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Old 10-06-2010, 02:27 AM   #1
jhandley
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Wink experience with zometa?

Hi everyone
since i seem to have some bone mets on my L2 I am having a bone scan tomorrow and then plan to go on zometa. Any side effects?
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Old 10-06-2010, 04:50 AM   #2
Pam P
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Re: experience with zometa?

I've had zometa for years. I usually get it once a month or once every 6 weeks to fight my other infusion time schedule. I think 1x month is the standard. Sometime I think I feel slightly achy in bones the day/night after the tx, but slight. Other than that I've had no side effects. I hope it is easy for you too. You've had a lot these last weeks and I hope all is going better now.
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6/01 IBC er+ her2+stage IIIb; mastecomy
7/01 AC, taxol; radiation
2/02 tamoxifen
9/02 stage IV bone mets femara
1/03 taxotere/herceptin/aredia
6/03 herceptin, aredia & faslodex
1/04 navelbine, herceptin, aredia
2/05 herceptin/aredia
7/05 xeloda/herceptin/aredia
3/07 xeloda/tykerb/aredia
5/08 taxol/avastin/aredia
2/09 gemzar/herceptin/zometa
7/09 Taxol/Carbo/Herceptin, zometa
10/09 navelbine/herceptin & zometa
2/10 herceptin & tykerb & zometa
4/10 add xeloda &aromasin
10/10 dx with dermatomyiositis triggered by cancer
11/10 restart herceptin, tykerb, zometa
12/10 surgery-place rod in R femur to stabilize bone
1/11 radiation to R femur - 20 tx
2/11 2nd surgery - rod in Left femur
2/11 tx eribulen -- suspended dx brain mets
3/11 brain mets wbr 20 tx
4/11 halaven; discontine 8/11 not working
8/11 radiation to left femur 20 tx'
8-9/11 rad to lower spine
9/11 abraxane/herceptin/zometa
9/12 xeloda/herceptin/zometa
12/12 ablation of liver
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Old 10-06-2010, 06:20 AM   #3
Colleen007
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Re: experience with zometa?

I've been on Zometa for almost 5 years. I now get it once a quarter. Pam summed up the side effects nicely, but I wanted to add one. When I got my first infusion, I got a fever as well. I know 2 other women who also got a fever with the first infusion...not much you can do to prevent it but thought I would let you know of the possibility. Good luck. It is very tolerable.
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Diagnosed 10-03-2005 (34 wks pregnant, 38 yrs old)
Lumpectomy Nov-2005. 10/18 Lymph Nodes impacted
Mets to liver, spine & femurs (thus being stage IV right from the get-go)
ER-, PR-, HER2+
Taxol/Herceptin/Zometa started Dec-2005. 11 cycles of Taxol.
Sept-2006: PET/CT scan of mets to liver, spine and femurs - Stable. Activity in R breast & mediastinum (not seen in prior scans).
Navelbine (3 wks on/1 wk off) as of Oct--2006 & continued Herceptin (every 3 wks) & Zometa (every 6 wks)
Jan-2007: PET/CT Scan - Stable. Continued Nav. through March-2007, then Herc./Zom. only after that.
June-2007: PET/CT Scan - activity in mediastinum. Back on Navelbine as of July-2007.
Scanned Quarterly since Oct-2007 - a few small scares, but otherwise stable due to continuing weekly Navelbine, Herceptin and Quarterly Zometa.
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Old 10-06-2010, 11:36 AM   #4
Becky
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Re: experience with zometa?

I mirror Colleen's experience. My first infusion I felt like I had the flu. All achy and a fever - on the high side (102) for a day, then I was fine. All other infusions, I really had no side effects - just felt a tad off the next day. Expect to feel flu like symptoms after the first one.
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Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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Old 10-06-2010, 01:11 PM   #5
frankie
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Re: experience with zometa?

Hi
I have had only one zometa infusion last March. I experienced flue like symptoms for 2.5 days. I was VERY achey all over and was confined to the couch. My bones really ached and i was in a lot of pain. I have heard from others that they too experienced this after their first infusion. I hear that it does get better after each infusion.
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