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10-04-2007, 09:40 AM
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#1
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Senior Member
Join Date: Oct 2005
Posts: 3,519
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Note from Kathy LaTour/Cure Magazine
This was posted under Maryjo's Just Mentioning thread, but I thought it deserved it's own thread. Great that Kathy has found us and is checking in!
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KathyCure <script type="text/javascript"> vbmenu_register("postmenu_136189", true); </script>
Junior Member
Join Date: Oct 2007
Posts: 2
<!-- icon and title --> 
<hr style="color: rgb(204, 0, 51);" size="1"> <!-- / icon and title --><!-- message --> I’m Kathy LaTour, a 21-year breast cancer survivor and editor-at-large for CURE and Heal, award-winning magazines that take you through the cancer experience. I wanted to share with the breast cancer community what we’re doing in December at the San Antonio Breast Cancer Symposium, one of the largest breast cancer meetings in the world where the latest in research is reported annually. This year, the CURE and Heal staffs will be there, reporting and blogging on the breaking news and advocacy issues. To get our daily reports and webcasts, sign up at www.curetoday.com/eupdates. If you sign up before Nov. 1 we’ll give you a free year’s subscription to Heal: Living Well After Cancer, the magazine for all cancer survivors. We’re excited about bringing you the news that may bring us one step closer to a cure. We hope you’ll join us.
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Brenda
NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)
Nov'03~ dX stage 2B
Dec'03~ Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~ Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~ micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~ micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg
Apr'07~ MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~ Started Tykerb/Xeloda, no WBR for now
June'07~ MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~ MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~ PET/CT & MRI show NED
Apr'08~ scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~ MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~ dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~ Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~ new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~ new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~ 25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.
"I would rather be anecdotally alive than statistically dead."
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10-04-2007, 09:55 AM
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#2
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Member
Join Date: Oct 2007
Posts: 5
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Thanks, I am new to message boards and threads... wasn't sure how to go about posting a message
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10-04-2007, 01:42 PM
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#3
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Senior Member
Join Date: Jan 2007
Posts: 368
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I picked up CURE from my rad onc's office and signed up for a free subscription. It's a good magazine.
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12/12/06- IDC Stage III, 4x A/C, 35 rads, Herceptin 1 year
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10-04-2007, 02:32 PM
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#4
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Member
Join Date: Oct 2007
Posts: 5
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I'm glad we are able to reach out and help
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10-04-2007, 02:52 PM
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#5
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Senior Member
Join Date: Oct 2005
Posts: 3,519
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Kathy - there's a group of us from this site who are going to San Antonio in Dec... it will be nice to meet you there!
__________________
Brenda
NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)
Nov'03~ dX stage 2B
Dec'03~ Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~ Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~ micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~ micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg
Apr'07~ MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~ Started Tykerb/Xeloda, no WBR for now
June'07~ MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~ MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~ PET/CT & MRI show NED
Apr'08~ scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~ MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~ dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~ Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~ new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~ new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~ 25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.
"I would rather be anecdotally alive than statistically dead."
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10-07-2007, 11:49 AM
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#6
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Member
Join Date: Oct 2007
Posts: 5
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Brenda -- I really want to do some interviews with the Her2 group in San Antonio. Can you e-mail me on my business email at kathyl@curetoday.com and we can set up times to meet, etc. I have some interviews already set up with the Alamo Breast Cancer Coalition, which is the group that has been bringing in an advocacy group every year.
This San Antonio meeting is so special to me. When my book The Breast Cancer Companion came out in 1993, I drove down to the meeting with three friends -- all survivors -- and we attended the meeting (very small then, around 400 docs). I had a table and promoted the book and on Saturday we went to the luncheon where all the doctors presented case studies before a panel.
Boy did we get some looks. It was like we were the enemy and had invaded their camp. And at one point one of the panelists, who was promoting breast conservation surgery, made this huge statement that no woman wanted to lose her breast. Of course, he is right, but it occurred to me that he was speaking for me -- when I remembered telling the surgeon to take it off on the floor with a butter knife because I wanted to be here to raise my daughter. It was an "a-ha" moment for me that doctors didn't know what I thought or felt and I needed to tell them. It was really the moment I became an advocate.
So let me know your schedule and who is the reader of the group. I have read about her and really want to meet her.
Kathy |
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