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Forum: her2group 03-26-2007, 12:15 PM
Replies: 6
Views: 947
Posted By Steph
I am on a herceptin and lapatinib trial. There...

I am on a herceptin and lapatinib trial. There were two arms to this trial one with just lapatinib and the other is lapatinib given with herceptin weekly. I am stage 4 with mets to my bone and a...
Forum: her2group 03-24-2007, 07:30 AM
Replies: 34
Views: 3,253
Posted By Steph
Mine too was very curly when it came back. ...

Mine too was very curly when it came back. Stayed curly for about 1 1/2 years but after a few cuts it just went away and is now straight. It is darker than it was before. I loved it when it was...
Forum: her2group 03-24-2007, 07:24 AM
Replies: 10
Views: 1,372
Posted By Steph
reconstruction w/implants question??

I have had my reconstruction surgery and am in the process of being expanded. My new dilemma is what kind of implants to get, saline or silicone. My plastic surgeon suggests silicone because of the...
Forum: her2group 01-07-2007, 06:19 PM
Replies: 7
Views: 1,696
Posted By Steph
I didn't get the acne rash until about 2 weeks of...

I didn't get the acne rash until about 2 weeks of taking Tykerb and it started to clear up after about 3 days. Took a little bit before it completely went away...it cleared up a little bit every...
Forum: her2group 01-04-2007, 06:46 AM
Replies: 7
Views: 1,696
Posted By Steph
Hi Pat, I am on the herceptin and tykerb...

Hi Pat,


I am on the herceptin and tykerb trial. Herceptin never gave any real side affects so when I got some they told me they seem to be common in patients on tykerb. I got diarhea(sp ?) in...
Forum: her2group 12-01-2006, 05:35 PM
Replies: 8
Views: 1,611
Posted By Steph
cathy, I have been on tykerb since the...

cathy,


I have been on tykerb since the beginning of Aug., in the trial of tykerb/herceptin. When I was on just herceptin i didn't have any side affects so when I started this trial I feel that...
Forum: her2group 09-16-2006, 03:18 PM
Replies: 2
Views: 1,146
Posted By Steph
Karen, I too had a tumor that was 12cm. ...

Karen,

I too had a tumor that was 12cm. Basically my whole breast... I was breast feeding and was treated numerous times for with antibiotics because they thaought it was a clooged ducked(I was...
Forum: her2group 09-09-2006, 04:14 PM
Replies: 11
Views: 1,502
Posted By Steph
Sandy, I too am on Tykerb...about a...

Sandy,


I too am on Tykerb...about a month now. I had severe diarhea but it hit me the second day, I think it only took a couple days ...maybe a week to work itself out. I feel that like with...
Forum: her2group 08-30-2006, 06:04 AM
Replies: 20
Views: 1,704
Posted By Steph
Sandy, Congratulations! I too am on...

Sandy,

Congratulations!
I too am on tykerb...I pray for all of us that it is the magic bullet!:)

Steph
Forum: her2group 08-03-2006, 11:43 AM
Replies: 4
Views: 1,833
Posted By Steph
What does it mean when you are her2 1??

I have a friend who has had a couple recurrences and the Dr's have retested her hoping each time she was her2+ so they could give her herceptin. The last biopsy it said she was her2 1. What does...
Forum: her2group 07-31-2006, 10:28 AM
Replies: 24
Views: 2,579
Posted By Steph
I too have signed my consent forms, had all my...

I too have signed my consent forms, had all my tests and go back next monday. Are you getting just Tykerb? I am getting mine on the EAP(?) I believe but not sure. I will be in the Tykerb/herceptin...
Forum: her2group 07-29-2006, 07:20 AM
Replies: 6
Views: 1,491
Posted By Steph
This is good news...My Doctors won't say that...

This is good news...My Doctors won't say that mine was IBC and they won't say it's not. My current Doctor is putting me in the tykrb/herceptin trial(not sure which arm I'll get yet, tykerb alon or...
Forum: her2group 07-24-2006, 01:37 PM
Replies: 10
Views: 1,562
Posted By Steph
Sherry, I am stage IV and I have been on...

Sherry,

I am stage IV and I have been on chemo...gemzar w/herceptin.
Forum: her2group 07-24-2006, 09:02 AM
Replies: 10
Views: 1,562
Posted By Steph
Question Doc wants me in Tykerb trial...

I am new here, have visited a couple times and thought I have read others that are in the trial for Tykerb or Tykerb w/ herceptin. My Doctor wants me in this trial so we are moving forward with...
Showing results 1 to 14 of 14

 
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