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Old 10-30-2007, 08:35 AM   #1
Mary Jo
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A bit anxious...........

Hello her2 friends,

Yesterday I went in to see my GI doc to discuss the results of my colonoscopy. I will have a follow up, flex. sig., in January to make sure there is no residual tissue left over from the pre-cancerous lesion that was removed but started to bleed. Anyway, while her and I were talking I told her I was way more anxious over the results of my abdominal CT scan and was thankful that all was normal. She went back in to read the results and said "yes, they said it is well within the normal limits and there were no significant findings." "They did find a cyst in your liver though, but say it is only a cyst." Hmmmmmmmmmm! Now that scared me a tad. I had a PET/CT scan almost one year ago and a cyst in my liver was never mentioned.

I did put a call in to my oncology nurse and oncologist this morning to question this and to make sure that they can be that certain that it is only a cyst.

Geez!!! Just when I think I can "rest" something pops up. Oh well. I guess I should concentrate on the fact that they said it was a cyst and not a suspicious area or cancer. I will try.

Love to all,

Mary Jo
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"Be still and know that I am God." Psalm 46:10

Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
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Old 10-30-2007, 09:02 AM   #2
Mary Anne in TX
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Oh, yes, Mary Jo, do focus on the good news! They'll chase you down if they find some questionable stuff to brood over! Give yourself that well deserved break from worry and have some fun. ma
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Grateful for each and every day....

Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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Old 10-30-2007, 09:26 AM   #3
Faith in Him
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Hi Mary Jo:

I have a cyst on my liver too. They can tell it is fuild filled and not a mass. My report read: cyst not a lession. I have read on other sites and found that liver cysts are very common.

But, I know how you feel. Very thing can be scary in our world. Praying that you are feeling better about this and can enjoy the rest of your day.

Hugs
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DX 02/01/07
2.5 cm, Er/Pr-, Her2+++
18/20 Nodes
03/07 CT & Bone scan - Clear
AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
09/08 - Hyperthermia rads
03/09 - Tykerb/Xeloda
05/10 - Tram flap to fix wound
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Old 10-30-2007, 10:03 AM   #4
Marlys
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Marejo,
This is what I have been dealing with since before BC. I have been assured by all my doctors that there is no reason for concern and because I don't know any better I am taking their word for it. I can really relate to your concern though. I have Chron's Disease and had to have a large portion of my colon removed in May.. I am currently having persistent cramping and am miserable but I can't seem to get anyone to care. If it sounds like I am whining, I am. However, I haven't heard of anyone dying of abdominal cramps per se so I will learn to live with it. I do know what to look for in terms of the serious stuff as I am retired operating room nurse so I do feel comfortable with what is going on although I may not like it.
Here is what my abdominal CT scan have said re liver lesions.
Love & Hugs
Marlys
5/25/2004
Scattered small low-attenuation lesions are seen throughout the liver. The largest lesion within the left hepatic lobe is compatible with a simple cyst. There is no evidence for intra- or extrahepatic biliary ductal dilatation. The spleen, pancreas and adrenal glands are normal. Multiple small bilateral renal low-attenuation lesions are identified, too small to fully characterize by CT criteria.
ffice:office" /><O:p></O:p>
2/7/07
Multiple low-density lesions in the liver which are compatible with cysts. Several have slightly increased in size compared with prior study. Largest lesion is compatible with a simple cyst measuring 3.1 x 2.1 cm in the lateral segment left lobe of the liver. This compares to 2.5 x 2.1 cm previously.
<O:p></O:p>
5/21/07
LIVER: Stable 3.2-cm oval lobular cyst in the lateral segment, left lobe. Numerous additional subcentimeter low-density lesions throughout the liver are unchanged and too small to characterize, but probably represent cysts.
<O:p></O:p>
7/10/07
LIVER: Multifocal low-attenuation liver lesions, the largest of which has a polylobulated 3.0 x 2.4-cm cyst in the lateral segment, left lobe of the liver. No new focal liver lesions are seen.
<O:p></O:p>
7/13/07
LIVER: Again seen is a 2.4 x 3.0-cm low-attenuation lesion in the left hepatic lobe compatible with a cyst. There are numerous other low-attenuation lesions scattered throughout both the right and left hepatic lobes ranging in size from 2-6 mm in size. All of these additional lesions are too small to characterize. They are not significantly changed in the short interval.
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Old 10-30-2007, 10:49 AM   #5
hutchibk
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Marejo - I have something on my liver that on PET/CT looks like a cyst... but is a hemangioma (a little cluster of blood vessels) or as my onc calls it, a birthmark on my liver. Don't stress too much over it! But do stay vigilant and ask them to follow up...
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Brenda

NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)

Nov'03~ dX stage 2B
Dec'03~
Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~
Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~
micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~
micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg

Apr'07~
MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~
Started Tykerb/Xeloda, no WBR for now
June'07~
MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~
MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~
PET/CT & MRI show NED
Apr'08~
scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~
MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~
dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~
Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~
new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~
new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~
25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.

"I would rather be anecdotally alive than statistically dead."
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Old 10-30-2007, 12:50 PM   #6
Sheila
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Marejo
Like so many have said, this is normal for many people to have a cyst or2...they just dont ever know it, because unlike us, they don't get scanned every time they turn around....you are asymtomatic....try not to worry...you'll get gray hair and look like me.....oh, I forgot, I used to have gray hair when I had hair!
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Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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Old 10-30-2007, 12:55 PM   #7
lexigirl
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Marejo,

It sounds like cysts on our livers' isn't uncommon. I hope that you won't worry too much. They will keep a good check on you!

Hugs,
lexi
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Old 10-30-2007, 04:28 PM   #8
Mgarr
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Count me in on the liver cyst. I had one noted on my first scan after diagnosis and was assured it was just a "cyst." Best Wishes.

Mary
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Diagnosed 11/04 @39yrs. young
Stage IIB
2.5 cm, ER/PR- Her+++, grade 3
Partial Mast., 1/3 pos. node
1/05 full node dissection
4 A/C 4 Taxol DD, Herceptin 1 yr.
30X rads.
BRCA Negative
NED

Hope is the thing with feathers
That perches in the soul,
And sings the tune without the words,
And never stops at all -Emily Dickinson

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Old 10-30-2007, 04:56 PM   #9
tousled1
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MareJo,

Try not to worry about the cyst as that is undoubtedly exactly what it is. Just remain vigilant in keeping an eye on it.
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Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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Old 10-30-2007, 05:01 PM   #10
Mary Jo
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Thank you

Thank you everyone. Once again I've learned something. I didn't realize people got cysts in their livers. I mean, how it the world would I know that anyway. I know it now though. Haha!

I did speak to my oncology nurse today who assured me that the radiologists who read these scans are very good. In her words "if they say it's a cyst....it's a cyst." I will put it behind me now and forget it's their.

Once again though............................thanks for giving me an outlet to express my concerns and for you all coming forward and sharing what you know. It's such a blessing and a comfort.

Love,

Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10

Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
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Old 10-30-2007, 08:29 PM   #11
caya
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Mary Jo,

Many years ago while undergoing a routine pelvic and transvaginal U/S they found a cyst on my gallbladder. I had no symptoms, nothing.

So they just watch it - it's about 8 years now. Nothing unusual.

all the best
caya
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ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08

Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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