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Old 01-20-2007, 10:09 AM   #1
Linda2
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Pain in breasts

I finished my last herceptin treatment in December. Now, I am noticing shooting pains in both my breasts. I can't really describe the pain, other than they shoot across the breast.

Is this something I should be concerned about? MY left breast cancer was found during a routine mammogram. It was 2.5 cm, but you could not feel it because it was so deep next to my chest wall. Now, I am wondering if it is coming back in both breasts. I did have radiation on the left breast and a port on the right side. I don't know if this is just scar tissue pain or what.

Thanks in advance for any advice. God bless you all!
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Linda2

DX 6/2005
Stage IIA, Grade I
ER/PR +, HER2 +++
Lumpectomy on Left breast 7/2005
No lymph nodes involved
4 cycles of A/C
12 weekly doses Taxol and Herceptin
33 Rads
Herceptin for one year ended 12/2006
Femara for 5 years
NED as of now
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Old 01-20-2007, 10:18 AM   #2
tricia keegan
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Radiation induced fibrosis?

Linda I've had a similar problem and also itch/soreness and a hard area

around the surgery site.
I finished herceptin Novenber and rads last April and my surgeon just confirmed it's radiation induced fibrosis.
It seems if you had a "boost" which I did you're more at risk of this and it can sometimes last years!
I was just so relieved it was'nt a local recurrance I felt I could live with anything else.
Maybe this is what you have too?
Tricia
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Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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Old 01-20-2007, 10:45 AM   #3
Colleen007
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I had the same shooting pains in my right breast over Thanksgiving and my oncologist thought it was just the nerves regenerating (even a year after my lumpectomy). I also had a PET scan at the beginning of this month which confirmed that it was nothing to worry about.

If you haven't had a scan or mammogram recently, maybe your oncologist could request one just to give you peace of mind.
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Diagnosed 10-03-2005 (34 wks pregnant, 38 yrs old)
Lumpectomy Nov-2005. 10/18 Lymph Nodes impacted
Mets to liver, spine & femurs (thus being stage IV right from the get-go)
ER-, PR-, HER2+
Taxol/Herceptin/Zometa started Dec-2005. 11 cycles of Taxol.
Sept-2006: PET/CT scan of mets to liver, spine and femurs - Stable. Activity in R breast & mediastinum (not seen in prior scans).
Navelbine (3 wks on/1 wk off) as of Oct--2006 & continued Herceptin (every 3 wks) & Zometa (every 6 wks)
Jan-2007: PET/CT Scan - Stable. Continued Nav. through March-2007, then Herc./Zom. only after that.
June-2007: PET/CT Scan - activity in mediastinum. Back on Navelbine as of July-2007.
Scanned Quarterly since Oct-2007 - a few small scares, but otherwise stable due to continuing weekly Navelbine, Herceptin and Quarterly Zometa.
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Old 01-20-2007, 11:18 AM   #4
Patb
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Linda2

My breast is sore and shooting pains also. The Dr. said this could go on for a
year due to radiation boost and regenerating of the nerves where they were cut.
I had lumpectomy on 1.7 cm. in left breast, stage I, ER+, PR- Her 2 positive
4 A/C's every three weeks, no other chemo since Nodes were negative, then
33 radiations with 5 boost. Now on hercetin and Amimidex.
Patb
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Old 01-20-2007, 09:26 PM   #5
Bev
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I get pings and pangs in my breast and underarm when I move certain ways. I assumed it was nerve cell healing as I felt similiar pangs in my abdomen after a C-Section quite awhile afterwords.

Still, bring it up with every doc you see as part of follow up.

Best wishes, BB
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Old 01-21-2007, 09:12 AM   #6
Joy
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Linda, femara...

can cause that too. I have experienced a lot of weird breast stuff depending on my hormonal situations e.g. chemopause and going on and off AI's. Just a thought.
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joy

dx stage I 2/2000*er/pr+; her- per IHC*lumpectomy*4 rounds A/C*30 rads*tamoxifen*dx stage 4 5/2002*huge mets to liver*tiny mets to lungs*stopped tamoxifen*5/02 taxotere/xeloda*her 2 checked with FiSH-her2+++herceptin *2/03 stopped chemo femara w/herceptin*zolodex*04 switched to aromasin w/herceptin*05 high estrogen tx*11/05taxol/carbo*7/06 stopped chemo; megace/herceptin*9/06navelbine/herceptin*5/07tykerb/xeloda great response*4/08 progression in liver; ooph/ faslodex /herceptin
6/08 began Herceptin DM-1
9/08 progression
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Old 01-21-2007, 10:25 AM   #7
Jean
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Glad you posted this!

Linda,
I have had strange feelings in breast on and off nothing that lasts too long.
But all the same they are there and when ever we feel aches etc. in the breast it causes us to stop in our tracks.

It was interesting to read the posts here. I have been experiencing a lot
of itchy skin reaction to both breasts esp. after having herceptin treatment. I notice just about the 2nd or 3rd day it starts and lasts for a good 10 days.
Just when I start to feel normal - it is time for another herceptin treatment.

Regards,
Jean
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Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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Old 01-21-2007, 11:29 AM   #8
Linda2
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Location: Millstadt, IL
Posts: 19
Thank you all for your replys. I do feel better knowing that I am not alone. The pain has stopped now, and I am wondering if it is from the Herceptin or the Femara.

I am going to talk to my onc when I see her next, just to be sure. It seems that now that I am off the Herceptin, I think that every pain I have is the cancer coming back.

I need to live my life and not let this cancer overwhelm me. Thanks to you all.
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Linda2

DX 6/2005
Stage IIA, Grade I
ER/PR +, HER2 +++
Lumpectomy on Left breast 7/2005
No lymph nodes involved
4 cycles of A/C
12 weekly doses Taxol and Herceptin
33 Rads
Herceptin for one year ended 12/2006
Femara for 5 years
NED as of now
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