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Old 04-13-2007, 11:32 AM   #1
RobinP
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colonscopy with breast cancer history?

I was just wondering if others have done a colonscopy due to cancer history even when you are younger? Thanks, my MD recommended this as an option for cancer screening even though no one in my immediate family has had colon cancer.
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2002- dx her2 positive DCIS/bc TX Mast, herceptin chemo
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Old 04-13-2007, 11:49 AM   #2
saleboat
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I wondered if I would have to do this, but so far, it hasn't been recommended. Maybe when I turn 40?
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dx 4/05 @ 34 y.o.
Stage IIIC, ER+ (90%)/PR+ (95%)/HER2+ (IHC 3+)
lumpectomy-- 2.5 cm 15+/37 nodes
(IVF in between surgery and chemo)
tx dd A/C, followed by dd Taxol & Herceptin
30 rads (or was it 35?)
Finished Herceptin on 7/24/06
Tamox
livingcured.blogspot.com

"Keep your face to the sunshine and you cannot see the shadow." -- Helen Keller
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Old 04-13-2007, 12:24 PM   #3
Becky
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I was and did so in April, 2006. It was recommended a year earlier but I procrastinated but I was clean (no pun intended)
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Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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Old 04-13-2007, 12:31 PM   #4
RobinP
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Hi Becky, I'm glad you were clean. How was the procedure? Was it as uncomfortable as it sounds, and do you know if there are any potentially adverse side effects, common or rare, such colon tearing or perforation? Thanks for the help...smile.
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Old 04-13-2007, 12:48 PM   #5
Hopeful
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I have been reccomended to have this test just because of my age (53). Would have done so last year, but bc kind of pushed it off the stage. I expect to get to it this summer. My local imaging place does virtual colonoscopy, which has the value of not requiring anesthesia, as it is non-invasive. I asked my gyn (who is ordering the test) if that would be ok with her, and she said sure. I will have to pay for it myself, but would prefer this to the standard procedure, so I don't mind.

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Old 04-13-2007, 12:52 PM   #6
Grace
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I had one recently and it was relatively easy; hardest part is drinking the liquid the night before. And today you can take a pill and drink water. All invasive procedures can have problems, but it's rare. My husband had two very miserable days after his, done in New York, because of the anesthesia. He had one in Italy (no anesthesia) and had no after effects. I don't think I'd consider doing it if not knocked out, but it is safer. If you have no polpys,you can usually wait another five years for the next; and if you have benign polyps then you are told to return in two years.
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Old 04-13-2007, 01:09 PM   #7
Yorkiegirl
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It was recommended that I have one , and I am glad that I did. They found 6 polyps but they turned out to benign.

Drinking the liquid stuff was yucky but tolerable. I was put under a local to have mine done and had no problems.

Since I had 6 polyps it now recommened that I have this once a year.
Unfortunately colon cancer and BC can go hand in hand, and thought well isn't that just great.
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Texas
Biopsy Dx'd 3-23-05 Age 48
MRM 4-5-05 w/ 2 tumor's 5cm, and 6 cm (right side)
IDC (poorly differentiated infiltrating ductual carcinoma)
5+/16 nodes
Stage III A
Grade 3
ER/PR-, Her2/neu ++
Ki67 78%
Begin Chemo 5-2-05 4XAC Dose Dense , 4X Abraxane Dose Dense (ended August 05)
28 Rad's ended October 13 2005
Started Herceptin Weekly August 2005 for one year
Had a Simple mastectomy left side after Mamo showed incresed micro-calcifications. Jan. 17 2006.
Brain MRI Feb.2006--All Clear
August 28, 2006 Last Weekly Herceptin.
October 2006--Colonoscopy, 6 Polyp's removed--all B9
PET Scan July 2007
Abdominal MRI Oct. 2007---2 Right Kidney Cysts
Core Biopsy-- Lump on Scar Line 1-10-08---B9
Brain MRI 6-2008--All Clear
PET/CT Scan 6-2008
Sept. 8 2008, 4CM area removed from mastectomy scar line. Proved to be B9.
PET/CT Scan-- July 2009 --All clear
August 17,2009 ---Had Port Removed
6 Years NED -- April 5,2011
DX'd with Melanoma left arm 10-10-2011
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Old 04-13-2007, 01:39 PM   #8
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age and CA history and colonoscopy

If no family history of colon CA, then at age 50 colonoscopy is recommended, but it IS really important for everyone to complete the simpler tests (as well as to have any evidence at all of rectal bleeding checked out, even if you think it is only hemorrhoids):

fecal occult blood test annually (the cards for samples from 3 different times you poop)

digital rectal exam

It was a challenge to drink all the necessary fluid, but if you do not clean out your bowel adequately they cannot see the walls of the bowel very well and in that case you will have put yourself through the experience without getting the best possible look at the bowel, and then evidence of problems can easily be missed. So.... do thoroughly flush your innards.

