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12-02-2006, 07:17 AM
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#1
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Senior Member
Join Date: Nov 2005
Location: London, Ontario Canada
Posts: 29
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Clincal trial is working!
Hi Ladies!
I am on a clincal trial herceptin/omnitarg. I completed two cycles and did a scan the tumor they were measuring for the study was stable! The other tumor not measuring for the study, but they did anyway, actually got smaller!!
My liver was clear a few months ago, but this scan the contrast couldn't be used and the pictures were unclear, doc thought to his eye it was fine, but next time an IV team will have to get the contrast in....
So, I continue on for 2 more cycles and then another scan. On this trial, I have MUGA scans very often...I am glad I qualified and it is giving me a very good QOL as well as results!!
I am in Canada BTW. Thinking of you all, and reading the boards alot!
Robyn
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12-02-2006, 08:04 AM
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#2
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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Robyn,
Glad to hear the good news! It's amazing how many women on this board have been or are in clinical trials all with seemingly good results. You lead the way for the rest of us. You are to be admired. Hope your scans continue to show improvement.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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12-02-2006, 03:32 PM
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#3
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Thanks for posting - I am always encouraged to hear of successful new studies! I hope this continues to work well for you!
Chris
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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12-02-2006, 10:18 PM
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#4
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Senior Member
Join Date: Dec 2005
Location: Alexandria, VA
Posts: 1,055
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Robyn, Thanks for participating in the trial. Keep us updated, Thanks , Bev
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12-03-2006, 07:22 PM
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#5
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Senior Member
Join Date: Nov 2005
Location: Lincoln, Rhode Island
Posts: 371
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Robyn,
I am so happy!!!!!!!!!!!!!!!! Keep up the good work, what a great way to start the holiday season!
__________________
Love and Hope
Karen
IDC
DX 1998 STAGE I ER+/ PR+
AC CHEMO TILL FEB 1999
Tamxofin till 2001
2001 exstensive liver mets and mets to lungs
Started weekly taxol
Jan 2002 found out I was strongly HER2POS+++ started herceptin continued with taxol and herceptin till June 2002 then from June 2002 till Jan 2005 just herceptin and Arimidex
2005 Navelbine herceptin had RFA Then back on taxol with herceptin
April 2006 progression again went on clinical trial with tykrerb/herceptin progressed on the started Xeloda/ herceptin
Feb 2007 started Doxil
August 2007 Taxotere,Carboplatin and Herceptin exstensive mets to liver and pancreas
October 2007 Had to stop Carboplatin due to sever allergic reaction
Jan 2008
Stopped Taxotere due to progression now on Gemzar and Herceptin
March 2008 Starting Carboplatin, Abraxane, and Herceptin.
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12-04-2006, 09:09 AM
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#6
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Senior Member
Join Date: Jul 2005
Location: Ft. Collins, Colorado
Posts: 546
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yes, thankk you
Thank you so much Robyn for participating in this trial AND for sharing such great news. I'm thrilled for you and am sending you all the vibes for continued improvement. It is very exciting.
__________________
with love and gratitude,
joy
dx stage I 2/2000*er/pr+; her- per IHC*lumpectomy*4 rounds A/C*30 rads*tamoxifen*dx stage 4 5/2002*huge mets to liver*tiny mets to lungs*stopped tamoxifen*5/02 taxotere/xeloda*her 2 checked with FiSH-her2+++herceptin *2/03 stopped chemo femara w/herceptin*zolodex*04 switched to aromasin w/herceptin*05 high estrogen tx*11/05taxol/carbo*7/06 stopped chemo; megace/herceptin*9/06navelbine/herceptin*5/07tykerb/xeloda great response*4/08 progression in liver; ooph/ faslodex /herceptin
6/08 began Herceptin DM-1
9/08 progression
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12-04-2006, 02:22 PM
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#7
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Senior Member
Join Date: Feb 2006
Location: Watkinsville, Georgia
Posts: 356
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That is great news! I love to see a happy post....this may be a dumb question but what is omnigard? This is the first I have heard of this.
__________________
[/SIGPIC]~~~~~~~~~~~~~~~~~~~~~~~~~~~
Diagnosed 6/03 nursing daughter
Dose dense A/C 4x
Modified rad mast 8/03
IDC; 3 cm; 10+/16 nodes; ER/PR-; Her2+++
Weekly taxol w/Herceptin (off label) 12x's
40 weeks Herceptin
Radiation 33x
Reconstruction w/ implants 05 & 07
NED
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12-04-2006, 02:31 PM
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#8
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Senior Member
Join Date: Nov 2005
Location: London, Ontario Canada
Posts: 29
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Omnitarg is similar to Herceptin. It is a targeted therapy. If you search this site, someone put a wonderful description of how it works. It is supposed work well along with Herceptin. So far, so good!
Robyn
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12-04-2006, 07:59 PM
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#9
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Senior Member
Join Date: May 2006
Location: northshore suburb of chicago
Posts: 1,093
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That's great news and hopefully it will continue to help and work. We need to hear this kind of encouraging news more often.
__________________
~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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