HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Today's Posts

Reply
 
Thread Tools Display Modes
Old 03-20-2007, 06:55 PM   #1
Joe
Webmaster
 
Joe's Avatar
 
Join Date: Feb 2005
Location: Home of the "Flying Tomato" Carlsbad, CA
Posts: 2,036
Images: 5
Member Help Needed

Several of you have emailed me recently to tell me that our message boards had stopped emailing you replies to posts. I suggested some corrections.

What has worked ??

Regards
Joe
__________________
A Proud webmaster to the internet's most informed, educated, COMPASSIONATE and caring group of breast cancer survivors.

Illegitimi non carborundum


My Album
Joe is offline   Reply With Quote
Old 03-20-2007, 06:56 PM   #2
Jackie
Senior Member
 
Jackie's Avatar
 
Join Date: Mar 2006
Location: (Hill Country) Texas
Posts: 72
Please send me what to do to correct this. I too have not been receiving the emails.
__________________
Jackie
Stage II, Grade 2, DX 4-05
EP +, HER2 +++,
1 node+, 1.6cm
46 yrs. old at time of dx.
Completed Chemo 11-05
Completed 1 yr. Herceptin 8-06
Jackie is offline   Reply With Quote
Old 03-20-2007, 07:08 PM   #3
Liz J.
Senior Member
 
Liz J.'s Avatar
 
Join Date: Dec 2005
Posts: 274
Question Perfect timing

Hi Joe,

I would have sent a private e-mail, but if this sounds really duhhhh!!! atleast it will give everyone a laugh. Whenever I reply to a post I get an e-mail from everyone who replies after me. I know I am doing something wrong as there is always a check mark telling me I am subscribed to this thread. I don't mind getting the e-mails but always wondering what I am doing wrong. I don't see the check mark next to anyone else's replies. Ok. Maybe I am going senile, but in the meantime any advice.

Thanking you in advance.

Liz J.
Liz J. is offline   Reply With Quote
Old 03-20-2007, 07:41 PM   #4
Jean
Senior Member
 
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
Hi Joe,

Thank you for the follow up...nothing has worked for me and I can't seem
to get the system to send the emails to me.

Regards,
jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
Jean is offline   Reply With Quote
Old 03-20-2007, 08:21 PM   #5
Marlys
Senior Member
 
Marlys's Avatar
 
Join Date: Oct 2005
Location: Boise, Idaho
Posts: 758
Joe,
I finally started looking in the junk mail folder and there the replies are. I have added them to my safe list but so far must do it every time. Don't really mind though as I check in frequently.
Marlys
Marlys is offline   Reply With Quote
Old 03-21-2007, 01:35 PM   #6
Joe
Webmaster
 
Joe's Avatar
 
Join Date: Feb 2005
Location: Home of the "Flying Tomato" Carlsbad, CA
Posts: 2,036
Images: 5
I may have solved the problem: Need Feedback !!


Working or not ?

Regards
Joe
__________________
A Proud webmaster to the internet's most informed, educated, COMPASSIONATE and caring group of breast cancer survivors.

Illegitimi non carborundum


My Album
Joe is offline   Reply With Quote
Old 03-21-2007, 03:56 PM   #7
rinaina
Senior Member
 
rinaina's Avatar
 
Join Date: May 2006
Location: northshore suburb of chicago
Posts: 1,093
Images: 2
Not Working For Me. Can You Post What To Do Again, Never Received Any Instructions The First Time Yoiu Posted Them. Thank You. Glad It Wasn't Just Me.
__________________
~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
rinaina is offline   Reply With Quote
Old 03-21-2007, 04:00 PM   #8
Chelee
Senior Member
 
Chelee's Avatar
 
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
Like Marlys already said, I was finding all mine in the "Junk Mail" folder of my yahoo account. So I would hit the "Not Spam" buttom which is SUPPOSE to correct the problem and forward them to my *Inbox*. But this has went on for a couple weeks so I just to go into my "Junk mail". I check that account often so I am safe. Although I have never had this problem when you hit the "not spam" button and yet it continues to go to junk mail? (I knew in time all things would be worked out...I have faith.)

Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
Chelee is offline   Reply With Quote
Old 03-21-2007, 04:35 PM   #9
tousled1
Senior Member
 
tousled1's Avatar
 
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
Still not working for me.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
tousled1 is offline   Reply With Quote
Old 03-21-2007, 05:03 PM   #10
Joe
Webmaster
 
Joe's Avatar
 
Join Date: Feb 2005
Location: Home of the "Flying Tomato" Carlsbad, CA
Posts: 2,036
Images: 5
Still not working?
__________________
A Proud webmaster to the internet's most informed, educated, COMPASSIONATE and caring group of breast cancer survivors.

Illegitimi non carborundum


My Album
Joe is offline   Reply With Quote
Old 03-21-2007, 05:05 PM   #11
CPA
Senior Member
 
Join Date: May 2006
Posts: 93
Joe,

Mine are also going to my junk box. They previously were getting through - I did not change any settings recently...

