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Old 06-10-2008, 11:57 PM   #1
Joanne S
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Cancer just isn't fair.
Oh my, so sad - we will miss you sister Lolly


To Lolly's family,

May it be of some comfort to you that she is not hurting anymore and that she is at peace. May the memories you shared together provide you with solace and remain in your hearts forever.

With heartfelt sympathy,
Joanne S
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Old 06-11-2008, 12:07 AM   #2
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Hello all. This is her son Bo. It's so hard to write this as she just passed this morning but upon clicking her shortcut and seeing just exactly how active she really was on this forum, how many supporters she had, and finding out just how much this forum and all the people on it meant to her I just want to thank you all for everything you've done to help her.

Her activity on this site I always considered somewhat of a private thing so I never asked for many details about the things she discussed with others. It made me feel good enough just come home and find her time and time again on the computer just a tapping away. Running off to the bedroom with a smile "I'm going to go post to my HER2 sisters!", she just enjoyed it so much. When she started to get weak, I asked her if she wanted me to post anything to her sisters here but she said she rather would wait until she had more energy. Knowing her, I imagine she just didn't want to alarm anyone.

During this time, my father pretty much abandoned his office and continued to work from home. He kept her fed with whatever she wanted, kept her hydrated, maintained her oxygen pump, her morphine drip and her bandaging. When he wasn't doing any of these things they were in the living room talking and reliving old times. My sister and I chipped in when needed and I kept up the kisses on her forehead. Those were her favorite.

I'm still uneasy about going through and reading her posts, but the few I have read talk about how much of a presence she was on this site, how much support she has given to others, how brave she was, how strong... Regardless of the Kleenex it calls for it's nothing new to me. The ladies at the cancer center all claim that she was the exact same way while getting her treatments. Here she is in the same situation as all the others that had to be there, yet always trying to help any patient she could with support, a good sturdy shoulder and whatever information she could provide in attempts to ease their worries. It was said that the employees who also provided support always felt better themselves when mom left.

Growing up with a mother like that you just never think this day is going to come. It did, but I'm OK for I have a lifetime of memories, lessons and smiles from a mother that, even into her last day, would always crack the biggest grin every time she would look up and focus on my eyes. Towards the end I was able to share great words with truly one of the greatest persons you could ever hope to have as a mother and friend.

Again, I thank you all for the support. She certainly had a willpower beyond imagination but the friends she made here helped to greatly lessen the load she seemingly never had any fear of carrying.

Here is a photo that was taken by my father while at the very campsite she used to visit with her family as a child. Sly Park in California. May she get the rest she deserves.

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Old 06-11-2008, 03:19 AM   #3
hermiracles
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OMG. Dear sweet Lolly. This is so heartbreaking.
Bo - what a wonderful heartfelt tribute to your mum and Dad. Thank you so much for sharing with us. Your mum was dearly loved.

Sweet Lolly ~ rest in peace sister.
Hermiracles.
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2003 L/DCIS –> LWE: High G./Comedo - 6 nodes clear 6 wks Rx
04/07 2 miracles born ~ very grateful
06/07 Susp areas L/b
09/07 Stage 2 bilat. mastectomy R/ b. clear extens DCIS/IDC Paget’s 8 nodes clear ER(<5%) HER2+++ CT clear
11/07 Portacath - FEC
15/11/07 Stage 4 Emerg op - hip replacemt #NOF bone mets H/Taxotere
12/07 Rx to 'spots' on spine/R/hip/femur 3wkly H
2008 H+T mets to rib/sternum? Aredia CT clear! Cont. H + Aredia 07/08 1 wk Palliative Care - mets to lungs + ?1 to brain
09/08 Stop H complete Epirubicin 1wk PC new brain mets
10/08 2wks WBR 1wk PC 22/10/08 Tykerb/Xeloda 12/08 6 CEREBRAL METS COMPLETELY GONE! Rib mets down to <1cm.
01/09 Tumour markers normal! Rx to L/arm
03/09 LUNGS CLEAR (ALL NODULES GONE!), brain clear, liver clear. Bones stable! ~ THANK YOU GOD
07/09 Repeat CT Scan ~ ALL organs clear apart from bones which remain stable. I walk in gratitude.
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Old 06-11-2008, 11:38 AM   #4
pattyz
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Dear Bo,

Thank you SO MUCH for sharing these precious private memories with us...

May all memories of your mom give you comfort, now and always...

With deepest condolences and heartfelt sorrow,
pattyz
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Old 06-11-2008, 11:57 AM   #5
caya
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Thanks Bo

for posting your personal insights about your dear mother for us.

She will truly be missed.

all the best
caya
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Old 06-12-2008, 02:07 AM   #6
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Hey everyone, it's Bo.

This thread just keeps growing and growing, and to think I never knew her presence on such a helping and heartfelt forum went this deep... What an absolute treasure to find. I thank you all so much for this.

People talk about how much her postings of support meant to them, the effect she was able to have on your lives with a few choice words expressed at the right time by a person whose experiences everyone knew were such a huge part of her life... I walk around the house and see her little trinkets in every corner knowing that she usually didn't put things on display like that unless they had a great personal meaning. I realize now that she did both of these things knowing that she didn't have to be there in person during every following moment for you to feel and experience the positive intentions she hoped would be born out by the initial acts of her kind and supporting expression. It's so hard to see all the little hints she left around but how could I ever ask for anything more to remember? We all meant so much to her and it seems like every little thing she left around has something inside thanking us for it. How could you ask for anything more than a blessing who just wanted everyone around her to be blessed themselves?
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Old 06-12-2008, 02:38 PM   #7
Christine MH-UK
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Lolly was such as sweet person. My thoughts and prayers are with her family.
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Old 06-18-2008, 08:09 AM   #8
vickie h
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We''ll Miss Lolly

I just found out about Lolly. There are no words to describe the loss I feel. She was here from day one for me and all on this site. I had no idea she was so sick. I wish her family love and healing and prayers. Thank you, God, for sharing Lolly with all of us....Vickie
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Feb 04 IBC IIIC/IV er-/pr- her2+++
3/04 TCH X4
7/ 04 MRM 9/04 Taxol/herceptin wkly 1 yr 33X rads
11/04 skin mets 33x rads,10/05 Avast/Herc. 11 mos.
8/ 06 PET mets lymphs, neck
9/ 06 Navelbine/herceptin
11/ 06 PET NED
2/ 07 skin mets, 4/07 Xeloda, 5/07 add Tykerb
2/ 08 Tykerb failed. Doxil /Herceptin 6 months
8/08 PET skin mets, 8/08 Abraxane/Avastin
11/ 08 PET prog., skin mets
1/09 PET/CT progress, 1/09 Ixempra, 2/09 add Xeloda and low dose Naltrexone
2/09 off Ixempra/Xeloda
3/09 navelbine/herc/cytoxin 4/09 PET shows regress.7/09 start Topotecan. Failed.
8/09 extensive mets rgt brst, back and torso. starting Pazopanib clinical trial.
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