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Search took 0.01 seconds. Search: Posts Made By: Cindi
Forum: her2group 03-13-2006, 09:16 AM
Replies: 16
Views: 3,552
Posted By Cindi
Smile Lapatinib for reccurent or relapsed inflammatory BC

Esther,

I am in the trial that my title states "Lapatinib for reccurent or relapsed inflammatory BC" and have been since late December 2005 for my skin mets. I recurred in May/2004 with 2 more...
Forum: her2group 02-28-2006, 12:04 PM
Replies: 14
Lyn
Views: 1,874
Posted By Cindi
Lyn, Geez, it just doesn't get any easier...

Lyn,

Geez, it just doesn't get any easier for you, does it? You're soooooooooooo deserving of a break.... this sucks! what a truly rotten cruise you had, words cannot convey my shock in your...
Forum: her2group 02-21-2006, 07:20 AM
Replies: 16
Views: 1,745
Posted By Cindi
Yes, please.. forward this to me. My email...

Yes, please.. forward this to me. My email address is in my profile.

Thank You!

God Bless,
Cindi
Forum: her2group 02-20-2006, 11:48 AM
Replies: 38
Views: 3,636
Posted By Cindi
Praise God!

Steph,

WOW! Just checking in and saw your TERRIFIC and blessed news! So, many prayers were answered. Smile, as you said above in the "aura" of such fabulous news.

God Bless,
Cindi
Forum: her2group 02-09-2006, 08:56 AM
Replies: 26
Views: 9,011
Posted By Cindi
Celina, I am so sorry for your loss. Your...

Celina,

I am so sorry for your loss. Your many diligent posts on your sister's behalf were so brave of you. Sisters have a special bond. It can never be broken. Carole was such a fighter and...
Forum: her2group 01-26-2006, 10:23 AM
Replies: 15
Views: 1,343
Posted By Cindi
Way to Go!

You Rock, Esther! So happy for you that you listened to your body and the procedure saw only the one lesion.

Have fun skiing or the jacuzzi!

Cindi.
Forum: her2group 01-18-2006, 07:21 AM
Replies: 3
Views: 931
Posted By Cindi
How absolutely ABSURD!!!!!!!!! I will pray that...

How absolutely ABSURD!!!!!!!!! I will pray that you will need NO visits to ER until this is over. Incredible!

Cindi.
Forum: her2group 01-18-2006, 07:18 AM
Replies: 8
Views: 1,303
Posted By Cindi
Smile Linda, So good to hear from you. Your...

Linda,

So good to hear from you. Your husband is such a wealth of information to us all.

Glad to hear that you are adding Avastin. I was on it for awhile, but my skin mets progressed. ...
Forum: her2group 01-12-2006, 10:50 AM
Replies: 23
Views: 3,265
Posted By Cindi
I will miss Lola's posts. She was a very...

I will miss Lola's posts. She was a very courageous lady. I will pray for her family during this time.

Thank you Steph, for the fine note you wrote about Lola. A true tribute.

Cindi.
Forum: her2group 01-11-2006, 08:04 AM
Replies: 28
Views: 2,981
Posted By Cindi
HOPE, I am praying and will continue to do...

HOPE,

I am praying and will continue to do so for you.

God Bless,
Cindi
Forum: her2group 01-10-2006, 01:47 PM
Replies: 19
Views: 2,078
Posted By Cindi
Perseverance! You got it, Al. Way to...

Perseverance! You got it, Al. Way to go!!!!!!!!! Celebrate every victory.

Congrats,

Cindi.
Forum: her2group 01-10-2006, 07:54 AM
Replies: 16
Views: 2,042
Posted By Cindi
Nicola, Lapatinib has caused me to have...

Nicola,

Lapatinib has caused me to have heavy problems with diarrhea. I have been in my Lapatinib trial since 12/27. My Onc. has suggested taking two imodium tablets at the same time I take my...
Forum: her2group 01-06-2006, 07:12 AM
Replies: 12
Views: 1,897
Posted By Cindi
Thumbs up I agree! Show your friend a copy of these posts...

I agree! Show your friend a copy of these posts (from women well versed in dealing with treatment decisions and changing Onc.). She MUST get a second opinion QUICKLY!

