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Old 05-19-2008, 04:25 PM   #1
Joe
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Prepare for the Deluge
The Annual ASCO Meeting will take place in 11 days. Christine and I will be unable to attend due to an important prior commitment, but the HER2 Support Group will be represented by Vernal Branch, from our board of directors, Donna D and her husband Loren. Also representing us will be Ms. Gaynelle Rudis of the Virginia Breast Cancer Foundation.

We expect there will be a flood of news releases, mostly positive:

http://money.cnn.com//news/newsfeeds...5_FORTUNE5.htm

Regards
Joe
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Old 05-19-2008, 06:08 PM   #2
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More:

http://www.gene.com/gene/news/press-...etail&id=11287


Regards "Love and Light"
Joe
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Old 05-20-2008, 04:51 AM   #3
IRENE FROM TAMPA
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Smile Joe I have a question
Hi Joe

I am going to see my onc today after having a PET scan on Friday. I have had 3 cycles of Ixempra/Xeloda but I have a feeling that it is not working.

My onc office is offering the Herceptin/DM1 trial but I was excluded due to taking "a little too much Adria" back in 1996.

I was wondering if you knew if there was a way to get compassionate use in this trial? I will, of course, discuss today but I know you are so on top with your information or who to ask.

I would appreciate any info you can pass over to me.

Thanks Joe and you and Christine have a great day
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Irene from Tampa
1996 - INFILT DUCTAL CAR.W/ LYMPH NODE INVOLVEMENT. ADRIA/CYTOXIN/5FU
1999 - RECURR. TO AUXILA AND 2 TUMORS IN LIVER
TREAT: STEM CELL REPLACEMENT/HERCEPTIN.
2002 - RECUR TO LIVER
TREAT: NAVELBINE, THEN GEMZAR, THEN XELODA.
2004 - TUMORS STILL IN LIVER
TREAT: RFA TO LIVER
STABLE UNTIL
2004 - TUMOR PROGRESSION IN LIVER.
TREAT: RESECT HALF OF LIVER.
2005 - RECURR TO LYMPH NODE OUTSIDE OF LIVER.
TREAT: TAXOL/CARPO/HERCEPTIN. FAILED ON
THIS TRIO. STARTED ON ABRAXANE.
2006 - PROGRESS WITH 2ND TUMOR GROWTH.
TREAT: AUG. BEGAN ON TYKERB/XELODA
TRIAL. CONSIDERED STABLE TO DATE.
2007 - TAKEN OFF OF TYKERB/XELODA TRIAL DUE TO
PROGRESS STARTING TYKERB/AVASTIN.
NOV 2007 - SCANS SHOW PROGRESS TUMOR GROWTH
IN ABDOM. AND TWO NEW TUMORS IN NECK AREA.
BEGAN HERCEPTIN/AVASTIN/TAXOTERE
Feb 08 - Ixempra/Xeloda
June 08 - Her/DM1 trial

"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY."
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Old 05-20-2008, 05:58 AM   #4
Verna
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Irene, you need this study! Call me or email me and I will get with my study nurse and see if she can give some sort of help. They are looking for more people. I had to jump through several hoops before I got approved for the study.
It was a pain, but worth it.
Hugs-Verna
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stage IV, diagnosed Nov.11,2005
mets to spine,hips,pelvic,femur
4 a/c
mastectomy Feb.14,2006
4 taxol
mets to liver
5 weeks radiation
Herceptin/Zometa
reconstruction Feb.14,2007 (DEIP)
Tykerb/Xeloda
TDM1 study
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