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Old 01-21-2008, 03:12 PM   #1
Ceesun
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Unhappy It was hard to do...but

Hello Everyone and a Very Happy New Year to a terrific group of people. It was hard to do, but last week I informed my principal at school that I will continue to be off on sick time this coming 2nd semester. It was even more difficult as I ran into a few students and parents over the Christmas break who asked when I would be back...oh well...My principal, after about 8 seconds of silence on the phone, was and has been very understanding. It was hard to walk away from teaching, but as I have realized, I cannot keep up the home life, patient life, and work life. I have done both (or all) the last 3 years, but enough is enough. I feel pretty good about it, but a few "that a girls" may be needed xo Ceesun
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Old 01-21-2008, 03:26 PM   #2
PinkGirl
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Atta Girl Ceese - wise move.
You will now have time for you and all the things you've
wanted to do but never had the time for.

I'm sure you will be very happy with your
decision once it sinks in. I'm happy for you.


Attachment 273
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Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++

Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09



" I yam what I yam." - Popeye

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Last edited by PinkGirl; 03-29-2008 at 07:31 AM..
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Old 01-21-2008, 03:47 PM   #3
Jackie07
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"That a girl!" I envy you. You must have been a wonderful teacher. My principal just wrote me up over something. I am not even sure I will have my contract renewed next year. And I desperately need the renewal as I am still doing my internship. I entered the teacher training program while I was doing radiation after my first bc surgery and chemo. Then I substituted for a year before I got on an autism program. Next year I was in a life skills class. Both schools were located in another town 40-minutes away. This year I got a job in a shool 10 minutes away to be an inclusion teacher. And I had my second bc surgery and chemo just before school started. My husband hasn't been working since he had 2 stents put in his heart several years ago. He's been babysitting my Father-in-law who's had broken hips and visiting my Mother-in-law who's in the nursing home because of Alzheimer's.

I would have walked away if I could afford to. I had to quit the treatment of Herceptin at the beginning of December because of the MUGA result (51). But there seemed to be some rebound symptoms - dry blood in the nose and chapped lips. The oncologist scheduled another MUGA on Valentine's Day after I pressed for continuing the treatment.

So please enjoy your medical leave - as some of us do not have the luxury to walk away.
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http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
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Irrtbl bowel 1'09
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Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

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Old 01-21-2008, 04:23 PM   #4
Mary Jo
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Good for you Ceesun!!!! You thought about what was best for you and you did it. That a girl!!! I think we women especially, find it hard to think of ourselves first sometimes BUT we have to take care of us FIRST so we can be of service to others.

I'm proud of you for doing what you knew you had to do...........................

Mary Jo
Romans 8:28
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Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

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Old 01-21-2008, 05:22 PM   #5
jaybt
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Atta girl Ceesun! You've made a brave choice when it felt right for you. Sometimes the people we work with also support us emotionally too and that's hard to let go, so it's not always a simple and easy thing to do. However, I have been on sick leave and various other leave for a while now and it took me a while to recognise that its not only the body which needs recovery but the inner spirit as well. Enjoy your time out!
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Old 01-21-2008, 05:33 PM   #6
chrisy
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ATTA GIRL, CEESUN

Both for giving it your all for the past 3 1/2 years, and for realizing that you could no longer do it all. And one GIANT atta girl for knowing which piece you had to let go. I know this was a hard decision for you - we identify ourselves so much with our work and it must be particularly so with teaching.

When I was at Miraval, we did an activity called "Equine experience" which I could write a whole post on, but my point is mentioning it here is that the facilitator Wyatt was talking about an annual weekend they have for cancer survivors and how the breast cancer survivors really have clarity about what is important. You are giving us all another example of this.

