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06-07-2006, 11:36 AM
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#1
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Senior Member
Join Date: Feb 2005
Location: LI, NY
Posts: 660
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day three for madubois63
It's raining, so no nice view today. I had the Hickman port put in late yesterday afternoon. They decided my platelets were to low and had to give me another transfusion before they put me under. when I got back to the room, they gave me more blood and then started the chemo. Daunorubicin is in the Adriomycin family. It comes in a "Flintstones" syringe and it's red. There goes my freshly grown new hair - oooh well. There are worse things. Anyway, then I got the Cytarabine - it is a 24/7 drip. I'm a little queasy, but get Ativan and tons of other preventive med's. Had visitors and got my trusty computer, so it's not so bad yet. Thank you for all the prayers and well wishes. I think they are working. My very serious new doctor told me he got a PRELIMINARY report on the fluid in my lungs and at first glance they did not see any active BC. Also, when they removed the fluid, I heard someone ask "what color?" Someone else said CLEAR!!! God, I hope the report comes back the same. Keep praying for me! I feel the love and light and just can't thank you all enough!!!
..·´¨¨)) -:¦:-
¸.·´ .·´¨¨)) -:¦:-
((¸¸.·´ ¸.·´ -:¦:- -:¦:-
-:¦:- ((¸¸.Maryann -:¦:-´´
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06-07-2006, 11:55 AM
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#2
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Senior Member
Join Date: Mar 2006
Posts: 87
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We'll keep praying that the wonderful preliminary results are borne out. It's always great to get good news.
Best of everything,
Susan
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06-07-2006, 12:05 PM
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#3
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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You are still lucid!
After more drugs with tongue-twister names. These posts could be very valuable for someone else who might someday join in your diagnosis. If it is rainy, it will be cooler there hopefully. At least the air conditioning always works in hospitals!
It struck me that here is the great value of the new targeted therapies and vaccines - this terrible side effect will not be there.
Wishing you peace, rest and a calm tummy.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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06-07-2006, 12:28 PM
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#4
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Senior Member
Join Date: Sep 2005
Location: British Columbia, Canada
Posts: 198
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Still praying for you Maryann!!!!! Here's to clear fluid!!!!!!!!!!!!!!!!!!!
Chin up!!!You're doing it!!
Tammy
__________________
Dx'd Dec'01 while 6mos preg. with #4. child (30yrsold)Mastectomy/AC chemo/radiation/ Recur:Mar'04 liver mets: 3 taxol/herceptin /liver resection/3 taxol/herceptin. Cured?
Recur: May'05 spine & Hip. New onc
treatment in Mexico Feb'06-Mar-06
back to Mexico June/July '06
Currently on herceptin/Zometa/Femara-recently added navelbine
Switched to arimidex Nov'06
ovaries removed June '07
ca15-3 in May'06 was 102
ca15-3 summer of '07 holding steady at 23!
ca15-3 slowly rising Dec & Jan 36, 38, 41 and Feb was 36
Feb '08 Liver, lung & Brain scan NED... bones are stable with even a couple spots gone. as compared with '06 scans
May '08 ca 15-3 is 55. Treatment is zometa, vinorelbine, herceptin and aromasin.
No signifcant changes.
Feb'09 Started Xeloda with herceptin..no more hormonals
Feb'09-June'09 tumor markers coming down again from 155 to 84
May'09 blood clots in lungs vena cava filter put in..Heparin shots daily for now.
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06-07-2006, 01:02 PM
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#5
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Senior Member
Join Date: Sep 2005
Posts: 95
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Maryann,
You are remarkable. Thank you for allowing all of us to be there with you.
We are all rooting hard for you.
Cynthia
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06-07-2006, 01:13 PM
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#6
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Senior Member
Join Date: Nov 2004
Location: Indiana
Posts: 123
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I check every day for your posting. Please continue as long as you are able. You don't know how many people you are encouraging. Patty H
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06-07-2006, 01:40 PM
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#7
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Senior Member
Join Date: Sep 2005
Location: Newton, MA
Posts: 951
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I ditto what Patty has to say. I am thinking of you everyday, Maryann. I am hoping for the best.
Barbara H.
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06-07-2006, 01:44 PM
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#8
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Senior Member
Join Date: Feb 2006
Posts: 1,014
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Hi Maryanne, I have been thinking and praying for you a lot lately. You are such a beautiful lady, I'm sure you won't even miss your hair...stay strong...sherryg683
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06-07-2006, 01:48 PM
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#9
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Senior Member
Join Date: Dec 2005
Location: Walnut Creek, CA
Posts: 438
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Hi Maryanne,
I am praying and I know everybody else is, too. As a matter of fact...I bet you can feel all the love a prayers!!! I am very happy about the fluid from the lungs being clear and probably not from bc!.
