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Showing results 1 to 25 of 58
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Posts Made By:
Lee
Forum:
her2group
08-26-2008, 10:32 AM
Replies:
36
Are You Using the HER2/serum test?
Views:
4,461
Posted By
Lee
My oncologist has been running this test every 3...
My oncologist has been running this test every 3 months on me, and we just recently decided to use the results of this test to determine whether or not to run scans (as opposed to doing the scans...
Forum:
her2group
09-25-2007, 06:58 AM
Replies:
25
Port Questions
Views:
2,941
Posted By
Lee
Kriss - If you get a port in your chest, it is...
Kriss -
If you get a port in your chest, it is completely under the skin so no special care is needed. It just looks like a bump on your chest. When the port is accessed, they have to stick it...
Forum:
her2group
09-18-2007, 08:11 AM
Replies:
3
For those on Herceptin indefinately
Views:
1,110
Posted By
Lee
I'm going every 3 wks, and I've been NED for...
I'm going every 3 wks, and I've been NED for about 18 months now. My onc said that the research backs up that there is really no difference between every week and every 3 week infusions.
It is...
Forum:
her2group
09-12-2007, 08:54 AM
Replies:
5
Anybody is controlling their mets just with Herceptin?
Views:
1,684
Posted By
Lee
I had 3 spots on my liver and 1 on my pelvis,...
I had 3 spots on my liver and 1 on my pelvis, which disappeared pretty quickly after starting chemo in 10/05 (Carboplatin, Taxol, Herceptin). I've been in remission ever since chemo ended on 4/06,...
Forum:
her2group
07-12-2007, 11:57 AM
Replies:
6
need info on xeloda/herceptin combo
Views:
1,117
Posted By
Lee
Why would she stay on chemo if the mets...
Why would she stay on chemo if the mets disappeared? I had 3 small liver mets which went away with 6 months of chemo/herceptin, and since then I've been on herceptin alone. No recurrence.
...
Forum:
her2group
07-11-2007, 12:16 PM
Replies:
26
Need your input /Dx tests
Views:
2,851
Posted By
Lee
My oncologist uses this test every 4 months or...
My oncologist uses this test every 4 months or so, when I am in between scans.
Forum:
her2group
06-08-2007, 06:58 AM
Replies:
16
Please give 2 cents worth...
Views:
1,942
Posted By
Lee
I take 200mg of CoQ10.
I'm on Herceptin indefinitely, every 3 wks, and so far my MUGA has been great. My onc is fine with me taking it (and all the other supplements I take!)
Forum:
her2group
04-19-2007, 11:33 AM
Replies:
14
Herceptin given fast yesterday - is that ok?
Views:
1,394
Posted By
Lee
Mine is infused in 30 mins.
I get Herceptin every 3 weeks. I've had no problems with the faster infusion time. My onc was originally on the 90-minute regimen, but I asked him if we could condense that, so we went to 1 hr the...
Forum:
her2group
01-29-2007, 07:50 AM
Replies:
8
Scheduling scans during treatment?
Views:
1,368
Posted By
Lee
I had scans while undergoing chemo....
....and I was getting chemo weekly. It was never an issue. My onc wanted to be sure the chemo was working, and the only way to check that is to do scans.
Can you have your onc's office call to...
Forum:
her2group
01-09-2007, 11:16 AM
Replies:
14
What should I wear to treatment?
Views:
1,281
Posted By
Lee
They will want to access the port from the top....
...so its easiest to wear a v-neck, a shirt with buttons, or something with a zipper. I often work a tank top with a zippered hoodie over it, and yoga pants. Something comfortable, for sure!
...
Forum:
her2group
01-03-2007, 02:01 PM
Replies:
6
Herceptin Diluents Specifics
Views:
2,812
Posted By
Lee
My onc's office only mixes up as much as needed,...
My onc's office only mixes up as much as needed, and uses saline to do it. They never pre-mix the herceptin or use some that is left over from another preparation.
Forum:
her2group
10-10-2006, 07:03 AM
Replies:
7
Buy pink during October
Views:
1,343
Posted By
Lee
One word of caution on this....
....while many organizations are donating a decent amount of profits of their "pink" merchandise to breast cancer research organizations, this is not the case for all of them. Take a look at...
