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Old 07-19-2007, 07:06 PM   #1
Alice
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Smile Good news!
I don't post very often, I do respond at times. I just wanted to share with all of you, as you keep me grounded and I have benefited from many of the posts, some good news. I am 1 yr 6 months out of treatment and I had a lump that I was concerened about. I just saw my surgeon yesterday and he did an ultrasound which confirmed that what I was feeling was scar tissue from my surgery. I also had a Mamogram, on the non operation side, prior to seeing him and it was A-1. Which is the best you can get! Also I had been in a study with therapies that were not the normal therapies, and out of all the women that were in the study, we are all NED. I don't expect any replies from this post, I was just so excited by my visit with him that I had to share. If you know anyone that is just starting on this journey, you can let them know that there is hope!
Alice
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Old 07-19-2007, 07:18 PM   #2
Andrea Barnett Budin
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Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW...
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Wink I Just Love When It's Scar Tissue
GREAT NEWS, ALICE. Thanks for sharing it. We love good news. I often hear it's scar tissue, and I cheer each time. Who cares? This sharp gasping pain in my side that I've had for yrs, they tell me it's scar tissue. I'm happy, with the pain. I get ev 6 mnth transvaginal pelvic sonograms to be told my ovaries are beautiful (just checking) and I'm happy. And no one sees anything in my CT scans, chest/abd/pelv.

So what is this unusual treatment that has all the women NED?? Pray tell us, Alice. I think we'd all be interested in knowing. Good to hear from you. Keep on posting. It's good for the Soul -- yours and ours. ANDI
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'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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Old 07-19-2007, 08:01 PM   #3
Alice
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Well I just replied to your last post on your friend. I hope you get It. I supose I should update my signature since it was just starting, when I joined, to have diagnosis and treatments on after my name.
I HAD stage 3 IDC multifocal w node envolvment
I had neo-adjuvant chemotherapy, surgery, radiation
4 x dose dense AC
3 weeks of Carboplatin, Taxol, Herciptin with 1 week Herceptin alone for 4 months. Then surgery,then 35 radiation treatments.
At the time Carboplatin was being used for stage 4 only and they were not giving the Herceptin along with chemo as much.
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Old 07-19-2007, 08:31 PM   #4
Vanessa
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Always great to hear good news. I am praying that you remain NED!
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Old 07-20-2007, 07:52 AM   #5
suzan w
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Wink
thanks for posting your good news. I love to hear about when our fears turn out to be something 'normal'! My last fear was a "pimple-like' thing on my scar line...convinced it was bad...you all know the drill!!! it WAS a pimple...go figure!!!
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Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year

as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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Old 07-20-2007, 01:14 PM   #6
Chelee
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Alice, Its ALWAYS great to hear good news. That is just fantastic! It must of been a big relief to find out that was only scar tissue. Yeah! May you and NED remain a happy couple.

Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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