9 YEARS ago today...
I was at Swedish Cancer Hospital undergoing a bilateral mastectomy and sentinel node biopsy. My prognosis was fair, even though I had an early stage cancer...it was Her2 +++. In "those days" early stage bc was not eligible for Herceptin. I had an oncologist who had been involved in Herceptin trials and knew that if it was working in advanced stages of bc then it would definitely be advantageous for early stage breast cancers.
She was oh so right!!! In these last nine years I have traveled around the country, mostly living in an RV enjoying the sights and meeting a wide variety of incredible people. I have been blessed with 2 amazing grandchildren. The list of experiences range from cross country skiing in Yosemite, snowshoeing the Olympic Mountains, riding a snowbike from the top of Angel Fire in northern NM, torch light parade in Taos NM, hiking in Death Valley, Mt, Rainier's amazing wildflower bloom,rafting the RogueRiver in Oregon, flyfishing, stand up paddle boarding, swamp buggy into the Everglades, birding trip to the Dry Tortugas, kayaking Kachemak Bay, AK...
I could go on and on and that is exactly what I intend to do!
None of this would have been possible without Herceptin!
I want to thank my incredible partner, Bette for her care and companionship. My medical team!! The amazing support of this Her2 Forum!!
This is a wonderful day!!!
__________________
Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year
as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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