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Old 07-07-2007, 08:18 PM   #1
naturaleigh
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Michael Moore Film - Sicko

Ladies:

I just got back from seeing the Michael Moore film Sicko. I strongly urge everyone to go see it. It is about the health care system in the USA. It is appaling how much control the Insurance companies and the goverment have on our health. There has to be something we can do to change the health care system.

I know we do have at least one member from England, I would like to get her take on this documentary to see if what he portrayed about England is true.

Please go see this film.

Anita
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Anita

er, pr-, Her2+++
Stage 2b, grade 3
negative nodes
4 rounds AC
3 months of weekly taxol
1 yr of Herceptin
Finish Herceptin May 2007
35 rounds of Radiation
Reconstruction completed Dec 2007
Implant replaced due to infection Mar 2008
4 Years NED!!!
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Old 07-08-2007, 02:24 AM   #2
hutchibk
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I do not plan to see it as I will not give Michael Moore a cent of my money. He is not a thinker or a solver. He is merely a malcontented contrarian... an opportunistic whiner and complainer who has found a successful formula to make money off of manipulating people's emotions. He is a well documented fabricator.

A close friend lives in the UK and is on the national health system. His father needed a heart operation in February last year. The doctor told him he could possibly schedule it for late July. The friend asked how soon it could be done if his father had private insurance or were to pay for it, and the doctor's answer was that that was a different story and it would cost $10,000 and that he could fit him in on Thursday. From what I understand, much of it depends on the individual doctor and how the NHS pays them. The NHS doesn't pay for all procedures, so not all on NHS have access to the same care as those who have chosen to buy supplemental insurance. And on the flip side, the insurance does not always cover all scans that they need, etc... (sound familiar?) My friend and his sister promptly decided that they needed to apply for private health insurance for when they might need it, so as not to be in the same predicament as his father. As well, I have read that the Irish are currently up in arms over their poor medical health and hospitals. If my friend in England wants access to timely appointments (within weeks as opposed to months), access to the best hospitals and the best care, then he has to purchase private supplemental insurance. At a cost not much different than my primary insurance costs me. But to have their 'national health care', they have to pay much, much higher income taxes per year (apx 45 %) and sales taxes (apx %20). Yet that 'national public health care' doesn't get them what they need when they need it. Michael Moore doesn't tell you that in his movie, does he? I agree that our health insurance system is bloated, overwhelming, imperfect and outrageously expensive. It is a tremendously ineffecient in many ways and an increasingly difficult system. But for someone in my shoes, I would rather be here in our current health system than anywhere else in the world. National/Socialistic health system models that are found in other countries are not the only answer to our woes. Just because ours is expensive doesn't mean that other countries systems are better just because they are perceived as 'free for all'... They are typically 2 tiered systems, and they are hardly free. They are very broken models as well.

You are appalled by how much control the Govt has over our health... imagine how much worse it would be if they had all of the control over our health! From what I understand, in England, they have a postal code lottery system when it comes to access to drugs.. the NHS leaves decisions about paying for drugs to each area's primary care trust and some unfortunately will not pay for some drugs, due to cost and how much debt each trust is in. They also have to wait for NICE (National Institute for Clinical Excellence) approval on drugs before the NHS makes them available. As it stands currently, Tykerb isn't licenced, so it must be accessed through a clinical trial. When Herceptin needed to be licenced for early breast cancer, the NHS would not fund it and people who desperately needed it could not get it. It will probably be a very similar situation when Tykerb comes up for license in the UK.

I suggest researching the real solvers - the brilliant minds in our country who are looking to create a model that will work fairly and efficiently. Look up the name Regina Herzlinger.
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Brenda

NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)

Nov'03~ dX stage 2B
Dec'03~
Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~
Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~
micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~
micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg

Apr'07~
MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~
Started Tykerb/Xeloda, no WBR for now
June'07~
MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~
MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~
PET/CT & MRI show NED
Apr'08~
scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~
MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~
dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~
Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~
new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~
new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~
25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.