Colonoscopy was uncomfortable for me even with twilight anesthesia. It might have been less so if I would have had it at a cancer center.

A good doctor will tell you what the limitations are with virtual colonoscopy compared to physical colonoscopy.

I know I haven't specifically answered your question about those under 50 with a history of bc but I will see if I can get some general recommendation for that, RobinP.

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Old 04-13-2007, 03:22 PM   #9
suzan w
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I had my first colonoscopy when I turned 50...before breast cancer(it was OK...the colonoscopy!). It was no picnic but after all I have been through now...!!!Maybe it WAS a picnic (in disguise!) I got a migraine from the prep stuff...but I understand that folks that are prone to migraines sometimes get them from the colon prep. Anyway...since cancer, now my oncologist feels I should have one every 5 years instead of the 10 years that the first doc. said.
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Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year

as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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Old 04-13-2007, 05:06 PM   #10
Karen Weixel
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I had one because I turned 50.

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Old 04-13-2007, 05:27 PM   #11
skeetur
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I had one last year (pre-cancer dx) at age 45 for some abdominal pain I was having.

My sister dxed with breast cancer last year as well has her first colonoscopy in a few weeks - it was suggested because of her age rather than the BC as she just turned 50.

Kathy
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12/01/2006 Initial Dx via stereotactic biopsy - DCIS, grade 3
12/27/2006 Lumpectomy w/ SNB: 2 foci of IDC (largest .3 cm, Grade 2, Notthingham score 6) amid large area of DCIS: No clear margins on the DCIS; re-excision recommended
ER+(55%)/PR+(60+)/HER2+ (2.8+ via IHC?)
01/23/2007 Re-excision Lumpectomy: No clear margins on the DCIS; mastectomy recommended
03/02/2007 Bilateral mastectomy w/ expander implant insertion
03/19/2007 Emergency surgery to fix broken blood vessel in left breast
03/30/2007 Met w/ oncologist; oncologist checking on HER2 status with pathologist and doing some consulting on my case - no treatments for now!
05/02/2007 Next appointment w/ oncologist
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Old 04-13-2007, 05:38 PM   #12
Becky
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The procedure was fine. I had a twilight anesthesia and was out and up in a flash. The drinking one gallon of trilyte was NO picnic. When I have to get another one in 4 years, I am getting the pills.
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Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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Old 04-13-2007, 08:23 PM   #13
hutchibk
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My doc has said that I can and probably should... but while on certain chemos that knock down my WBC, he has asked me to do it only at a certain point in the 3 week chemo cycle. I have asked him if we would see any other types of cancer (colon or ovarian) on any of my multitude of regular scans and he said
we would see ovarian, but not colon polyps.... so he would like me to follow thru on that. I, too, have been a procrastinator, but I intend to.
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Brenda

NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)

Nov'03~ dX stage 2B
Dec'03~
Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~
Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~
micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~
micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg

Apr'07~
MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~
Started Tykerb/Xeloda, no WBR for now
June'07~
MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~
MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~
PET/CT & MRI show NED
Apr'08~
scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~
MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~
dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~
Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~
new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~
new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~
25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.

"I would rather be anecdotally alive than statistically dead."
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Old 04-13-2007, 10:18 PM   #14
Dinogirl
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Smile

Robin,

Hello, I cannot speak about having it younger than 50, however, my paternal grandmother had colon cancer, in addition to my maternal great aunt. I had a colonoscopy 4 years ago at age 49, and (the chicken that I am-translated.. I do not like unecessary pain) strongly requested (actually demanded-because my gastroenterologist said I didn't need an anesthesiologist, and that insurance probably wouldn't pay, but ins paid) to have an anesthesiologist to be with my airway (asthma), and so I could have the maximum sedation that was safe. I had no problems with the anesthesia-most are very short acting anyway. For those medically oriented, I believe what I had was Versed, Propofol, and Fentanyl as that is what the anesthesiologist said he would give me after we discussed my desires. It does help to speak up, that is the only way we will get what we want, and helps us feel some control over our lives.
Sorry to ramble on, but hope my point of view is helpful
Dinogirl
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Dinogirl

