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Old 10-04-2007, 08:55 AM   #21
Marlys
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Location: Boise, Idaho
Posts: 758
Marejo,
I get to do these tests on a regular basis because of my Chron's ileitis and colitis. My gastroenterologist has always felt my Chron's was rather insignificant because it is generally a disease of younger people. It came a real surprise to him when I had a cecal volvulous and had to have a right colectomy the end of May. Fortunately there was no malignancy. However I do have some pancreatic issues that showed up on the abdominal CT and I get to have that repeated every 6 months to monitor it. I also have a colonoscopy every year to monitor the "extensive diverticulosis" of the sigmoid colon. So far that has remained stable with no diverticulitis. Gees, I sound like a hypochondriac but that is what this disease can make of us. Follow the advice of Becky et al about the prep for the colonoscopy. They are right on.
Love, hugs, & prayers,
Marlys
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Old 10-04-2007, 09:02 AM   #22
KathyCure
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I’m Kathy LaTour, a 21-year breast cancer survivor and editor-at-large for CURE and Heal, award-winning magazines that take you through the cancer experience. I wanted to share with the breast cancer community what we’re doing in December at the San Antonio Breast Cancer Symposium, one of the largest breast cancer meetings in the world where the latest in research is reported annually. This year, the CURE and Heal staffs will be there, reporting and blogging on the breaking news and advocacy issues. To get our daily reports and webcasts, sign up at www.curetoday.com/eupdates. If you sign up before Nov. 1 we’ll give you a free year’s subscription to Heal: Living Well After Cancer, the magazine for all cancer survivors. We’re excited about bringing you the news that may bring us one step closer to a cure. We hope you’ll join us. Kathy<?xml:namespace prefix = o ns = "urn:schemas-microsoft-comfficeffice" /><o></o>
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Old 10-04-2007, 09:14 AM   #23
hutchibk
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Hi Kathy! I love Cure Mag and have read it religiously since finding the Fall '03 Breast Cancer issue in my surgeon's office waiting for my biopsy procedure. I was mortified that I might have Breast Cancer, but in that waiting room I still hung on to hope that I didn't... I took that magazine with me that day and it had such incredible information. But the most important info I read in that issue was from a man who was a thriving survivor (not breast, colon I think) who said not to ever ever go looking for percentages and statistics! I have abided by that religiously ever since. Thanks for all that you do at CURE. It is a great resource!

See you in San Antonio. I will be a part of the Her2Support group who will be attending this year!
__________________
Brenda

NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)

Nov'03~ dX stage 2B
Dec'03~
Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~
Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~
micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~
micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg

Apr'07~
MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~
Started Tykerb/Xeloda, no WBR for now
June'07~
MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~
MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~
PET/CT & MRI show NED
Apr'08~
scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~
MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~
dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~
Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~
new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~
new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~
25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.

"I would rather be anecdotally alive than statistically dead."
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Old 10-04-2007, 09:17 AM   #24
hutchibk
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marly - I have a dear friend (37 yrs) who is on the path to being DXed with Chron's - any helpful info you might have would be greatly appreciated...
__________________
Brenda

NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)

Nov'03~ dX stage 2B
Dec'03~
Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~
Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~
micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~
micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg

Apr'07~
MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~
Started Tykerb/Xeloda, no WBR for now
June'07~
MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~
MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~
PET/CT & MRI show NED
Apr'08~
scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~
MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~
dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~
Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~
new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~
new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~
25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.

"I would rather be anecdotally alive than statistically dead."
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Old 10-04-2007, 09:23 AM   #25
Hopeful
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Brenda,

I just wanted to react to your choice of words while waiting for your biopsy results - "mortified" is how I felt, too! It is so comforting to me to see that my immediate reaction was not bizzare or just limited to me. Thanks for sharing that.

Marejo,

I wish you the best of luck with your tests.

Hopeful
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