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Old 10-10-2007, 06:21 PM   #1
bashmaz
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KellyA - ultrasound results yet?

Hi Kelly - have you received the results of your abdominal ultrasound? And has the pain subsided?

thinking of you, and sending healing thoughts,
Marianne
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Old 10-10-2007, 11:17 PM   #2
Kavy
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I am thinking about Kelly too. I wonder what is happening. I pray she is OK, just too busy to post today.
Healing prayers for Kelly.
KarlaV.
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Old 10-11-2007, 02:55 AM   #3
KellyA
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Hi there,

Sorry I didn't get back yesterday. I still don't have a definitive answer. My doc called me to say he thinks its my gallbladder, but doesn't see anything on the ultrasound that suggests it should be removed. Most bloodwork is in, and all is good, with the exception of my markers, which we should know today. I feel about 75% better- no severe pain anymore, just like I have been kicked in the side and feel very bruised. Back pain is minimal. Here's the trick- I haven't eaten, really. Just tried some toast and some jello. Within 5 minutes I was sorry. If I am on empty, I am MUCH improved. Have lost about 6 lbs since Sat. or Sun. Here's the plan- if I am not markedly improved by tomorrow, or at least able to eat bland foods without much pain, he is going to order a petscan. Mostly for 1 reason- don't know if you remember that they are "watching" a spot on my rib that hads been there since Jan. They think its nothing- its right under my implant on my non-cancerous side and has stayed the same with no change on three separate bonescans in addition to coming up negative on a CT. Both he and myself think it is unrelated (its much higher up and away from the bulk of the pain and I don't think it would affect me this way), but we would rule it out anyways to be safe. Markers have all been good (20, 24, 17- in that order since Jan.) and hopefully the one that should be in today will be too.

So if that all happens, and all comes out ngeative, he's referring me to a Gastro guy to get to the bottom of all of it. I did have some stomach issues about ten years ago, but this seems much much different. So in a nutshell, we still think its gallbladder, but might need to do some more tests. Don't know why, but I do feel so muc better, that I might pass on the petscan for now. ADVICE PEASE. I've been a "so in the know" person until now, that this surprises me. I really don't think its (the spot) related, but I do think that that is opening up a whole new can of worms and not sure I want to.

Thank you all for your support. I couldn't imagine going through this without the support of everyone here. Paul is still away-don't know when he'll be back and the kids are driving me NUTS- MY kids and my "work" kids!!!! :-) I am exhausted. Don't they know when to misbehave and when not to?!?!

Love, Kelly
__________________
dx'd 05/06, 37 years old
er/pr-, Her2+, grade 3
double mastectomy, immediate reconstruction- implants
Stage 2b, 2 tumors- 2.2 cm and 0.6 cm, 3/5 + nodes
all scans clear
genetic testing- negative
06/06 began dd A/C x 4, 12 weekly Taxols w/ Herceptin
30 rads
Herceptin weekly x 1 year
Herceptin completed 08/07
Port removed 12/26/07 MERRY CHRISTMAS!!!!!!
05/17/08 Two year anniversary NED

"We gain strength, courage, and confidence by each experience in which we really stop to look fear in the face... you must do the thing that you think you cannot do."

-Eleanor Roosevelt

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Old 10-11-2007, 02:57 AM   #4
KellyA
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Hi there,

Sorry I didn't get back yesterday. I still don't have a definitive answer. My doc called me to say he thinks its my gallbladder, but doesn't see anything on the ultrasound that suggests it should be removed. Most bloodwork is in, and all is good, with the exception of my markers, which we should know today. I feel about 75% better- no severe pain anymore, just like I have been kicked in the side and feel very bruised. Back pain is minimal. Here's the trick- I haven't eaten, really. Just tried some toast and some jello. Within 5 minutes I was sorry. If I am on empty, I am MUCH improved. Have lost about 6 lbs since Sat. or Sun. Here's the plan- if I am not markedly improved by tomorrow, or at least able to eat bland foods without much pain, he is going to order a petscan. Mostly for 1 reason- don't know if you remember that they are "watching" a spot on my rib that hads been there since Jan. They think its nothing- its right under my implant on my non-cancerous side and has stayed the same with no change on three separate bonescans in addition to coming up negative on a CT. Both he and myself think it is unrelated (its much higher up and away from the bulk of the pain and I don't think it would affect me this way), but we would rule it out anyways to be safe. Markers have all been good (20, 24, 17- in that order since Jan.) and hopefully the one that should be in today will be too.

