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Old 05-14-2007, 06:00 AM   #1
ellen
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Join Date: Mar 2006
Location: new york
Posts: 8
Sandy, Have been reading your posts and am compelled to write because we have so very much in common. I also have ibc and was diagnosed with a pleural effusion August 2006, my first experience with stage 4. I had 2 liters of fluid drained from my right lung and my onc strontly recommended pleurdesis with talc. I had it done in September and went on zeloda and herception for seven months when my tumor markers started to increase. Sent for a pet/ct which showed tumor growth in pleural cavity. Changed to doxil every 3 weeks with herception but I am coughing and my tm was 51 after first doxil treatment. Onc tells me doxil is slow moving and it will take time to do its thing. I feel ok most of the time with some fatique and a light rash on trunk of body. Hair is good.

I hope this information helps a little and I wish you all the best. I have learned a lot from this site and appreciatge everything that is written. My onc told me pleurdesis will not cure the cancer, only the fluid buildup. Ellen
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Old 05-14-2007, 09:24 AM   #2
Shell
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Join Date: Sep 2005
Location: Philadelphia
Posts: 301
Sandy-

I am glad you are having success with the doxil - that never did anything for me. I too have the cough - I am constantly using the Halls cough drops, but it is so irritating...

We're thinking of you, and keep us posted.

Kind regards,
__________________
Shell

init diag 3/17/03-stage IIIC
ER-/PR-/HER2+++
CET x4 neo-adjuvant
lump & SNB 8/03
CET x2
radiation and herceptin/navelbine 11-03-1/04
1st reoccur to lymph nodes 8/04
complete axillary dissection 12/04
herceptin/taxotere til progression (lungs) 3/05
xeloda w/out lapatinib trial 6/05
lapatinib/tykerb added 4/06
ended trial 8/06 due to progression
doxil / avastin 11/06-12/06 - wasn't working
navelbine/herceptin/avastin 12/06/3/07 - progression
gemzar/carboplatin/tykerb 4/07
mri shows extensive mets to bone in pelvic area 6/07
switched to abraxane (3 on/1 off) + tykerb 6/07
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Old 05-14-2007, 12:56 PM   #3
tricia keegan
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Join Date: Nov 2005
Location: Ireland
Posts: 3,463
Thinking of you

Sandy hope all goes well for you and the Doxil brings on a big improvement. Keep us posted!
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Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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