"I would rather be anecdotally alive than statistically dead."
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Old 07-08-2007, 05:48 AM   #3
MJo
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I think a middle way would be best. I am not going to boycott Michael Moore. I know many people with extreme points of view who do good. I am grateful that I was treated for IBC in the U.S. with all the latest treatments available to me. However I would relax and be a lot happier if I didn't have to worry about losing my health insurance at age 56 if I lot my job. I don't think anybody would argue that we need REASONABLY PRICED health insurance available to every single citizen in the U.S. It hurts initiative that a small busines owner with a family must pay about $12000 a year for family insurance I think that $12000 a year bill for health insurance could wreck the business, even with a tax break, given a small business' profit margin. The free market would offer me -- if they would cover me at all -- a single insurance rate of about $850/month. That's almost $12000 a year. If I had to work as a contractor, I don't know how I would afford to pay health insurance and keep a roof over my head.
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MJO

IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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Old 07-08-2007, 09:13 AM   #4
Grace
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I can't speak for England's system, other than my observation that in Europe it is considered one of the worst, not the best. At one point, the English public system was sending some of their patients to France for treatment as England didn't have the necessary beds or facilities. But I am most definitely not disagreeing with Moore, just wondering why he choose an inferior European system to use for comparison.

I have health insurance in Italy, which like most countries in Europe has universal health insurance. I have this by virtue of having residency in Italy. When I lived in the Perugia region, I paid $400 a year for this insurance; when I lived in the Terni region, I paid $0. Some regions charge more, but $400 is about the top price.

When my husband and I left the U.S. in 2001, we were paying $12,000 a year for insurance; it when up another $2,000 a year (with no claims) in 2002, and then the insurance company dropped us saying it couldn't insure us if we were living in Europe but refused to return the previous year's premium although it insisted we had not been covered.

My husband did not have insurance when we lived in Italy--he did not have residency at the time--and had some bleeding from the colon and was very scared. He went for a colonoscopy and after it was finished (painless in all ways as he was fine), he asked for the bill. The doctor said joking, "No cost. It was a pleasure looking at your colon." And then seriously, "Why should you pay? None of our citizens do." I might add that it took him two days to get an appointment. It took me considerably longer here.

Also, when I returned to New York, it took me six months to get an appointment for a mammogram--and I called every facility in New York. I wonder if my cancer had been found six months earlier if it would have still been non-invasive (it was 5mm IDC but mainly DCIS when it was found). Of course, I have only myself to blame, as I could have had my mammogram done in Italy in the small village in which I lived, as the mammogram truck came around twice a year. I had left my previous films in New York so thought it better to wait until I returned home.

I have many friends, American and English, who live in Italy and have had serious surgeries and diseases attended to at no cost (including breast cancer) and with excellent results, and they don't sit around worrying about how they'll pay. I should also add that Herceptin for all Stage 1 breast cancers was approved in Italy before it was approved in the United States, and it's given at no cost to the patient.

Yesterday on this board there were some postings about a scientific article that appeared recently in the New England Journal of Medicine. Some women were annoyed at the author of the article for publishing his conclusions, based on their perception that women with Stage 1 cancers would now have a difficult time getting herceptin approved by their insurance companies (and it may be true). Isn't it great that Italian women don't have to worry about scientists publishing their findings on the off chance that an insurance company might misinterpret the findings and refuse treatment! And isn't it great for science!

When I returned to the U.S. I had just turned 65 and was eligible for Medicare. My cancer was found after I was enrolled in Medicare, and I've had excellent treatment as a result, and in of all places an east coast cancer clinic. Thanks NYU for your excellent care. If my cancer had been found a few months earlier, I would have been forced to return to Italy for treatment--after paying very hefty (and I do mean hefty) taxes in the U.S. for some 48 years.

I agree with the general tenor of Moore's film. But I also agree with an earlier comment that he tends to make his films to inflame passions, and logic (and truth) often goes by the boards. But honestly, how else in this country do you get anyone's attention? Logic and reason do not prevail, I regret to say. Discussion is usually through ad hominem attacks, so why should we be surprised when Michael Moore follows suit.

We need serious reform of our medical system, so that all our citizens have an equal shot at good health and good treatment when they need it. Let's hope we get universal health insurance soon, and we can all get off this cancer ride, or at the very least that none of us have to use our life's savings to stay on the roller coaster.
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Old 07-08-2007, 01:20 PM   #5
hutchibk
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From an Italian friend who moved to the US 6 years ago, I have heard that the income tax rate in Italy is around 43% for most if not everyone and that the VAT or sales tax is around 20%. He has said that it is a much better system in Italy than most in Europe, including Scandanavia. But, as much as he loves his mother country, he says that he (and his young family) has a markedly improved quality of life here with lower income, business and sales taxes. He also appreciates our health system. Though different from the system in Italy, payment wise, he believes that he pays less yearly for the private insurance system here than he paid through taxes and private insurance there for a "free" system. He sees value in both, but cannot believe that there is a rush in the US to model our health system after National Health systems in other countries.

