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03-25-2007, 10:51 AM
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#1
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Senior Member
Join Date: Feb 2007
Location: Suwanee, Georgia.
Posts: 56
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Eric, I finished my first dose of Xeloda (14 days) and I am also on Tykerb daily. I have not had any problems yet with my hands or feet. However, I have always soaked them and done my own manicures and peticures for years and keep them well moisturized. I coach girls basketball and fast pitch softball so I am constantly in tennis shoes.
The only side effects thus far are sores in my nose, nose bleeds not to often..and breakouts on my face. I will be seeing a dermatologist for this.
My doses are in my signature. I hope that this will keep my cancer at bay for awhile. My Doctor also told me not to get over heated or purspire due to the drugs seeping out of my pores. No walking for long periods, which is a bummer because, I do the Atlanta2Day breast cancer walk every year (35 miles).
Please keep us posted on Caryn's progress.
God Bless and Hugs. Betty
__________________
1/2002 DX stage IIa IDC er/pr+ her2 3+ positive: insitu ductal carcinoma right breast, 3cm 8 node removal all neg;lumpectomy;4 rounds A/C; 33 rads
tamoxifen
4/2004 DX Local Reacurrance; er/pr+ her2 3+ positive; nodes 9 of 12 positive largest 1.5 cm; 28 rads;stopped tamoxifen;went on Femara/lupron
8/2004 DX Local Reacurrance; er/pr+ her2 3+ positive; dbl mas reconstructive surgery w/tran flap; no chemo or drugs
11/2005 DX Local Reacurrance; er/pr+ her2 3+ positive; Taxol/Herceptin 1x weekly for 12 weeks; Herceptin for 9 months 1x 21 days
12/2006 DX Local Reacurrance; er/pr- her2 3+ positive; Her 2 rechecked with FISH her2+++ er/pr-
3/9/07 Started Tykerb (Lapatinib) 1250 mg/once daily
Xeloda (Capecitabine 2000 mg/m2/daily 1-14 every 21 days
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03-26-2007, 08:09 AM
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#2
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Member
Join Date: Mar 2007
Location: Shadyside, Ohio
Posts: 10
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I just finished my first 2 weeks of the Xeloda, today is my first day off of it. I don't like taking the Xeloda at all. I have been very sick for the whole 2 weeks. My stomach aches, lots of diarrea and I have been really tired. I haven't had an appetite either.
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03-26-2007, 09:44 AM
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#3
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Senior Member
Join Date: Feb 2007
Location: Suwanee, Georgia.
Posts: 56
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Holly,
I'm so sorry to hear that you are not handeling Xeloda well. What is the disage you are taking? It is my understanding from all the posts I have read here that your Doctor can lower the dosage if you are having a difficult time. When do you see your Onc again? Are you on any other medication?
Please give us more details and information so maybe, we can help you better.
((((((((HUGS))))))))
Betty
__________________
1/2002 DX stage IIa IDC er/pr+ her2 3+ positive: insitu ductal carcinoma right breast, 3cm 8 node removal all neg;lumpectomy;4 rounds A/C; 33 rads
tamoxifen
4/2004 DX Local Reacurrance; er/pr+ her2 3+ positive; nodes 9 of 12 positive largest 1.5 cm; 28 rads;stopped tamoxifen;went on Femara/lupron
8/2004 DX Local Reacurrance; er/pr+ her2 3+ positive; dbl mas reconstructive surgery w/tran flap; no chemo or drugs
11/2005 DX Local Reacurrance; er/pr+ her2 3+ positive; Taxol/Herceptin 1x weekly for 12 weeks; Herceptin for 9 months 1x 21 days
12/2006 DX Local Reacurrance; er/pr- her2 3+ positive; Her 2 rechecked with FISH her2+++ er/pr-
3/9/07 Started Tykerb (Lapatinib) 1250 mg/once daily
Xeloda (Capecitabine 2000 mg/m2/daily 1-14 every 21 days
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03-28-2007, 08:51 AM
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#4
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Member
Join Date: Mar 2007
Location: Shadyside, Ohio
Posts: 10
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Betty, thank you very much for the hugs. I will see my onc. on thursday when I get my Herceptin. I will see if he can lower my dosage, but the last time I asked him if it was too much, he said that I am on this much due to my weight and body mass. I am taking 2,000 mg twice a day. I can actually say that besides the hair loss, I liked the carboplatin and taxotere better than the Xeloda. I have also taken Gemsar, but my counts had always gotten too low while taking that so he took he off. I tell you the truth, I really don't know how much more I can take of this if this is what I'm going to feel like all of the time. I get the Herceptin every week but I do go next week for an echo to see if I can do it every three weeks.
I would also like to thank all of you for your help in everything. This is the best site in the world. I am soo glad that I got up-to-date and broke down and got a computer. I just wish I had it when all of this started 2 years ago.
Holly
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03-28-2007, 10:11 PM
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#5
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Senior Member
Join Date: Feb 2007
Location: Suwanee, Georgia.
Posts: 56
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Holly, you are more than welcome...Please keep us informed about your treatment and let us know hoe the onc appointment goes.
God Bless and think positive, that's the key in getting through this 
Betty
__________________
1/2002 DX stage IIa IDC er/pr+ her2 3+ positive: insitu ductal carcinoma right breast, 3cm 8 node removal all neg;lumpectomy;4 rounds A/C; 33 rads
tamoxifen
4/2004 DX Local Reacurrance; er/pr+ her2 3+ positive; nodes 9 of 12 positive largest 1.5 cm; 28 rads;stopped tamoxifen;went on Femara/lupron
8/2004 DX Local Reacurrance; er/pr+ her2 3+ positive; dbl mas reconstructive surgery w/tran flap; no chemo or drugs
11/2005 DX Local Reacurrance; er/pr+ her2 3+ positive; Taxol/Herceptin 1x weekly for 12 weeks; Herceptin for 9 months 1x 21 days
12/2006 DX Local Reacurrance; er/pr- her2 3+ positive; Her 2 rechecked with FISH her2+++ er/pr-
3/9/07 Started Tykerb (Lapatinib) 1250 mg/once daily
Xeloda (Capecitabine 2000 mg/m2/daily 1-14 every 21 days
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03-29-2007, 06:21 AM
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#6
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Holly
Maybe talk to your onc. about reducing the dose of Xeloda...the new guidelines show that 2500 mg a day are just as effective without all the nasty side effects. That is the dose I am on and the side effects are minimal.
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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03-29-2007, 08:40 AM
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#7
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Senior Member
Join Date: Sep 2005
Location: Riverside, CA
Posts: 484
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Eric, I was on Xeloda 3 years ago for liver mets, and my dosage was reduced to 2000 mg a day. The hand/foot syndrome was relieved and yet I still saw great results in my liver mets.
So you can adjust the dosage a bit if Caryn is having a hard time side effects. Keep your onc in the loop and play with the dosage as needed.
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