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Posts Made By:
jhandley
Forum:
her2group
10-06-2010, 02:27 AM
Replies:
4
experience with zometa?
Views:
1,774
Posted By
jhandley
experience with zometa?
Hi everyone
since i seem to have some bone mets on my L2 I am having a bone scan tomorrow and then plan to go on zometa. Any side effects?
Forum:
her2group
10-04-2010, 11:54 PM
Replies:
16
Herceptine and runny nose..did it stop just before you recurred..?
Views:
2,351
Posted By
jhandley
Re: Herceptine and runny nose..did it stop just before you recurred..?
no my nose runs on!
Forum:
her2group
10-04-2010, 11:49 PM
Replies:
19
Do Omega-3 supplements disrupt sleep?
Views:
4,496
Posted By
jhandley
Re: Do Omega-3 supplements disrupt sleep?
Both Q10 and DHA cross the bbb. Q10 provides energy to every cell so it stands to reason it will perk you up..I take it only in the morning. otherwise no sleep!
jackie (down under)
Forum:
her2group
09-30-2010, 04:34 AM
Replies:
33
brain mets have arrived
Views:
4,113
Posted By
jhandley
Re: brain mets have arrived
Hi all
finished a 5 day course of wbr..but boy am I fatigued!
Forum:
her2group
09-22-2010, 10:19 PM
Replies:
9
jackie(down under) rad for brain mets update
Views:
1,675
Posted By
jhandley
Re: jackie(down under) rad for brain mets update
Hi Steph
The CT scan said the bone mets look like a differentiated cell line. I guess if they are her 2 then herceptin will work on them?
Forum:
her2group
09-21-2010, 08:20 PM
Replies:
9
jackie(down under) rad for brain mets update
Views:
1,675
Posted By
jhandley
jackie(down under) rad for brain mets update
Hi everyone having a 5 day course of wbr for small mets in the cerebellum..had 2 and 3 to go already feeling less sick.
Still on hercetpin for liver and lung but worried about bone mets on L2 that...
Forum:
her2group
09-16-2010, 11:20 PM
Replies:
28
Found my lump 10 years ago today!
Views:
4,285
Posted By
jhandley
Re: Found my lump 10 years ago today!
Hi Steph
My 10 years will be in April next year. I have been a MBC survivor for 5 years this week. I am starting wbr for brain mets on Monday..I also have non her2+ bone lesions on L2 and possible...
Forum:
her2group
09-13-2010, 08:53 PM
Replies:
33
brain mets have arrived
Views:
4,113
Posted By
jhandley
Re: brain mets have arrived
HI everyone
having an mri tomorrow and a ct to see if rest of body clear.
Will update soon. Thankyou for all your support.
jackie(down under)
Forum:
her2group
09-11-2010, 10:52 PM
Replies:
33
brain mets have arrived
Views:
4,113
Posted By
jhandley
brain mets have arrived
Hi all
I have some brain mets so would appreciate any advice. Seeing the onc to morrow.
Jackie (down under)
Forum:
her2group
09-08-2010, 06:53 PM
Replies:
12
help please..mood swings on herceptin
Views:
3,101
Posted By
jhandley
Re: help please..mood swings on herceptin
Hi RB
I take high dose DHA and am back on flaxseed oil daily which is helping. Right now I have a mre pressing problem..I have had unsteadiness for about 5 days and am having a head CT this...
Forum:
her2group
09-06-2010, 01:29 AM
Replies:
12
help please..mood swings on herceptin
Views:
3,101
Posted By
jhandley
help please..mood swings on herceptin
Hi all
I am having shocking mood swings on herceptin..any suggestions please. I took some flaxseed oil at noon which helped but I cant stomach it in the morning.
It is affecting my life...
Forum:
her2group
09-02-2010, 01:08 AM
Replies:
35
Turmeric
Views:
5,802
Posted By
jhandley
Re: Turmeric
Life Extension Foundation have a formulation with black pepper that is very well absorbed.
Jackie (down under)
Forum:
her2group
08-30-2010, 01:20 AM
Replies:
24
5 Years Out
Views:
3,637
Posted By
jhandley
Re: 5 Years Out
well done lexi girl!