I agree that our health insurance system is bloated, overwhelming, imperfect and outrageously expensive. It is a tremendously ineffecient in many ways and an increasingly difficult system. It puts decisions and control in the hands of the bean counters at increasingly beaurocratic insurance companies. Private insurance bureaucracy and paperwork consumes one-third of every health care dollar. It gives too much power to lobbyists. I believe all of that is true. That is why I suggest researching the folks out there who are working for a solution that will work in America. Thinkers, solvers, brilliant minds. There are models being devised that will offer a system that someday will make it accessible to everyone, but not free, and it will be a consumer driven, not a Govt run system.

I have to say that except for a few payment challenges I have faced in my three years in cancer treatment, I cannot complain too much about my insurance company. They are not perfect by any means, but I am pretty satisfied with the coverage and care provided and the lack of hassles for the most part.

Google Regina Herzlinger. Google Dr. Val (Revolution Health). There are other ideas out there.
__________________
Brenda

NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)

Nov'03~ dX stage 2B
Dec'03~
Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~
Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~
micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~
micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg

Apr'07~
MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~
Started Tykerb/Xeloda, no WBR for now
June'07~
MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~
MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~
PET/CT & MRI show NED
Apr'08~
scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~
MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~
dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~
Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~
new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~
new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~
25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.

"I would rather be anecdotally alive than statistically dead."
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Old 07-08-2007, 01:41 PM   #6
tricia keegan
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I just saw this post and had to reply as I live in Ireland, when herceptin was approved for early bc I met a lot of English people in the chemo ward who had to move here in order to get it as their primary trust would'nt pay for it,some of them were nurse's and told me she would have had to sell her house. Of course other places in the Uk did'nt have the same problem.
I was very fortunate and have had the best treatments and drugs immediatly available to me. I also post on Komen and am horrified sometimes to hear some of the ladies saying how expensive their anti nausea meds are and how they can only get so many due to the expense, especially Zofran. I felt bad as I had about two boxes of these left over from chemo that I did'nt use along with an assortment of other drugs I never needed.
I have voluntary private insurance but this only entitles me to a private room in a hospital,nothing else,the care and treatment I have had would be available to everyone. I did make one private payment before dx to see my breast surgeon asap, My appt wait time was two weeks privatly and four weeks public, I had my results in 24 hrs and a date for surgery the following week. Our system is not perfect either though and yes people have been up in arms mainly due to waiting times in the ER and a lack of beds within hospitals which means some unfortunate people have been left on trolleys after admission waiting for a bed.
I'm not sure if any system is perfect really but glad I never have to justify and scans or meds or ops to the insurance company,the way it works here is if the Dr orders it you get it although for some tests there may be a few weeks waitiing time.
A lady I know on Komen is brac + but her insurance company won't agree to her having an ooph, I asked my onc could I have tthis done and he agreed, I had a date within weeks. I do intend to see Michael Moore's film out of curiosity but agree he often does'nt give all the facts, the film is not released here anyway for another couple of weeks so I'll have plenty of time to read a few reviews!!
Just wanted to give you all an idea of how it works in Ireland, quite a few people believe our current Minister of health is trying to bring in a similar system here as you have in the States, myself included but doubt she'll succeed. Our drugs (inc tykerb ) are usually approved quite quickly and tykerb if fact was approved here before the States. As I mentioned earlier our health system is far from perfect but having had a cancer dx I have been very pleased with my level of treatments.
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Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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Old 07-08-2007, 03:07 PM   #7
Grace
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I lived in Italy for more than five years, know hundreds of Italians well and many many ex-pats, all of whom use the Italian health system, including many Americans, so I am very familiar with the Italian health care system, just as familiar with it as I am with the American system. Italy's system is rated third in the world. I have no clue how it's possible that your Italian friend paid more in health insurance in Italy than here. Perhaps your friend is lucky enough to have an employer paying his health care insurance (and taking a tax break which we're all paying for) but someone is paying more here than he paid in Italy. (My Italian premium was 0, as I wrote earlier.) Or perhaps he just has a lovely agreeable Italian nature. We found that Italians will avoid arguing with people over things they think are inconsequential. If they think you feel a particular way, they'll often agree with you out of politeness. Italians live longer than Americans, which is one of the items the World Health Organization factors into its evaluation of world health care systems. We're 37th in the world, probably because we have very little preventive health care and because we're so obese.

