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Keeping Your Mind Off of BC Fun things and posts that do not apply to BC

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Old 01-26-2008, 10:37 AM   #1
Andrea Barnett Budin
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Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW...
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Wink I Have Hosted Tiptoe... #1 On The List After The Pink One

Hi Steph,

FOR THE RECORD -- Tiptoe was here in Boca from 10/9 - 10/16, at which time I sent her to Marie. I sent Tip PRIORITY MAIL, of course, w/a tracking # -- I was so worried about her traveling midst all the mail from Fla to R. I. She was received by Believe in East Warwick 10/18.

I wanted to check my old posts in this special category THINGS TO THINK ABOUT OTHER THAN BC -- but I cannot locate any posts or pics prior to 10/16ish!! Am I doing something wrong? Or have they been deleted? ANYONE KNOW? I thought it was all recorded for posterity. We have over 3,000 hits. This was a really popular thread -- full of humor and joy and much inspiration and comradery. I'm just saying...

Thanks so much for acting as Tipsy & Tex's travel agent, Steph. They need one! And a wardrobe assistant, apparently. Yikes. I gave Tippy a pink bc bracelet which she wore as a necklace, with a HOPE charm dangling from it. I put in a SUNDISK USB thingy along w/her belongings that came to me from Pinkie -- blue stud earrings, pink hair extension, the Journal and the passport and some teeny-sized miscellaneous items (ie about 8 peanuts, sample sunscreen etc.). The USB is for when the Journal is filled, for pp/hosts to keep the details of our critters' adventures, including pics of course...

I forgot to pack the pink pen the Pink One provided. I am looking at it as I type. I have not used it. Maybe I had it out to sign the passport -- which I did not do! I think. Truthfully, I wasn't aware I was supposed to touch the passport Pink made, other than to repack it when Tipsy was ready to go. It looked so official. I didn't want to make her become an illegal alien.... lol COULD SOMEONE PLEASE SIGN THE PASSPORT FOR ME? I guess I messed up.

If Tip could write I know she'd send thank you notes to all her wonderful hosts for their generosity of Spirit and their lovely gifts. I know she feels the love. And she returns same to each of us tenfold, along w/heaps of healing energy! And hugs!!
Andi

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Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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Old 01-26-2008, 11:00 AM   #2
PinkGirl
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Location: Canada
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Smile missing Tiptoe

Hi Andi
I found the thread you are referring to - the one
with the 3000+ hits. It is still in the Her2Support
section. When Joe started the new board, he
didn't move that post over. She's still there with
all of her photos...... If you enter "Tiptoe" into the
search all threads, it will show up on page 2.
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Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++

Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09



" I yam what I yam." - Popeye

My Photo Album
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Old 01-27-2008, 09:02 AM   #3
Becky
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She arrived at my house on October 29 and I sent her off to Faux on November 5.
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Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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