Diagnosed at age 52-March 2006
Lumpectomy for 0.6 cm IDC rt breast, Sentinel nodes neg (3) HER 2 FISH +, ER/PR +, Grade 2
Taxotere, Cytoxan - one cycle
Taxotere, Cytoxan, Herceptin - 3 cycles (every 3 wks)
Tolerated chemo well with help of Aloxi, Neulasta, Decadron, Benadryl, Immodium, Darvocet (this info provided for those who may be reluctant to have chemo)
35 Rads
Herceptin for one year through May 2007
Femara since 9/2/06
BRAC 1 and 2 neg
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Old 04-14-2007, 07:52 AM   #15
Sandy H
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I had one because of being over 50 and was out the whole time. The prep was no problem for me as I started drinking in the morning and was scheduled at 4:00 p.m. and home by 5:30. Went to a meeting at 6:30 after the procedure! So had a good night's sleep and spend most of the day in the bathroom-then the procedure. I think my primary physican may have requested an afternoon appointment so I wouldn't be up all night. You need to make sure you drink the necessary fluids the day before so you do not get dehydrated which happened to one of my friends. She was very ill from dehydration. I would not be nervous to do it again however, I was told 10 years as nothing was found. hugs, Sandy
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Dx. 03/01, Rt. IBC
AC/Taxatere
Rt. MRM-with graft Lt. simple
5 rads-skin mets
Herceptin, taxol, carboplatin (taxol seem to be the magic drug)
Navelbine & xeloda (did not work)
topical miltex for skin mets
Tykerb/xeloda
thoracentesis x 2 left lung fluid shows cancer cells
Port removal (4 years) with power port replacement
Doxil
Updated 05-07 Scans show no bone or organ involvement we shall see!




I shall not pass this way again. Any good I can do or any kindness that I can show let me not defer or neglect it for I shall not pass this way again.
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Old 04-14-2007, 01:50 PM   #16
Chelee
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This is something I just brought up to my husband. I haven't had one nor has my GP ever told me to get one. But now after bc....I want it done. My husband had one last year and he said the worse part of the whole thing was the prep the night before. Other then that...he said he was completely out and didn't feel a thing. He just got a notice to come back in for another one since they found a benign polyp last year. I will be the big 50 this June so I am calling my primary to get one scheduled. I am dreading doing this...but after what I've been through this last year..this should be a peace of cake.

Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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Old 04-15-2007, 06:43 AM   #17
RobinP
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Red face

Thanks for the responses. It sounds like the test isn't that bad from what most of you thought. I think it is a good idea to screen for colon problems with my cancer history. Hopefully, my experience wtih the colonscopy will be as tolerable as everyone's here. Smile.
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Old 04-15-2007, 10:52 AM   #18
Jean
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Robin,

Believe me it is not what we think the test will be. I think our perception
of the test just turns us off from having it. I had the test done and the
dr. found three benign polyups which he removed. I am relieved I went.

A little hint: about two to three days piror to test and starting to prepare
for the test...eat very small light meals this way the prep will not be such
a major burden. I found this helped - also when eating light do not eat bulk
fiber foods - I had jello, ice - cream - plain veggie soup broth. It went
a heck of a lot easier during the prep time.

Keep us posted and wishing you a good test!

Regards,
jean
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Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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Old 04-15-2007, 02:28 PM   #19
Soccermom
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I have had three starting at age 45, 1st time was routine screening due to family history (brother was 55 when DX w colon ca.) and two years later had a precancerous polyp removed. Last years procedure was CLEAN...woo hoo!
Prep is not fun, but procedure is a BREEZE! If they find something they deal with it then and there and you wake up no worse for the wear. (That is unless they find an invasive ca. which requires more extensive treatment and evaluation.)

Best wishes!
MARCIA
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Old 04-15-2007, 03:07 PM   #20
Jean
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Robin,

Also wanted to share with you that the procedure is not difficult. You
are asleep, so as I posted earlier it is more our own minds that the test
may be a turn off. I have had more discomfort with some mammograms.

Best of luck with test!
Jean
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Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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