I will add that my care here has been absolutely wonderful. Everything is located in one building just four short blocks from my apartment. I have a wonderful oncologist, radiologist, and chemo nurses. But I'm lucky as I live in New York State, which has far more restrictive rules imposed on insurers than most other states. As my doctor said, I'm getting herceptin because I live in New York. In other states this might not be so, considering my Stage 1a diagnosis. My plan with my Oxford HMO has worked out very well for me. However, a very good friend of mine, a senior professor at the City University, is in absolute despair over her health plan. She had surgery on her knee recently (she could barely walk) and is getting bills every day for thousands of dollars not covered by her insurer, and is beside herself. She was given only eight sessions with a therapist, when she needs about 30. The remainder she must pay for herself. She has started seeing a mental health therapist because of the anxiety caused by her lack of good health insurance--the latter not paid for, of course.

But I am really curious about the Italian friend who paid 43% in taxes; most Italians I know are very clever at not paying any taxes (which is a very big problem in Italy). We watch Italian news every night, and had a good laugh the other evening at the story of the woman with a travel agency in Milan, with five employees, who claimed she made 1800 euros last year (about $2,200). It's only the folks who work in government jobs who pay the full tax rate, but that's a different story altogether.

We rented our very first apartment in Italy, in Venice, from one of the wealthiest women in Italy, a countess descended from the Medici. Yet she made us sign a false rental agreement saying we were paying half the actual rent so she could avoid paying taxes. It's called paying in the "black." This is standard practice in Italy. It makes for interesting situations when I'm writing, as I set my novels in Italy.

As Tricia writes, no health care system is perfect. But a health care system that treats everyone equally is moving closer to perfection than one that discriminates between the rich, the middle-class, and the poor. I've often thought how senseless it was when my 88 year old mother could have had extensive open heart surgery because she had good insurance and young children go without inoculations for childhood diseases. I guess I want everyone else to have the same benefits that I have.

And now to the lighter side:

A couple in their nineties are both having problems remembering things. During a checkup, their doctor tells them that they're physically okay, but they might want to start writing things down to help them remember. Later that night, while watching TV, the old man gets up from his chair. "Want anything while I'm in the kitchen?", he
asks.

"Will you get me a bowl of ice cream?"

"Sure."

"Don't you think you should write it down so you can remember it?"

"No, I can remember it."

"Well, I'd like some strawberries on top, too. Maybe you should write it down, so's not to forget it?"

He says, "I can remember that. You want a bowl of ice
cream with strawberries."

"I'd also l ike whipped cream. I'm certain you'll forget all that, so maybe you should write it down?"

Irritated, he says, "I don't need to write it down. I can remember it!

Then he toddles into the kitchen.

After about 20 minutes, the old man returns from the kitchen and hands his wife a plate of bacon and eggs.

She stares at the plate for a moment.

"Where's my toast?" she says.
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Old 07-08-2007, 09:08 PM   #8
vickie h
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Sicko

Just saw this film on July 4th, and plan to see it again. I completely support people like Michael Moore, who cannot be silenced and will not be silenced. This film is a must see! Any change that has ever been made has been started by small grassroot movements, people who refuse to go along with corrupt governments, lies, and most of all fear. Everyone should see this movie and deside for yourself...... Wishes, Vickie
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Love and Hugs, Vickie

Life's not about waiting for the storm to pass,
It's about learning to dance in the rain.


