| Keeping Your Mind Off of BC Fun things and posts that do not apply to BC |
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10-10-2007, 04:15 PM
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#1
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Senior Member
Join Date: May 2006
Location: northshore suburb of chicago
Posts: 1,093
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Let me add my thanks to the many already given. I can't stop talking about both of you to everyone. It takes a special person or people to be this vested in helping others. Both of you truly are amazing. Thank you for all you do and have done for so many and for keeping her2 awareness a priority along with other bc.
With much admiration and respect,
Rina
__________________
~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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10-10-2007, 04:27 PM
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#2
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Senior Member
Join Date: Jan 2007
Posts: 368
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I really am glad there's someone out there speaking up for us. Kudos to Joe and Christine for a job well done.
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10-10-2007, 04:27 PM
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#3
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Senior Member
Join Date: Sep 2006
Location: Houston, Texas
Posts: 624
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Magnificant news! When is the luncheon in San Antonio?
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10-10-2007, 04:46 PM
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#4
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Senior Member
Join Date: Sep 2005
Location: Newton, MA
Posts: 951
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Thanks
This is certainly great news. My daughter is trying to donate to this website through her work and hopes they will accept it. It would be great if we could organize a get together somewhere near Boston in the northeast. Since I teach and have to have weekly treatments it is difficult for me to get away. Nevertheless, I would love to go to one of those meetings.
Barbara H.
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10-10-2007, 07:15 PM
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#5
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Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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can't say it enough
Thanks for all you do Christine and Joe!
__________________
Rhonda (Sassy)
dx age 45
DX 2/15/05 Stage IIb (at surgery)restaged IIIa
Left mast .9cm tumor 5 of 14 nodes
Triple Positive
4 DD A/C
12 Taxol/Herceptin
33Rads
Strange infect mast site one year aft surg, hosp 1 wk
Herceptin for total of 18 months
Lupron Monthly 4 yrs
Neurontin for aches, pains and hot flashes(It works!)
Ovaries removed 11/09 stop Lupron and Neurontin
Arimidex 6 yrs (tried Femara, no SE improvement)
Tried Exemestane-hips got so bad could hardly walk
Back to Arimidex for year seven
Zometa 2X Annual for 7years, Lasix
Stop Arimidex 5/13
Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa
5/14 Start Tamoxifen
3/15 Stem cell transplant to stimulate femur bone growth/healing
5/15 Complete fracture of right femur/Titanium rods both femurs
9/16 Start Evista stopTamoxifen
3/17 Stop Evista--unwelcome side effects!
NED and no meds.......
14 YEARS NED!
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10-10-2007, 07:39 PM
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#6
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Senior Member
Join Date: Sep 2005
Location: Riverside, CA
Posts: 484
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Wow is right! How awesome that your presence made such an impact at those meetings.
Thanks for speaking up on our behalf.
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10-10-2007, 08:35 PM
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#7
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Senior Member
Join Date: Sep 2005
Location: South Dakota.
Posts: 621
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Thanks from me, too, for all you do. You have been a blessing to so many.
__________________
Blessings and Peace,
Barbara
DX Oct 02 @ age 52 Stage 2B Grade 3 Mastectomy
"at least" 4.5 cm IDC 1+node ER+61% /PR-
Assiciated Intraductual component with Comedo Necrosis
Her2+ FISH8.6 IHC 2+
5 1/2 CEF Arimidex
Celebrex 400mg daily for 13 months
Prophylactic mastectomy
Estradiol #: 13
PTEN positive, "late" Herceptin (26 months after chemo)
Oct 05: Actonel for osteopenia from Arimidex.
May 08: Replaced Actonel with Zometa . Taking every 6
months.
Accepting the gift of life, I give thanks for it and live it in fullness.
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10-10-2007, 09:16 PM
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#8
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Junior Member
Join Date: Sep 2007
Posts: 1
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shell
Ann-Michele Higgins (Shell) is my sister. She was a wife and a mom to two daughters in fifth and seventh grade. She practiced maritime law and argued a case in front of the Supreme Court last January. Ann-Michele was very quiet about her illness; she did not want colleagues, friends and neighbors to view and treat her as ill. Many, many thanks to all the members on the website who walked along with her. Kathleen
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10-11-2007, 12:01 AM
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#9
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Senior Member
Join Date: Dec 2006
Location: Oregon
Posts: 715
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Thank you
Joe and Christine,
Thank you for all you do to get the Breast Cancer message out. Your dedication to share our information will help all cancer patients and the scientists that are working so hard.
