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12-24-2008, 10:13 PM
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#1
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Senior Member
Join Date: Oct 2007
Posts: 57
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Happy Holidays and update
To all my her2 friends,
I am grateful for all the kind support and knowledge that we share. Banding together gives us more strength, knowledge, and spirit to fight!
I want to thank Christine and Joe for setting up and maintaining this wonderful site. This site changes lives and probably save some too. I have been going through a very rocky road now. I stopped Gemzar with did not control my illness and just gave me a lot of toxicity. I just started Herceptin/Taxatere/Carboplatin. But this site gave me and help with these tough decisions and the encouragement to go forward with the fight! Wishing you all happy holidays and joy in the new year! Lida
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12-25-2008, 06:49 AM
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#2
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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Happy Holidays, Lida!
You are brave and outstanding to keep up the tough battle. I look forward to hearing about the demise of those mean ol BC cells from the Herceptin, Taxotere, Carboplatin!!! Best wishes, ma
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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12-25-2008, 09:46 PM
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#3
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Senior Member
Join Date: Feb 2007
Location: Cordoba, Mexico
Posts: 672
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Best wishes Lida, and keep up the fight. Keep us posted, I will be praying for you.
Paty
__________________
Dx. June 30th, 2006 at age 43
Lumpectomy rt breast
2.2 cm tumor, 13 nodes all negative
ER-PR+,her2+++
6 FAC
32 Rads
Dx. Lung fibrosis due to radiation
Ended 1 year herceptin in March, 2008
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12-26-2008, 10:39 AM
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#4
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 2,999
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Together we stand>>Believe51
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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12-31-2008, 08:16 PM
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#5
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Senior Member
Join Date: Dec 2008
Location: Merritt Island, FL
Posts: 53
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I am so grateful for this website and also breastcancer.org. My doctor has me scared to death and I feel better knowing that there are people out there that have survived and are doing quite well.
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01-02-2009, 05:46 PM
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#6
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Senior Member
Join Date: Dec 2005
Location: indianapolis, indiana
Posts: 1,544
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my first onc was the same way and i wish i'd known about this site at the time. i'm through treatments and looking at being a long term survivor now but these people have still been life savers to me!
__________________
dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
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01-02-2009, 06:31 PM
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#7
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Senior Member
Join Date: Jun 2006
Location: san luis obispo, ca
Posts: 1,150
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Lida, Im so sorry to hear about the Gemzar, but so hopeful that your new treatment does the trick. I will let you know about the dose of Doxil as soon as my Onc gets back to town (2 more weeks). Hang in there, take a deep breath and feel the love that surrounds you every second you're here. We love you, Vickie
__________________
Love and Hugs, Vickie
Life's not about waiting for the storm to pass,
It's about learning to dance in the rain.
Feb 04 IBC IIIC/IV er-/pr- her2+++
3/04 TCH X4
7/ 04 MRM 9/04 Taxol/herceptin wkly 1 yr 33X rads
11/04 skin mets 33x rads,10/05 Avast/Herc. 11 mos.
8/ 06 PET mets lymphs, neck
9/ 06 Navelbine/herceptin
11/ 06 PET NED
2/ 07 skin mets, 4/07 Xeloda, 5/07 add Tykerb
2/ 08 Tykerb failed. Doxil /Herceptin 6 months
8/08 PET skin mets, 8/08 Abraxane/Avastin
11/ 08 PET prog., skin mets
1/09 PET/CT progress, 1/09 Ixempra, 2/09 add Xeloda and low dose Naltrexone
2/09 off Ixempra/Xeloda
3/09 navelbine/herc/cytoxin 4/09 PET shows regress.7/09 start Topotecan. Failed.
8/09 extensive mets rgt brst, back and torso. starting Pazopanib clinical trial.
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