my points consist of, which is why I have cut many things from my diet: white rice and pasta, white bread, processed foods, sugar, etc. I always eat breakfast (always have), I stopped drinking coffee with creamer (albeit non-fat) and substituted it with green tea - I love it! I am now watching my salt intake as I notice that too much makes me retain water. I get most of my carbs from fruit and whole wheat products and make sure I eat a decent amount of protein each day - these are what WW considers "filling foods". I try not to eat empty calories, but everything that goes into my mouth is put on my food diary and gets counted - every little bite really does make a difference. It takes a little work to keep track of everything, but I think it has made all the difference in the world with my weight loss. I am setting small goals for myself and that helps me to stay focused. Also, attending the weekly meetings helps too. Just the fact that I am accountable to weigh in weekly keeps me on track.

If I have inspired some of you to give weight loss another try I am thrilled. That is what this board is all about: To support, to inspire and to get through the bumps along the way together.

My love to all.
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Gerri
Dx: 11/23/05, Lumpectomy 12/12/05
Tumor 2.2 cm, Stage II, Grade 3, Sentinel Node biopsy negative
ER+ (30%) /PR+ (50%), HER2+++
AC X 4 dose dense, Taxol X 4 dose dense
Herceptin started with 2nd Taxol, given weekly until chemo done
then given every 3 weeks for one year ending on March 16, 2007
Radiation 30 treatments
Tamoxifen - 2 yrs (pre-menopausal)
May 2008 - Feb 2012 Femara
Aug 2008 - Feb 2012 Zometa every 6 months
March 2012 - Stop Femara, now Evista for bone strengthening
**********
Enjoy the little things, for one day you may look
back and realize they were the big things.
- Robert Brault
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