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Old 02-27-2008, 05:40 PM   #1
Heide
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Join Date: Jul 2007
Location: New Hampshire
Posts: 11
Thinking of you

I read your post tonight Tonya and I really feel for you about your children. I have a 6 year old and 10 year old. Like you I worry about my older one and how he handles all the road bumps in my treatment. I can handle all the infusions, pokes, prods, tests, scans, injections etc.. but the guilt I have about burdening my children about my disease is the hardest. It's not fair that their mom has b/c and it stinks. I know life isn't fair but I wish their childhood didn't have to be affected by mom's constant appts. Please take care Tonya and I will be thinking of you often.
__________________
DX at age 37 on 5/24/05 Left breast IDC and DCIS, high-grade
modified radical skin-sparing mastectomy 7/11/05 with re-con TRAM flap.
tumor size 3.5 cm
HER2 To CEP-17 Ratio = 6.76 positive ER positive
A & C infusions Aug. - Oct. 2005
Taxol & Herceptin infusions Oct. - Dec. 2005
6 weeks radiation completed March 2006
Continued on Herceptin every 3 weeks until 10/24/06
re-occurence left side supraclavicular nodes Jan. 2007
HKI-272 phase 2 Trial Jan. - July 2007 (supra nodes shrunk for awhile)
Enlarged node in chest wall near windpipe.
started Tykerb/Xeloda 8/22/07 (on for 2 months - not working - 3 new liver mets).
11/07 Neupogen(G-CSF)/Herceptin/Navelbine Trial 11/07
2/8/08 Catscan shows 1 of 3 liver mets went from 9 to 24mm.
2/29/08 Phase II trial of Ertumaxomab.
4/10/08 Catscan shows progression on liver mets and 2 new liver mets.
4/11/08 Started Taxotere/Herceptin.
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Old 02-27-2008, 07:21 PM   #2
Carol Carlson
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Join Date: Sep 2005
Posts: 77
Tonya,
Children are so amazing in a time of crisis. They are a lot stronger than we give them credit for.
Re: the Taxols
They surely do knock you for a loop but everytime you feel like you're being beat up, just say, " this stuff is doing it's job" and that's something else you can tell your children. That this is tough stuff but it's going to rid you of this disease.
Take care and God bless..
Carol C.
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Old 02-27-2008, 07:50 PM   #3
caya
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Join Date: Jan 2007
Location: Thornhill, Ontario Canada
Posts: 2,320
Dear Tonya,

You just let it all out here kiddo, we are hear to listen to and support each other. It really is the pits our families have to take it all, especially the children. I know when I was first diagnosed I was frantic how the news would affect my daughters, 17 and 20 at the time.

I am praying that the Taxotere will knock our your skin mets - I had 3 rounds of Taxotere, and I was exhausted from it, as well as having other not pleasant s/es. But I just kept reminding myself that it must be kicking the cancer to the curb as well.

I am praying for you and your family.

all the best
caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08

Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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