Tons of love,
Karen
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06-07-2006, 03:33 PM
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#10
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Senior Member
Join Date: Jan 2006
Posts: 42
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God bless you Maryanne You are so strong. Thanks for keeping us informed I am praying for you. Leslie
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06-07-2006, 05:19 PM
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#11
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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Maryanne, I'm really pulling for you, and and a big YEAH!!! that the lung fluid was clear 
You are our hero.
<3 Lolly |
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06-07-2006, 05:25 PM
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#12
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Senior Member
Join Date: Sep 2005
Posts: 290
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Prayers and good thoughts
Dear Maryann,
Thank you for keeping us so well informed on your progress. The posts are so detailed, I feel like I'm in the room watching and can almost smell that wonderful "hospital bouquet"...lol.
We will continue to pray for you as you bulldoze your way through this latest test of wills with the Beast. After reading one of your earlier posts, I finally decided to check into bone marrow donation, but was rebuffed because of herniated discs in my vertabrae. Who knew? I am still seeking an explanation for that exemption.
Be Good,
Tom
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06-07-2006, 06:06 PM
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#13
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Senior Member
Join Date: Feb 2005
Location: LI, NY
Posts: 660
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Thank you Tom for even looking in to donating. I am sorry about your herniated disc - not only for me, but mostly for you.
To everyone - your posts make me smile ... thank you!!!!
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06-08-2006, 10:22 PM
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#14
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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Hi Maryann, You just amaze me at how strong you are. You truly are a inspiration to us all.
That is great news that the fluid was clear...yeah! There are alot of really strong, and very tough people out there...but you are at the top of that list girl.
I am keeping you in my prayers. I am sending you warm healing thoughts.
Hang tough like you always do.
Chelee
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06-09-2006, 07:28 AM
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#15
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Senior Member
Join Date: Sep 2001
Location: California's Gold Country
Posts: 404
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Maryann,
Just thinking of you and wishing you clear sailing all the way. I know how hard it is to be away from home and family. Thank you so much for your posts. You are truly an inspiration.
Love and BIG HUGS! Kim in CA
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06-09-2006, 12:28 PM
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#16
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Senior Member
Join Date: Sep 2005
Location: Minneapolis, Minnesota
Posts: 127
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Maryanne - Keep kicking this crap in the ass! You have been in my prayers daily!
I check the group daily hoping for updates from you. You have a friend in Minneapolis. Much love - kim
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06-09-2006, 01:12 PM
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#17
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Senior Member
Join Date: Sep 2005
Posts: 49
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Hi Maryann,
I am checking these boards to find out how you are doing every day. Am sending prayers, blessings and hugs to you.
Petesmom
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06-09-2006, 05:41 PM
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#18
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Senior Member
Join Date: Feb 2005
Location: LI, NY
Posts: 660
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day 4...
They took more fluid out of my lung yesterday - that was a surprise, but I was having problems breathing. Feels much better today. I am still uncomfortable from the placement of the Hickman catheter. I finished the "red devil' and have four more days of chemo left. Hopefully that will put me in to remission. I will have to wait until day 14 before they do a bone marrow biopsy to decide if I get more chemo or I get to go home...My diet just changed - no raw anything...including cold cuts, cheese (especially with nuts or herbs), no yogurt. I am tired and it's time to back off the key board. I may write something really scary...Love you all and thank you for the continued prayers....
..·´¨¨)) -:¦:-
¸.·´ .·´¨¨)) -:¦:-
((¸¸.·´ ¸.·´ -:¦:- -:¦:-
-:¦:- ((¸¸.Maryann -:¦:-´´
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06-09-2006, 05:44 PM
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#19
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Senior Member
Join Date: May 2006
Location: Cleveland, Ohio
Posts: 65
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You are so strong and amazing! God bless you. I think of you always.
__________________
Caregiver to mother, Diane
Diagnosed 3/2006 Stage IIB (T2, N2, M0), Her-2+++, Er/PR-, Grade 3
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06-11-2006, 05:38 AM
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#20
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Senior Member
Join Date: Mar 2006
Posts: 306
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Dearest Maryann,
PLEASE, feel free to post/say, what you NEED to say.
Or, if you are uncomfortable with that, I pray you have someone in person you can do that with... or even through direct email.
I admire your most informative reports which are so very helpful in many ways. Yet, I KNOW that there are personal issues you can be dealing with that need an outlet, for your own sake.
Still hoping you are surrounded by compassionate healthcare workers ........
With sincere high regard and the warmest of hugs xoxoxoxox
pattyz
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