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Search took 0.01 seconds. Search: Posts Made By: rosie
Forum: her2group 12-19-2006, 03:43 AM
Replies: 41
Views: 4,289
Posted By rosie
Too sad for words. My heart is breaking. There...

Too sad for words. My heart is breaking. There are special people in this world who have a special place in your heart and I will always remember Lisa's picture filled with dignity and joy, even with...
Forum: her2group 12-18-2006, 02:05 AM
Replies: 53
Views: 4,204
Posted By rosie
Candles have been lit. While my heart grieves for...

Candles have been lit. While my heart grieves for both of you, it is at least a small measure of peace that Lisa is at last sleeping and more comfortable. You have been a wonderful partner in all of...
Forum: her2group 12-16-2006, 11:35 AM
Replies: 35
Views: 2,895
Posted By rosie
It appears that my previous post of support has...

It appears that my previous post of support has been deleted so I'd like to leave another. To Mel, Lisa is very beloved in this group. She is one of the kindest, considerate ladies I have ever met on...
Forum: her2group 10-05-2006, 10:59 AM
Replies: 7
Views: 1,510
Posted By rosie
Red face All GREAT advice. Thank you everyone. After a...

All GREAT advice. Thank you everyone. After a sleepless night I came to pretty much the same conclusion. I can only tell her how her actions made me feel and I don't have to be a jerk and do it in a...
Forum: her2group 10-05-2006, 04:50 AM
Replies: 52
Views: 4,740
Posted By rosie
crossing all my fingers and toes and hoping for...

crossing all my fingers and toes and hoping for good news. I truly hope your intuition is wrong. Everyone is here for you and prayers are on the way.

Rosie
Forum: her2group 10-05-2006, 04:35 AM
Replies: 7
Views: 1,510
Posted By rosie
Question Need some personal/family advice

Hi everyone. I could use an objective view here. I am about to attend a big family get together. Some of the guests attending will be a family ( not directly related to me ) who have been unkind to...
Forum: her2group 10-01-2006, 02:34 AM
Replies: 3
Views: 1,081
Posted By rosie
Question topo IIA test?

I saw this test in a post on one of the other subjects. ( chemo with DCIS ) Can someone explain what this test is for?
Thanks. You all are so knowledgeable!

Rose
Forum: her2group 09-30-2006, 01:25 AM
Replies: 16
Views: 4,496
Posted By rosie
Question My only question is do we have access to this...

My only question is do we have access to this compound and if so how does one get the one used in the study. Is it commercially available. It's always great to read about exciting new things but it's...
Forum: her2group 09-16-2006, 10:29 AM
Replies: 1
Views: 1,346
Posted By rosie
Red face HI Patty, I hope you get outside quickly in this...

HI Patty, I hope you get outside quickly in this beautiful weather!

While I had whole brain and yours is more focused, I had lesions in my cerebellum as well that seem to be the primary cause of...
Forum: her2group 09-05-2006, 06:26 PM
Replies: 5
Views: 1,294
Posted By rosie
I would go back to the neurosurgeon since you...

I would go back to the neurosurgeon since you have confidence in him/her and ask about this. I don't know enough about it truthfully but I did find a link to a national organization...
Forum: her2group 09-05-2006, 02:50 PM
Replies: 5
Views: 1,294
Posted By rosie
Cool Has anybody suggested that she might have...

Has anybody suggested that she might have something called hydrocephalus? ( specifically normal pressure hydrocephalus? ) I wish I could describe it better but it is sometimes very subtle to detect...
Forum: her2group 08-29-2006, 07:42 AM
Replies: 0
Views: 741
Posted By rosie
Question Anybody here ever use oxaliplatin?

Has anyone tried oxaliplatin and how did it go? I hear the neuropathy part can be pretty tough.
Any info appreciated.....

By the way, how do you get the title in bold letters?
Forum: her2group 08-22-2006, 09:55 AM
Replies: 8
Views: 1,414
Posted By rosie
I was on the original trial for tykerb back in...

