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Old 08-07-2007, 08:52 PM   #1
Vanessa
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Join Date: Sep 2006
Location: Houston, Texas
Posts: 624
Petscan Result

I received the results from the petscan I had on Thursday. There was a small amount of progression in the past three months while I was on taxotere, so my onc. believes that I am becoming resistant to the taxotere and will be switching me to abraxane on Friday, which I will be on for 3 months, at which time she will retest me. My onc. also made a list of different drug combinations that we will be able to use in the future. She was relieved that my mets are contained in my lymph nodes and has not respread to any organs at this time. So my results were not great, but they were not bad either. My onc. seems pretty encouraged about abraxane and I have been reading about some of the board members results with abraxane. I am ready to continue the fight.
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Old 08-07-2007, 09:45 PM   #2
VaMoonRise
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Location: Virginia
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Thinking of you

Dear Vanessa,

I am so glad to hear that there is no progression to any organs. I know the news isn't exactly what you wanted to hear and changing treatment plans is always nerve racking but it sounds like you have a great onc with a good plan in place. I will keep you in my prayers that your new treatment will put you NED in no time.

Thanks for your kind words on my brain mets post, etc., having all of you sisters is such a blessing and I thank God everyday for having you in my life and I ask Him to fulfill all of our needs and of course bring about the cure we all are so desperately waiting for.

Sending you lots of love, hugs and well wishes.

Nicola
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March 18, 2004, Age 36
Diagnosed: High Grade DCIS, Microcalcifications, Solid and Comedo type, Nuclear grade 3 with 1mm margins, ER+, PR+, Stage "0"
3-8-04 Left breast lumpectomy.
4-1-04 thru 6-24-04 Adjuvant XRT.
11-29-05 Gallbladder attack.
12-01-05 Surgery to have gallbladder removed, discovered cancer spread throughout liver in both lobes, HER2+ amplified by FISH and interestingly enough negative for ER and PR.
12-9-05 Clinical trial consisting of Tykerb, Taxol and Herceptin along with Zometa once a month. On clinical trial for 15 months before liver mets started progressing. Started on Navelbine 3-9-07. Navelbine failed, switched to Gemzar July 07. MRI of the brain on July 7, 07. Results revealed multiple brain tumors. Taken off of Gemzar immediately and began 15 rounds of WBR which I completed on July 26, 07. CT scan on 7-26-07 significant progression in the liver mets. I am now getting ready to start on Xeloda along with Herceptin and Zometa once a month.
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Old 08-07-2007, 09:53 PM   #3
tousled1
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Vanessa,

Sorry to hear there was progression while on the Taxatore but at least there was no spread. I've read a lot about the Abraxane and it appears to be a great drug with very few side effects. Hopefully this will be the magic bullet! Keeping you in my prayers.
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Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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Old 08-07-2007, 10:02 PM   #4
Cheryl44
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I am wishing and praying that Abraxane is exactly what you need! Hugs to you...
Cheryl
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Cheryl Hamilton
DX 2/6/07
LB Mastectomy 2/12/07
3 out of 9 Lymph nodes +
4 AC DD completed
12 Weekly Taxol/Herceptin completed 7/07
Herceptin completed 5/08
33 radiations completed 9/07
Tissue expander placed 7/08
Tram Flap scheduled 12/15/08
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Old 08-08-2007, 04:29 AM   #5
IRENE FROM TAMPA
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Thumbs up Not exactly what you wanted to hear I'm sure BUT..

no spread is GOOD. I took Abraxane and it is very easy tolerated and pretty good drug. It kept me stable for some time so I wish you much luck with it.

Unfortunately, we must constantly be on the look-out for future drugs and you and your onc seem to have a plan.

Take Care Vanessa
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Irene from Tampa
1996 - INFILT DUCTAL CAR.W/ LYMPH NODE INVOLVEMENT. ADRIA/CYTOXIN/5FU
1999 - RECURR. TO AUXILA AND 2 TUMORS IN LIVER
TREAT: STEM CELL REPLACEMENT/HERCEPTIN.
2002 - RECUR TO LIVER
TREAT: NAVELBINE, THEN GEMZAR, THEN XELODA.
2004 - TUMORS STILL IN LIVER
TREAT: RFA TO LIVER
STABLE UNTIL
2004 - TUMOR PROGRESSION IN LIVER.
TREAT: RESECT HALF OF LIVER.
2005 - RECURR TO LYMPH NODE OUTSIDE OF LIVER.
TREAT: TAXOL/CARPO/HERCEPTIN. FAILED ON
THIS TRIO. STARTED ON ABRAXANE.
2006 - PROGRESS WITH 2ND TUMOR GROWTH.
TREAT: AUG. BEGAN ON TYKERB/XELODA
TRIAL. CONSIDERED STABLE TO DATE.
2007 - TAKEN OFF OF TYKERB/XELODA TRIAL DUE TO
PROGRESS STARTING TYKERB/AVASTIN.
NOV 2007 - SCANS SHOW PROGRESS TUMOR GROWTH
IN ABDOM. AND TWO NEW TUMORS IN NECK AREA.
BEGAN HERCEPTIN/AVASTIN/TAXOTERE
Feb 08 - Ixempra/Xeloda
June 08 - Her/DM1 trial

"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY."
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