Forum:
her2group
10-06-2006, 09:21 AM
Replies:
19
Thanks for your wonderful prayers
Views:
1,897
Posted By
Lee
That is such wonderful news, Lisa! I'm so...
That is such wonderful news, Lisa!
I'm so happy your intuition was off. Hopefully they can figure out what else is going on and get it resolved soon.
Now go out and enjoy your weekend!
Forum:
her2group
09-18-2006, 12:29 PM
Replies:
15
How do I make a decision about entering trial?
Views:
2,160
Posted By
Lee
Hey Natalie, something to consider.....
If there is a good chance you are stage IV, why are you stopping herceptin? I was diagnosed as stage IV last fall, and I'm currently in remission, but I am going to continue on the herceptin...
Forum:
her2group
09-17-2006, 03:09 PM
Replies:
15
Are you like me; was your first original diagnosis as Stage 4?
Views:
2,476
Posted By
Lee
I was diagnosed as Stage IV from the start.
My docs initially thought I was stage II (I had 4/22 nodes positive) but the PET and CT scans I had before beginning treatment showed mets to the liver and pelvis. I was initially diagnosed 9/05 and...
Forum:
her2group
09-17-2006, 03:05 PM
Replies:
11
PET Scan
Views:
1,794
Posted By
Lee
It's standard procedure in my onc's office.
Before beginning treatment, I had a PET scan as well as a CT of the chest, abdomen and pelvis. This is how we discovered that, instead of being stage II as we thought, I was stage IV.
Seems to...
Forum:
her2group
08-17-2006, 10:23 AM
Replies:
5
Funy how all Docs do things differently.
Views:
1,139
Posted By
Lee
My Onc told me....
....that the recommendation from Genentech was to do a MUGA or echo every 3 months. I think he previously only did them every 6 months or so when his patients had no symptoms, but Genentech revised...
Forum:
her2group
08-02-2006, 08:49 AM
Replies:
21
Herceptin & hair growth?
Views:
3,389
Posted By
Lee
It takes a looooong time.
I finished up chemo on April 6th and my hair is only about 3/4 inch long. I continued to wear hats for a good 2 months following my last chemo, and probably would have gone longer if it wasn't...
Forum:
her2group
07-26-2006, 06:35 PM
Replies:
15
MRI of brain-Results are back...
Views:
1,977
Posted By
Lee
Glad you got good news!
Nothing like a clean scan to put your mind at ease! I hope your headaches get better soon.
Forum:
her2group
07-26-2006, 06:34 PM
Replies:
6
Talked to Genentech, herceptin weekly or 3 wks.
Views:
1,275
Posted By
Lee
Herceptin *is* FDA approved.
It was approved by the FDA back in 1998.
There have been some studies comparing weekly vs. every-three-week doses of herceptin, and none of them (so far) show any kind of statistical difference...
Forum:
her2group
07-13-2006, 01:28 PM
Replies:
46
Lost my sister this weekend!
Views:
4,317
Posted By
Lee
I'm so very sorry for your loss, Sandy.
What an awful thing to have happen. Thoughts & Prayers are with you and your family.
Forum:
her2group
07-13-2006, 01:27 PM
Replies:
7
New mwmber says hi!!
Views:
1,417
Posted By
Lee
Welcome!
This is a very helpful site, and there are wonderful people on it. I have learned a TON of good information, including many things I have shared with my oncologist. He's also impressed with the...
Forum:
her2group
07-13-2006, 12:32 PM
Replies:
3
Good CT and MUGA results today!
Views:
974
Posted By
Lee
Good CT and MUGA results today!
I have been off chemo and on every-three-week herceptin since April; I was pronounced NED at that time. So this was my first follow-up CT since chemo was over. Good news to report - I'm still NED!...
Forum:
her2group
07-10-2006, 08:49 AM
Replies:
33
Brain MRI all clear.
Views:
2,889
Posted By
Lee
Fantastic!
You are an inspiration to all of us. What great news!
Forum:
her2group
06-26-2006, 11:25 AM
Replies:
38
Who gained weight & who lost?
Views:
3,942
Posted By
Lee
I stayed relatively the same.
I maybe lost 2-3 lbs during chemo, and now that I'm just on herceptin and really watching what I eat & exercise, I've lost another 10 lbs or so.
I started out about 15 lbs overweight, so I'm...
Showing results 1 to 25 of 58
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