Feb 04 IBC IIIC/IV er-/pr- her2+++
3/04 TCH X4
7/ 04 MRM 9/04 Taxol/herceptin wkly 1 yr 33X rads
11/04 skin mets 33x rads,10/05 Avast/Herc. 11 mos.
8/ 06 PET mets lymphs, neck
9/ 06 Navelbine/herceptin
11/ 06 PET NED
2/ 07 skin mets, 4/07 Xeloda, 5/07 add Tykerb
2/ 08 Tykerb failed. Doxil /Herceptin 6 months
8/08 PET skin mets, 8/08 Abraxane/Avastin
11/ 08 PET prog., skin mets
1/09 PET/CT progress, 1/09 Ixempra, 2/09 add Xeloda and low dose Naltrexone
2/09 off Ixempra/Xeloda
3/09 navelbine/herc/cytoxin 4/09 PET shows regress.7/09 start Topotecan. Failed.
8/09 extensive mets rgt brst, back and torso. starting Pazopanib clinical trial.
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Old 07-08-2007, 09:25 PM   #9
hutchibk
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He is a business owner here in the US, so he pays for his own insurance. He believes that he pays less yearly for the private insurance system here than he paid through taxes and private insurance for a "free" system in Italy, due to the yearly income tax rate and sales tax rate that he had to pay there... I suppose he was an honest business owner who paid what he was supposed to. I wonder how they fund their health system if everyone figures out how to not pay taxes? Do they just print money or do doctors work for free? Sounds almost too utopian to believe. I am sure that someone pays taxes.

The biggest problem with our health mindset in this country is definitely the personal responsibility aspect and preventative care. Absolutely. But preventative care is not only the responsiblity of the health system or the medical community. It is first and foremost the responsibility of the individual. And obesity is the best case that can be made that our society doesn't care about being healthy. An entire mindset shift and attitude shift on the part of the individual will have to happen before any type of system will truly be successful in the US, private or "free." For the most part, europeans are healthier in the many ways that good diet can be considered responsible for. As well, they walk constantly, unlike Americans. And in Italy they live on the mediterranean diet.

I think the documentary 'Super-size Me' was a much more important film, but I doubt that enough people saw it to have a true impact and make our population change their ways.
__________________
Brenda

NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)

Nov'03~ dX stage 2B
Dec'03~
Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~
Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~
micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~
micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg

Apr'07~
MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~
Started Tykerb/Xeloda, no WBR for now
June'07~
MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~
MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~
PET/CT & MRI show NED
Apr'08~
scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~
MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~
dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~
Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~
new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~
new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~
25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.

"I would rather be anecdotally alive than statistically dead."
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Old 07-08-2007, 11:00 PM   #10
Grace
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Let's agree to disagree on our perceptions of this country's health care system. I think we can agree on one thing at least: good old Michael certainly knows how to inflame the passions.
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Old 07-08-2007, 11:33 PM   #11
hutchibk
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I believe we actually agree on a lot of things... we just disagree on the fix.
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NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)

Nov'03~ dX stage 2B
Dec'03~
Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~
Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~
micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~
micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg

Apr'07~
MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~
Started Tykerb/Xeloda, no WBR for now
June'07~
MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~
MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~
PET/CT & MRI show NED
Apr'08~
scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~
MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~
dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~
Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~
new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~
new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~
25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.

"I would rather be anecdotally alive than statistically dead."
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Old 07-09-2007, 10:00 AM   #12
caya
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Chiming in from Canada

As many of you know, Canada, like Italy, also has a goverment funded medical system, and I am so thankful every day that we do. Yes, I pay high taxes, but then I know that I have no financial worries when it comes to medical treatment - ever. And every single Canadian citizen is covered, not just the ones who have "insurance".
Since diagnosis, my GP got me in to see one of the top-rated oncologists in Canada (reputed to have one of the highest "cure" rates in North America) - within one week. I saw the breast surgeon also within 10 days. I have had top rate timely care since day one of this nightmare - and Herceptin was also approved for use on early stage BC patients well before it was in the States.
I can also go to see any doctor or specialist I want to, there is no limit because the dr. is out of my "group." Yes, I may have to wait a bit, but not usually. The stories you hear about in the news about Canadians waiting years for surgeries etc. are the exceptions, not the rule. And I never have forms to fill out, and there is no stress re: worrying how we will pay for the treatments. Drugs are not covered, I do have private insurance for this that covers drugs, dental, and private rooms in the hospital. But the day to day stuff - going to the pediatrician, the oncologist, chemo treatment etc. - the chemo drugs and Herceptin - are covered.
Last year my husband had a brain aneurysm, and he had the surgery by a brilliant neurosurgeon within hours of diagnosis. He made a full recovery, with no financial worries. The stress of the dx and the recovery was enough.
I am not saying our system is perfect, and I tend to agree with MJo that somewhere in the middle would be good - for those of us who can afford to get into a specialist, and want to spend our money that way, we should be able to do it. I know there are lobbying groups working towards that, but if not, I would never give up the wonderful, equal, stressfree system that we Canadians have.