Good luck, and much love to you
Chris
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Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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Old 01-21-2008, 06:36 PM   #7
dhealey
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Ceesun, Way to go girl! You have made the best decision for you. I envy you. I have been trying the last l4 month to figure out who to walk away from my nursing job. To many changes and stress where I work and I fear the stress is going to get me. If I can just figure out another way to make money! I wish you the best of luck and improved health.
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Debbie in North Carolina
Diag 10/2006-high grade invasive ductal carcinoma- mastectomy L breast
2.5 cm tumor ER/PR pos-Her2+++
4 rounds A/C, 4 rounds Taxol
Herceptin every 3 weeks until Jan. 2008
6/18/07 prophylatic mastectomy R breast
8/2007 started aromasin/stopped arimidex (side effects)
12/07 stopped aromasin due to side effects (now what?)
Finished herceptin 1/8/08
started tamoxifen for 2 years then will switch to femera
allergic to tamoxifen started femera 4/2008
June 20, 2008 portacath removed
Learnig to live life to the fullest!
Stopped Femera due to side effects
July 28, 2008 start trial for breast cancer vaccine
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Old 01-21-2008, 06:43 PM   #8
Sheila
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Ceesun
Sometimes the choice is so hard, especially when its something you love, like teaching. I gave up my nursing career 4 years ago, it was very hard, but it was something I had to do for my own health....I wonder where the time goes, or how I actually had the time for a career....oh I miss the money....it was alot, a whole lot, but my life is more important than anything that money would have bought! Look forward to enjoying everything you never had time for!
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is fighting some kind of battle."



Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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Old 01-21-2008, 06:44 PM   #9
Faith in Him
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Good for you. I know it was a hard decision. Enjoy some well deserved time off to do what you want to do. I was a preschool teacher before my dx. I sure do miss the kids but I feel I can take better care of myself being at home.

I hope you find some fun ways to fill your days real soon.

Hugs
Tonya
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DX 02/01/07
2.5 cm, Er/Pr-, Her2+++
18/20 Nodes
03/07 CT & Bone scan - Clear
AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
09/08 - Hyperthermia rads
03/09 - Tykerb/Xeloda
05/10 - Tram flap to fix wound
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Old 01-21-2008, 07:26 PM   #10
Joan M
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Ceesun,

I'm sure you thought long and hard about your decision. Enjoy your time off!

Joan
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Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2021 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!!
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Old 01-22-2008, 02:10 PM   #11
Barbara2
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I, too, quit teaching after the cancer diagnosis. Maybe age is a factor that partly figures in to whether or not you can continue to work. I was 52 years old at the time, and had full intentions of going back. But little by little it became obvious that returning to work would not be in my best interest.

I loved teaching, but I know it stressed me out a lot, and I had additional stressors from my domineering/dependant mother who lives in the same town as I. So when cancer came along with the knock-out punch of chemo (!), I came to realize that, although much of my heart was in that school building, I should not return to work.

I have been an anxious person all my life and never slept well...maybe 3,4 or 5 hours a night, at best, especially during the school year. But since the arrival of cancer, I sleep much more. For the first year and a half I could thank Ativan for a good night's sleep, but I'm still sleeping 6-8 hours a night, for which I'm grateful.

If I was teaching again, I KNOW I would be back to not sleeping well because of how I handle the stresses of work, which definately is not in the best interest of cancer patients. I am never bored. There's always something that needs to be done, whether it be work or pleasure. I'm so very thankful that staying at home was an option.

So I'll chime in with the others! Good for you! You made a good choice...
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Blessings and Peace,
Barbara

DX Oct 02 @ age 52 Stage 2B Grade 3 Mastectomy
"at least" 4.5 cm IDC 1+node ER+61% /PR-
Assiciated Intraductual component with Comedo Necrosis
Her2+ FISH8.6 IHC 2+
5 1/2 CEF Arimidex
Celebrex 400mg daily for 13 months
Prophylactic mastectomy
Estradiol #: 13
PTEN positive, "late" Herceptin (26 months after chemo)
Oct 05: Actonel for osteopenia from Arimidex.
May 08: Replaced Actonel with Zometa . Taking every 6
months.

Accepting the gift of life, I give thanks for it and live it in fullness.
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Old 01-22-2008, 02:13 PM   #12
tousled1
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Atta Girl Ceesun! I don't know how you managed to keep up with all those things for so long. Time now to take the time just for yourself.
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Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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Old 01-22-2008, 05:47 PM   #13
Lolly
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Ceesun, you deserve a BIG HUG along with all the Atta Girl's~I know how hard that decision can be. Good for you to do what's best for you.

<3 Lolly
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Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.

Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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