This site means so much to me and I am so grateful to participate on it.
Sincerely, Catherine Davis
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Catherine
Found my own lump in the shower
April 2006 at the age of 58
Stage IIB, ER- PR- HER2+++ multi focal tumors, largest 2.3cm
Chemo first: AC/Taxol over 16 weeks
Bilateral mastectomy Sep 06
33 rads after the surgery
1 year of Herceptin completed Dec 07
15 years and no recurrence as of April 2021
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10-11-2007, 02:21 PM
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#10
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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You two really are an inspiration to the HER2+ world!
<3 Lolly
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Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.
Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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10-11-2007, 03:41 PM
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#11
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Senior Member
Join Date: Mar 2006
Posts: 1,843
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Thanks Joe for all you do and your continuing consistent efforts.
I am sure it does not all go smoothly.
RB
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10-11-2007, 06:54 PM
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#12
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Senior Member
Join Date: Mar 2007
Location: Greendale, WI
just outside Milwaukee
Posts: 211
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Christine and Joe,
I don't know how you both are able to do it, but PLEASE keep doing what you do so well! We all are forever thankful for all the time and energy this must surely take. Big (Hugs) and *Kisses* to you both.
It is time for our planned giving where I work. Is there any format we should follow to donate to our non-profit site? I always thought about the "in leiu of flowers" to HER2 Support Group when the time comes, but I didn't think about how I could contribute through my bi-monthly program at work until I read Barbara H's post.
__________________
04/05 Onset 49, DCIS, solid, Hist 2/3, Nucl 2/3, 7cm R Brst
04/05 E & P + HER2+++
05/05 Mediport
05/05 Cytoxan & Adriamycin every 3wk x4
08/05 Taxol every 2wk x 4, Herceptin every wk x1yr
10/05 Bilat Mast - my Choice
10/05 3/19 lymph nodes Pos, Stage IIIa
11/05 Rad x 37 Rx, R Brst & Axcilla
02/06 Herceptin stopped (L vent HF 40)
03/06 Started & Stoped Arimidex after 2 mos.-QOL side effects
05/06 Started Tamoxafin
06/06 Bilat Free Flap Reconstruction
12/06 Cardiomyopathy reversed-HF normal
01/07 Bilat Saline Implants
07/07 CA 27-29 steadily rising from 28 in 12/06 to 46 in 7/07
07/07 PET Scan NED, but inflamation at prev surg site.
09/07 Started Femara
10/07 CA 27-29 down to 39
06/08 CA 27-29 down to 32
09/08 Lg joint pain & QOL side effects from Femara, will live w/ to keep CA markers within normal range.
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10-11-2007, 07:28 PM
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#13
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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Joe & Christine,
Thank you for going to DC and thank you for everything you do to bring awareness to so many about HER2 breast cancer. I don't know what I'd do without this site and the wonderful women here.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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10-11-2007, 08:22 PM
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#14
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Senior Member
Join Date: Dec 2005
Location: Alexandria, VA
Posts: 1,055
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Kathleen, So sorry about your loss. I'm glad your sis found comfort here and was able to help others. Looking forward to the day when they eradicate this disease. Thank you and your friends for your support.
Thank you Joe and Christine as well.
Bev
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10-15-2007, 10:31 PM
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#15
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Senior Member
Join Date: Mar 2006
Posts: 78
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Christine & Joe,
Sending my gratitude for your time, effort, and computer smarts on our behalf. The website and accurate information is a lifeline. It has made a world of difference since I was diagnosed in 2004.
Thanks again for all you do!
G. Ann
__________________
G. Ann
DX 2/04, mastectomy, 2.5 cm tumor, grade 3
Her 2 positive, 60%, 3+/strong, ER/PR-
Stage 2, 0/18 nodes
TX 4 AC (no taxanes, no radiation)
Hysterectomy 10/04
Began Herceptin 1/06, finished 1/07
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