Caya
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1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08

Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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Old 07-09-2007, 10:41 AM   #13
naturaleigh
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Thanks for the replies

Thank you ladies for the replies. This movie is my first encounter with Michael Moore, so I know nothing about him. I do not watch tv or go to movies much, so I am not in the know. I hope I did not offend anyone by bring up his name.

His movie did document other country's other than England. I mentioned England because I knew we had at least one member from there. He also visted Canada, France and Cuba, all of which had free health care.

I am not the most intelligent person in the world by far, but it does not make sense to me how an insurance company can determine whether or not a procedure; prescribed by your doctor, is medically essential for your treatment. The insurance people are not doctors and should not be able to deny payment on any treatment.

There were many things in the movie that "hit home". I was so thankful that I was assigned a paradigm nurse (through my insurance company), to make sure that all my procedures were pre-authorized. Had they not been pre-autorized, my insurance would not have covered the procedure and I would have owed the insurance company $200. That is absurb!! When you are going through a rough time like this, or having a baby, or in an accident where you have to go to the hospital, or many other things that need to be pre-authorized, the last thing you are thinking about is your insurance.

It really angers me that I have invested 20+ yrs paying for insurance and not using it, then when I need it, it is like pulling teeth and nails to get the benefits that I should be initialed to without hassell. There are alot of things that need to be changed, and I think if we were all to pull togther something could be done about the cost and the aggrevation of the system we all surrender to. The health care, along with everything else is continually skyrocketing with less benefits to the people. It is my hope the Michael Moore stirs up enough controversy to at least start some type of change with the raising cost of health care.

One gentlemen from France stated that "here (France) the government is afraid of the people, in the US the people are afraid of the goverment."

I don't know that "free" health care could work in the US, but one should pay premimums according to his/her means. The way it is now, if you make $15,000 per yr you pay the same amount of someone who makes $120,000 or more a yr.
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er, pr-, Her2+++
Stage 2b, grade 3
negative nodes
4 rounds AC
3 months of weekly taxol
1 yr of Herceptin
Finish Herceptin May 2007
35 rounds of Radiation
Reconstruction completed Dec 2007
Implant replaced due to infection Mar 2008
4 Years NED!!!
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Old 07-09-2007, 01:56 PM   #14
MJo
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RE: Health Care in Cuba
I work with a woman who went to Cuba to visit her father who was dying of heart failure (How she got in the country is another story). She says the doctors are very good and health care is available for all. But when she and her family took him to the emergency room in a small Cuban city after he had a seizure, she had to keep fanning the flies away from his face. I'm not kidding.
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IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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Old 07-10-2007, 09:08 AM   #15
MCS
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I will not give any time time to this guy.

I am from Cuba and let me tell you what they have.

Foreigners are treated in different hospitals than the countrymen.

Doctos in Cuba are atking every opportunity they have to take classes or conferences outside the country to take refuge in another.

My aunt went into the hospital and had to take her own bedshhets for the bed because they did not have any. They did not even wash them so our family would change the sheets take home and wash in a basin ( no washing machines or clorox!) and re use

They did not and could not provide any antibiotics for her infection. We had to buy them in the black market and send over for her. By the time they got there, she had died from the infection. The antibioitics went to another person we did not know because the government took possession of them.

My cousin who was a dentist there and now lives here, did not have materials, instruments to work with.

Then I have my uncle in switzerland. He used to work for the UN. He comes to the Palmer institute in Florida for his eyes and pays for it out of his own money because the quality is so bad in Switzerland.

so yes. We have insurance to pay and maybe unfair but I would not trade this system for another one that is gvernment funded.

Thank you for letting me speak

XOXO

MCS ( maria)
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Old 07-10-2007, 09:40 AM   #16
Marilyn June
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How can anyone justify a unprovoked war costing billions of tax dollars every year and be against tax dollars for health coverage?

France has the #1 rated health care program in the world. We are somewhere in the 30s. England, and Italy are ahead of us.

Marilyn
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Old 07-10-2007, 10:38 AM   #17
Grace
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Got to tell you folks, I'm keeping my mouth shut on this one, as I promised myself not to post any more of my political views on the board, just my cancer views. But I'm really champing at the bit!

