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Old 09-23-2020, 10:53 PM   #1
StephN
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Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
New vaccine trial for stage 4 patients

Hello everyone.
I want to let you know about a new vaccine trial that is being offered at the Cancer Vaccine Institute of the University of Washington. Back in 2012/13 I participated in a vaccine trial when it was called the U of W Tumor Group. Other members here also participated in vaccine trials specifically for HER2 positive patients. This new trial takes a completely different approach. This one is for metastatic disease only.

https://www.clinicaltrials.gov/ct2/s...&draw=2&rank=1
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"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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Old 09-25-2020, 05:37 PM   #2
mamacze
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Location: Madison, Connecticut
Posts: 638
Re: New vaccine trial for stage 4 patients

Hi Steph! I am so happy to see your name and see that you are still active and doing well. It just warms my heart. Please - check your inbox - I sent you a pm. Hopefully we will talk soon. and PS to all, I too participated in a U of W vaccine clinical trial in 2005 when I was diagnosed with mets to my lungs. I am NED 15 years later....I highly recommend this group and their trials.
__________________
2001 - Stage 0, lumpectomy, radiation, tamoxifen

2004 - Stage 4, mets to 4 lobes of lungs and liver, lumpectomy, er/pr -, her2 neu+++, Herceptin and Navelbine then Herceptin only.

2005 - Breast Ca vaccinations with the Tumor Vaccine Group in Seattle

2011 - Still Herceptin only and NED


2011, June - STOPPED Herceptin and kicked up my heels!

2012, February - 1 small tumor came back to haunt me in my lungs - back on Herceptin only, tumor stable.


2015, November - tumor on lungs removed (Segmentectomy), back on Herceptin only
Received U of W vaccine clinical "booster" Vaccine


2022 On Herceptin and NED continues - WOOT WOOT!
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Old 09-26-2020, 03:10 PM   #3
margaret
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Posts: 49
Re: New vaccine trial for stage 4 patients

Congratulations to you both!!!!
So great for the good news of so many years of NED!
I am feeling so grateful to herceptin and the healing I received.
I am 19 years away from my Stage 3b in 2001.
I really appreciate the support I found here on this forum.
BTW I used to be a lifeguard at Hammonasset when I was 20 years old.
I loved that beach
Keep the bright lights shining for all those suffering with disease!
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