To find a doctor for...
Forum: her2group 01-06-2006, 07:01 AM
Replies: 31
Views: 3,502
Posted By Cindi
Cool This SUCKS!

Lisa,

I are REALLY sorry to hear about the stinky news on your latest scans. I agree with the others on checking out Avastin, cisplatin. I had such confidence in my previous medical team... but...
Forum: her2group 01-05-2006, 09:06 AM
Replies: 37
Views: 3,924
Posted By Cindi
Al, Sorry to hear about Linda's...

Al,

Sorry to hear about Linda's progresssion. We all HATE that situation! I am sure that you have been very busy investigating you alternatives, perhaps it was even mentioned in the above...
Forum: her2group 01-05-2006, 08:52 AM
Replies: 2
Views: 983
Posted By Cindi
Cheryl, In this "busines", if you notice...

Cheryl,

In this "busines", if you notice anything new, ask your Onc. A simple punch biopsy will give you a definitive answer of what it is. It may well be nothing, but I would suggest having...
Forum: her2group 12-22-2005, 11:54 AM
Replies: 2
Views: 1,026
Posted By Cindi
Yes, I've had the same reaction to Fentanyl...

Yes, I've had the same reaction to Fentanyl patch. I would NOT put it back on. The vomitting will just start back up. Try Oxycodon, Oxycontin or Methadone. Methadone works for me, but everyone is...
Forum: her2group 12-12-2005, 11:47 AM
Replies: 5
Views: 1,367
Posted By Cindi
by Winston Churchhill. "We shall fight on...

by Winston Churchhill.

"We shall fight on the beaches. We shall fight on the landing grounds. We shall fight in the fields and in the streets. We shall fight in the hills. We shall never...
Forum: her2group 12-09-2005, 10:51 AM
Replies: 6
Views: 1,763
Posted By Cindi
My skin mets first appeared on my chest (where...

My skin mets first appeared on my chest (where the mastectomy had been). They were red and blotchy. Sometimes they itched, but not much. If I would rub them, they would sometimes diminish, but...
Forum: her2group 12-09-2005, 10:35 AM
Replies: 12
Views: 1,548
Posted By Cindi
Patty, Wow, what a fighter you have been! I...

Patty,

Wow, what a fighter you have been! I am so very happy that this new regimen in working for you. You have shown us all how the soul can have such endurance.

Congratulations!!!!
Cindi.
Forum: her2group 12-07-2005, 07:32 AM
Replies: 4
Views: 5,324
Posted By Cindi
Ragini, I took tremadol a couple of months...

Ragini,

I took tremadol a couple of months ago. Had a reaction similar to yours. I then tried Oxycodone and later Oxycontin. They cut the pain, but after using either of them for 2-3 weeks, I...
Forum: her2group 12-06-2005, 12:46 PM
Replies: 4
Views: 1,424
Posted By Cindi
Linda, Sorry to hear that your skin mets are...

Linda,

Sorry to hear that your skin mets are still causing you such problems. I've had them now for 1 1/2 years. They started itching again recently and I dragged out a cream that I used after...
Forum: her2group 11-22-2005, 11:46 AM
Replies: 8
Views: 1,207
Posted By Cindi
Post Tracy, I had 1 node positive. I am Her2+++...

Tracy,

I had 1 node positive. I am Her2+++ and ER, PR negative. My original dx. was in 4/2002 at age 41. Now, almost 4 years later, I am now a happy 45 year old! I am still here!!!

Hang...
Forum: her2group 11-22-2005, 11:39 AM
Replies: 6
Views: 1,491
Posted By Cindi
Red face Sharon, After my Onc. decided that...

Sharon,

After my Onc. decided that Herceptin wasn't working well enough for me, she switched me to Gemzar and Avastin. Avastin has been approved for BC. But, she couldn't leave me on Herceptin...
Forum: her2group 11-16-2005, 11:07 AM
Replies: 7
Views: 1,780
Posted By Cindi
Red face Sorry to not be able to follow the thread... I...

Sorry to not be able to follow the thread... I am right-handed, always have been. Was pre-men at dx. Age 40 at dx.

God Bless
Cindi.
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