I made my husband promise to tie my hands behind my back!
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Old 07-10-2007, 01:00 PM   #18
tousled1
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The push in the United States for what is being called "Government Funded Insurance" is nothing short of socialized medicine. Having been exposed to socialized medicine whle living overseas I'm extremely thankful that here in the United States we have private insurance. There are hundreds of insurance companies, all of which are different. Some have good reputations and some don't. Having socialized medicine is not the answer and it certainly will not be free! This is my personal opinion and everyone of us is entitled to their opinion.
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Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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Old 07-10-2007, 01:11 PM   #19
MCS
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Ay ay ay!!!

So many views and we are so lucky that we can express them freely here.

but to those to whom it applies, please do not send me 2 pages of a political opinion to my email address again. Too much stress ))))))))))))))))

Love you

MCS ( maria)
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Old 07-10-2007, 02:14 PM   #20
Adriana Mangus
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Question Universal Health Insurance

Dear Grace: I agree with most of what you have to say about the medical industry and Michael Moore in general. I do not want to start a war with words but I won't like an "Universal Health Insurance"

People like you and I; in the event that one day there is one- UHI- would have to wait until our doctor's papers are first; submitted, review and approved.

Having UHI means "everyone" would be entitled to have acces to everything that relates to medical industry. Whether they have contributed to the system, or not.

I came to the states about 24 years ago, never, ever, have received anything from the government, and am not going to pay for anyone to obtain benefits at my expense.

Michael Moore is merely in the industry to make money. Some of his "suggestions" are well taken, others; you just have to disregard.

I really do not see anything wrong with our medical industry/government. Other countries are worse off than ours.

We are a clear example of the collaboration between the pharmaceutical companies/ government; without them we wouldn't be here.

Pharmaceutical companies must make money to stay in business, they put out tens of thousand of dollars experimenting with new drugs, some of them never get approval by the FDA. People do not know that, or do not care. I do.

I agree with you about Michael's selection of countries, why Europe vs USA. Again, he's just causing controversy to make money. In a way, he's a little instigator and agitator.

People in Flint, MI love him, they financed his very first movie. It's a shame that Flint is becoming a ghost town, as people are leaving in pursue
of greener pastures. Is the Auto industry to blame? I wonder if Michael is working in a docummentary about it. Mmmm?
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1994 - rt brst, .lump, underarm node dissection,chemo+rad 1.2 cms, Grade 3.
28 nodes neg
Er,Pr, Positive HER2 status unknown
2003- Recur to rt lung.July 16 ( B-Day!)
Her2+++ Er,Pr, Negative
2003 - Aug04--Navelbine + Herceptin
2004- 2007--
NED - Herceptin, only
2007 Feb-April Xeloda added to hereceptin
2007-May Back on Navelbine+Herceptin
2008-Feb-Mar 15 Ses Rad to Rt. Lung
2008- Oc 17 Add Tykerb to Herceptin
2009- June-- Discont Tykerb
2009 July 7--Current Taxol + Herceptin
2009 Dec--Discontinued treatment due to progression. Looking into cyberknife.
2010-Aug Accepted to TDM1, no SE, except liver count went up.
2010-2011 September got kicked out of the trial, due to a small spot found on lung.
2011- 2012 September thru early 2013 on Herceptin
2013- March Bone density shows small spot on 5th rib.
2013 - April 4th appt with onc. will post after discussing course of treatment.
2013-March-April Cyber knife to brain and radiation to rib. Chest --base line before chemo-CT-Scan stable for lung issue. CA2729 Normal.
2013 April Herceptin- TDMI
2013 Sept Herceptin + Perjeta . CA2729 within normal range. Brain and Pet scans October 31st. will post results.
2013 October Brain MRI- mixed response. Will see Onc/rad on Halloween.
2013 October/November Brain-MRI nothing new. Repeat MRI next year in May.

2013 December Continue Herceptin and Perjeta. Stable at the moment.
2014 February Brain MRI -clear!
2014 January Added Taxotere to Perjeta+Herceptin.
2014 March Stopped chemo-chest ct-scan next.

2014- March Scans shows tumor's larger, CA2729 higher. Discontinue Herceptin.
2014 April Perjeta+ Halaven
2014 April CA2729 went down 60 points after one cycle. Cough does not want to go away.
2014 June Continue on Perjeta + Halaven-- no more cough. Stable
2014 June Back on Herceptin + abraxane
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