-Rich
__________________
Husband to Jill
Diagnosed 10/05, age 39
R Mast 11/05
Stage II N0
Her2+ er/pr+
Revision Mast due to positive margins 12/05
TCH Chemo started 1/06
Finished TC 4/06
Tamoxifen
Finished H 12/29/06
Currently NED
CPA is offline   Reply With Quote
Old 03-21-2007, 05:22 PM   #12
Andi
Senior Member
 
Join Date: Mar 2006
Location: IOWA
Posts: 243
I receive some, but not all of the replies.
__________________
Andi
-- ------------------------
Stage IIIC, 17 of 20 Nodes +, E+, Her2+++
Diagnosed 6/30/05
Lumpectomy 7/13/05
Dose Dense A/C x 4
Weekly Taxol + Herceptin x 12
Remainder of year Herceptin Every 3 weeks (completes 9/13/06)
Radiation completed 2/28/06
Currently on Tamoxifen
Dec 06 - Pleural effusion treated with pleurodesis
Now er/pr-, her2++
1/07 started weekly Navelbine plus Herceptin
Discontinued Tamoxifen
4/27/07 CTshowed progression
5/01/07 Began Tykerb/Xeloda + Zometa
5/22/07 Stopped treatment due to great progression
Andi is offline   Reply With Quote
Old 03-21-2007, 08:00 PM   #13
tousled1
Senior Member
 
tousled1's Avatar
 
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
As of now everything is working fine.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
tousled1 is offline   Reply With Quote
Old 03-22-2007, 12:33 AM   #14
Grace
Guest
 
Posts: n/a
Joe,

I found that the replies are being directed to a junk file by Yahoo. It's not the junk file on my computer but the general junk file on the Yahoo site. I can't figure out how they decide which is junk-junk (where the HER2 replies are going) and plain old junk--all those emails telling me about the fortune I have waiting if I would only come and pick it up. Maybe the same is true for anyone else using Yahoo.
  Reply With Quote
Old 03-22-2007, 08:38 AM   #15
Marlys
Senior Member
 
Marlys's Avatar
 
Join Date: Oct 2005
Location: Boise, Idaho
Posts: 758
They are coming through fine for me.
Thanks,
Marlys
Marlys is offline   Reply With Quote
Old 03-22-2007, 08:56 AM   #16
Soccermom
Senior Member
 
Soccermom's Avatar
 
Join Date: Jun 2006
Location: Bradenton,FL
Posts: 977
Working for me,Joe..Thanks!
Soccermom is offline   Reply With Quote
Old 03-23-2007, 04:49 AM   #17
DonnaD
Senior Member
 
DonnaD's Avatar
 
Join Date: Sep 2006
Location: Marengo, IL
Posts: 518
Joe,
You have fixed the problem for me. I got the last two
e-mail post on a thread I started. Did not receive the first four. Thanks, you do an great job taking care of us.

PS My husband and I will be helping Sheila with the booth at the IL Day of Sharing on Sunday.
__________________
Donna
Crystal Lake, IL
Diagnosed 8/4/06 at age 54
Lumpectomy 8/30/06
Stage llA, grade 3, ER/PR-, Her2++
1.7 cm tumor, 1+ lymph node out of 9
Completed 4 A/C, & 4 Taxol with Herceptin
36 rads completed 5/16/07
Mammograms, 7/07 clear
fractured ribs in radiated area 10/07
Finished Herceptin 12/27/07
Mammogram,CT,tumor markers 1/08 - small lung nodules in radiated area, repeated tests 3/08 stable
Mammogram,CT ,tumor markers 6/08 stable
NED 2 years!!
3 years !!!
4years!!!!
4 years, 10 months and 8 day NED, calling it 5 years!!!
Official 5 years 8/30/2011
8/31/ 2012 - 6 years!!!!!!
DonnaD is offline   Reply With Quote
Old 03-24-2007, 05:52 AM   #18
VirginiaGirl
Senior Member
 
Join Date: Oct 2006
Location: Fredericksburg, VA
Posts: 93
I have Hotmail and wondered why I had stopped getting the one email for a reply to post. I noticed today there was a reply to post in my junk mail, which I rarely remember to check. I will now. I also missed the original post on how to fix this problem. Thanks for your help.
__________________
Liz
3/05 Initial dx invasive dc 2 cm lump, age 39
lumpectomy & 3 of 5 nodes +, ER+/PR+, Her2+++
alternative chemo 5/05-7/05, rad 8/05-10/05
7/06 dx mets to vertebrae, pelvis & chest lymph nodes
8/06 - 10/06 tamoxifen, herceptin, oophorectomy & zometa
11/06 PET/CT showed continued bone mets, new spot on liver
12/06 began taxotere/herceptin 1x/3 weeks,
2/07 - 2-08 NED!
3/08 progression, start taxol/herceptin weekly, monthly zometa
8/08 start ai & herceptin
12/08 - progression, start weekly navelbine/herceptin thru 6/09 & monthly zometa
7/09 - PET/CT showed improvement in spine, but 2-3 lymph nodes in chest became active
9/09 - 11/09 - weekly abraxane/herceptin
12/09 - PET/CT - chest lymph nodes resolved, progression in spine & pelvis
2/10 - 6/10 - start tykerb/xeloda, progession in spine & pelvis
7/10 - start taxotere/carboplatin/herceptin

VirginiaGirl is offline   Reply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 10:20 PM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2024, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter