Who has chemobrain and how does it affect you and When did it start ? has it ended??

[kat in the delta]

I think nobody knows the effects of Herceptin, and I don't know if anyone is researching it. Maybe we can start one on this site since this is the only site I know for Her2 people only.........I will post another new link to take a poll.
I also just had my 2nd dose of Zometa after the one yr. of Herceptin had ended this last August"06. I hope I will remember to complain enough to run a PET scan. Will that get my BRAIN, too?? anyone know ???
I haven't looked at the side effects of THAT drug, a biophosphamate for building my bone density. My Onc. gave it to me because I was complaining of my bones aching and my bone density test showed my hips were a -2.5=(if one part is osteoporosis then you are considered having Osteop)
Thanksgiving for me was a nightmare....I tried to make it simple....salad, meat, veg., fruit....Then my dear mother brought about 8-10 more dishes ....everyone left, and all I could do was STARE at the mess and leftovers...not able to organize ANYTHING even to put the food into my refrig.!! Then, a new maid did not show up the next day as planned, & hasn't appeared yet ....Another horror yesterday afternoon occurred when my youngest son in college told me he had invited a new girlfriend who was already on her way here from Austin, TX.....and everything in chaos and dogs had used rr on floor .........I left the house for about 2 hours before she arrived...I just could not take it !! I met her then, he took her to Oxford, MS for the rest of the weekend.... He did put JUNK in containers and piled them in one of the messier 2 bedrooms where I sleep--no sheets....Will things get better ?? Everyone just gets Mad at ME...I better look for that book now...................kat in the MS delta

[R.B.]

Omega three it is suggested can also improve bone density.

See Greek Diet post.

I wish for you that it all starts getting better soon.

RB

[Bev]

Kat, please see your onc or somebody. I'm worried as you are normally upbeat. There has to be something they can do. You have to tell them how you are feeling first so they can make a reccomendation. I may do the bulk of Tday dinner, but there is no reason why hubby and kids can't help out. The group endeavor is what makes it pleasurable. No one should have to feel distraught. It's your right to find a way to fix this. My kids are still kind of lazy, but my husband washes dishes which is only fair.

I've had a cleaning lady come twice and it's help me focus on things I need to throw out. Maybe you also need to lower your cleanliness standards. It might you feel better. I have and the earth still revolves around the sun. I wouldn't eat off my floor though.

Recently I read an article that suggested chemo changes how your brain functions. Use what's left to fix your problems and not clean the house. The extent of my problems is that I walk into rooms not knowing why I went there. But I figure it out eventually. I never was the sharpest tool in the shed, so being a hair duller hasn't mattered.

I just think you have to do something, get the ball rolling, as you are not happy with the status quo.

[kat in the delta]

I did tell my Onc...when I told him my husband would not take me anywhere or let me sleep with him, HE immediately made me an apt with the only neurologist.
I went to the apt--45min. late,...I was trying to get a life history into 5 min....so he MUST have thought I was Manic.....so he gave me this med. to cut off the manic of a" bipolar disorder", which would turn me into Rip Van (?)....I have read some recent transcripts from telconferences and other med.articles---sent Them to my sister who printed copies for me-- One was a teleconference with a Dr. Glasper... know him?.....Anyway, he said to first check to see if you are anemic( I am not). Then he said he gives patients...a similar RX like Ritalin to help them focus on one thing at a time....
Today was distrastrous...couldn't find receipts, coupons to go with sister and mother out of town to shop & take things back...got very frustrated & upset with my state of confusion..... I couldn't go.
My sis. called back and said I just HAD to show that neuro. DR.or another MD. the articles she had printed out about chemobrain and the after effects of some treatments. She thinks I should try Ritalin or similar RX.
Then, my sons came in telling me to act normal and stop the writing-myself notes bit, saying I was finished with my treatments,& nothing was wrong with me now, and that I did NOT need to e-mail or be in any Cancer type Support group on the internet or anywhere because I did not have cancer, anymore ! The youngest,23, said he was breaking the computer...then they left.. They do not see the point of having a support group...even the one finishing Law School who is usually more sympathetic told me that I only I need to have a blood test every now and then...( My Onc does the CA 27 &29)
I could go on.. MY QUESTION TO ALL OF YOU IS:
HOW can my sons understand that I need a support group, and the YOU help me ??? kat

[kat in the delta]

Thank you Bev....you are very kind.....Look at down to the last thing I wrote before this...kat