I was on the original trial for tykerb back in 2003 for 4 months. No longer an option....
Forum: her2group 08-22-2006, 09:00 AM
Replies: 8
Views: 1,414
Posted By rosie
Question recycling used chemos

I am running out of options for my lung mets. We are kind of scraping the bottom of the barrel. I keep asking various oncs about reusing chemos that worked so well before and I keep getting the stock...
Forum: her2group 08-03-2006, 08:21 PM
Replies: 5
Views: 1,310
Posted By rosie
Exclamation Joe, while I appreciate the response, I think you...

Joe, while I appreciate the response, I think you might have been misled, the question was not the use of herceptin during MRI's, it is the use during whole brain radiation. Did Christine use it...
Forum: her2group 08-03-2006, 07:35 PM
Replies: 5
Views: 1,310
Posted By rosie
Exclamation HELP! Can you use herceptin while going through whole brain rads? need answer quick

I am undergoing WBR and one of my consulting oncs has asked why the herceptin was stopped. Does anyone have any info on using herceptin at the same time as whole brain rads?
Forum: her2group 08-01-2006, 07:55 AM
Replies: 10
Views: 1,641
Posted By rosie
contact the Patient Advocate Foundation in...

contact the Patient Advocate Foundation in Newport News Virginia. They should be able to help you. good luck. Insurance is always so stressful and tricky.


Rosie
Forum: her2group 07-20-2006, 07:25 PM
Replies: 2
Views: 937
Posted By rosie
Unhappy to patty z, anyone with WBR, using temodar

I am about to start WBR next week and read the abstract that was posted last week about temodar and xeloda. Even though I have already had xeloda for a year, I am going on temodar and xeloda while...
Forum: her2group 06-14-2006, 10:48 PM
Replies: 9
Views: 1,441
Posted By rosie
There is a drug being studied by genentech called...

There is a drug being studied by genentech called Omnitarg that is in very early trials. i can't remember the specifics but it hits more than just the her 2 receptor. But I think this is a number of...
Forum: her2group 06-05-2006, 06:34 PM
Replies: 10
Views: 1,659
Posted By rosie
Exclamation Dear Loving Daughter This is very...

Dear Loving Daughter


This is very interesting info. What really riles me is that the FDA is making suck a big deal of "making sure the drugs do not cause harm". What for terminal patients who...
Forum: her2group 06-04-2006, 12:01 PM
Replies: 10
Views: 1,659
Posted By rosie
This is very interesting but I wonder how if at...

This is very interesting but I wonder how if at all this ruling can be used NOW to gain access to drugs? Any ideas?
Forum: her2group 06-04-2006, 01:38 AM
Replies: 10
Views: 1,659
Posted By rosie
Question To Joe or anyone, ? about Court of Appeals

There was a ruling in the US Court of Appeals on 5/2 ( the case was Abigail Alliance versus Eschenbach )that said that the FDA must allow terminal patients ( ie those with no other options and less...
Forum: her2group 05-24-2006, 04:01 PM
Replies: 1
Views: 835
Posted By rosie
Exclamation Question about Court Ruling and experimental treatment

There was a court ruling a couple of weeks ago that said stage IV patients should have access to experimental treatments that other people do. I seem to recall the ruling as saying something about...
Forum: her2group 05-13-2006, 07:05 PM
Replies: 5
Views: 934
Posted By rosie
herceptin and doxil

"The fact that 52% responded with an additional 38% experiencing stable disease is truly remarkable in the setting of metastatic disease--that amounts to 90% of patients not progressing while on the...
Forum: her2group 05-12-2006, 11:01 PM
Replies: 5
Views: 934
Posted By rosie
Question doxil and herceptin

While this looks like a very interesting study, I don't seem to see that the study showed that adding herceptin was beneficial? Did I miss that? I understand it showed that heart toxicity was minimal...
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