Jackie (down under)
Forum:
her2group
08-27-2010, 09:56 AM
Replies:
14
New Mets to brain/WBR
Views:
2,445
Posted By
jhandley
Re: New Mets to brain/WBR
Hi Sally
No wisdom to share except "one day at a time". You can get through this.
Jackie (down under)
Forum:
Diet and Nutrition
08-15-2010, 02:33 AM
Replies:
3
Q10
Views:
2,015
Posted By
jhandley
Q10
A recent study confirms that supplementation with antioxidants including coenzyme Q10 benefits patients with aggressive late-stage cancer, improving overall wellbeing and lengthening survival time....
Forum:
Articles of Interest
08-15-2010, 01:54 AM
Replies:
2
Betulinic Acid (Birch)
Views:
8,696
Posted By
jhandley
Re: Betulinic Acid (Birch)
sounds very good!
Forum:
her2group
08-15-2010, 01:35 AM
Replies:
7
Difficult decision
Views:
2,018
Posted By
jhandley
Re: Difficult decision
Hi
I wouldn't worry too much about lymphodema..just make the decision based on what is best medically for you.
Cheers
Jackie (down under)
Forum:
her2group
08-15-2010, 01:27 AM
Replies:
6
Question on veins post-chemo
Views:
1,426
Posted By
jhandley
Re: Question on veins post-chemo
Hi
I use my arm that I had lymph nodes out for blood tests and herceptin and have done so for 4 years without any problems. Chemo I have in the other arm.
Cheers
Jackie (down under)
Forum:
her2group
08-13-2010, 06:26 AM
Replies:
139
Joe passed on this evening
Views:
21,380
Posted By
jhandley
Re: Joe passed on this evening
Hi Danielle
He was a true gentleman and we will miss him dreadfully. He was such a rock for us all even all the way "down under". Did he have any words for us? You know tears will be shed for him...
Forum:
her2group
08-12-2010, 11:05 PM
Replies:
10
last chemo today yay!
Views:
1,789
Posted By
jhandley
last chemo today yay!
Hi everyone
Just had my last abraxane and herceptin today. Will be staying on the Vit H as before. I am so pleased to be finished chemo! The third time in 9.5 years.
Now I just need them to...
Forum:
her2group
08-12-2010, 10:59 PM
Replies:
8
taxotere and herceptin w/o carboplatin
Views:
2,017
Posted By
jhandley
Re: taxotere and herceptin w/o carboplatin
I have just had my last abraxane with herceptin. This was a very tolerable combination..I worked 3 days a week, went on outdoor ed camps and xc skiing in the worst side effects week. I know that...
Forum:
her2group
08-08-2010, 03:14 AM
Replies:
10
help for sinus pain please!
Views:
2,303
Posted By
jhandley
Re: help for sinus pain please!
Hi everyone
Thanks so much for all your advice. I have a nasal spray and will try the Vicks and hot compress.
Cheers
Jackie (down under)
Forum:
her2group
08-05-2010, 04:15 PM
Replies:
10
help for sinus pain please!
Views:
2,303
Posted By
jhandley
help for sinus pain please!
Hi all
I am suffering constant sinus pain from herceptin. This is so debilitating that it was the main reason I went off herceptin after 4 years before...and subsequently relapsed after 8 months.
...
Forum:
Herceptin / Tykerb
08-04-2010, 02:33 AM
Replies:
6
best treatment for herceptin sinus issues?
Views:
3,778
Posted By
jhandley
Re: best treatment for herceptin sinus issues?
Hi
Yes a CT scan shows inflammation of the sinuses 8 months after going off herceptin. It has got a lot worse since I went back on abraxane and herceptin 15 weeks ago.
I will try a steamer....
Forum:
Herceptin / Tykerb
08-01-2010, 09:33 PM
Replies:
6
best treatment for herceptin sinus issues?
Views:
3,778
Posted By
jhandley
best treatment for herceptin sinus issues?
Hi everyone
Soon I will be back on herceptin only and already have persistent sinus problems..faceache and headache. Has anyone got a favorite treatment for this?
I was on herceptin for 4 years...
Showing results 1 to 25 of 329
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