So if that all happens, and all comes out ngeative, he's referring me to a Gastro guy to get to the bottom of all of it. I did have some stomach issues about ten years ago, but this seems much much different. So in a nutshell, we still think its gallbladder, but might need to do some more tests. Don't know why, but I do feel so muc better, that I might pass on the petscan for now. ADVICE PEASE. I've been a "so in the know" person until now, that this surprises me. I really don't think its (the spot) related, but I do think that that is opening up a whole new can of worms and not sure I want to.

Thank you all for your support. I couldn't imagine going through this without the support of everyone here. Paul is still away-don't know when he'll be back and the kids are driving me NUTS- MY kids and my "work" kids!!!! :-) I am exhausted. Don't they know when to misbehave and when not to?!?!

Love, Kelly
__________________
dx'd 05/06, 37 years old
er/pr-, Her2+, grade 3
double mastectomy, immediate reconstruction- implants
Stage 2b, 2 tumors- 2.2 cm and 0.6 cm, 3/5 + nodes
all scans clear
genetic testing- negative
06/06 began dd A/C x 4, 12 weekly Taxols w/ Herceptin
30 rads
Herceptin weekly x 1 year
Herceptin completed 08/07
Port removed 12/26/07 MERRY CHRISTMAS!!!!!!
05/17/08 Two year anniversary NED

"We gain strength, courage, and confidence by each experience in which we really stop to look fear in the face... you must do the thing that you think you cannot do."

-Eleanor Roosevelt

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Old 10-11-2007, 02:58 AM   #5
KellyA
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Sorry, this posted twice.

Kelly
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dx'd 05/06, 37 years old
er/pr-, Her2+, grade 3
double mastectomy, immediate reconstruction- implants
Stage 2b, 2 tumors- 2.2 cm and 0.6 cm, 3/5 + nodes
all scans clear
genetic testing- negative
06/06 began dd A/C x 4, 12 weekly Taxols w/ Herceptin
30 rads
Herceptin weekly x 1 year
Herceptin completed 08/07
Port removed 12/26/07 MERRY CHRISTMAS!!!!!!
05/17/08 Two year anniversary NED

"We gain strength, courage, and confidence by each experience in which we really stop to look fear in the face... you must do the thing that you think you cannot do."

-Eleanor Roosevelt

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Old 10-11-2007, 04:05 AM   #6
Mary Jo
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Thanks for posting Kelly. I was worried about you. Still am BUT am feeling confident that it is your gall bladder.

Sending hugs and hope you can eat today.

Mary Jo
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Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

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Old 10-11-2007, 08:39 AM   #7
Grace
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Kelly--This is anecdotal, but your problem could be similar. It took six months of visits to ER and private doctors for gallbladder problem to show up on a scan. When I had episodes I was in great pain. The episodes increased over time.

After surgery, they found my gallbaldder was very infected (description is too gross to give) and it had actually pushed up so it was located higher than normal, perhaps the reason earlier scans couldn't find the problem.

So if pain persists and they can't find reason, it could still be gallbladder. In general, though, I didn't have tenderness with gallbladder, just severe pain. I hope whatever it is, it's resolved soon and you get peace of mind.
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Old 10-12-2007, 01:26 PM   #8
Kavy
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Kelly,
Thanks for the update. I was worried about you. I am glad you are Ok and feeling much better. I am also glad to know it is probably gallbladder.
I hope you are able to eat better today, and that soon you will find out for sure the source of the pain.
If it were me, I would like to have the PET scan or CT scan, just for peace of mind.
Hugs,
KarlaV.
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Old 10-12-2007, 02:46 PM   #9
Andrea Barnett Budin
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Wink Oh Thank Goodness! You Posted...

Thanks, Kelly. You've been on my mind too (cute haircut and ALL). If it were me, I'd call the gastro guy Mon. I'd call tmrrw, but it's the weekend and you aren't allowed to get sick on Sat/Sun or you have to pass GO and go directly to the emerg rm. Ugh. Very slow process there, surrounded by pp who look way worse no matter what...

There are tests, swallow something gross and watch as you *digest* it. My friend had this. They tracked her digestive sys trying to find her problem. The main reason I'd move as quickly as possible on this is because -- you can't eat w/o severe pain! That's an urgent matter. Keeping it in check by not eating any thing is not an answer, and you need an answer. Probably gall bladder, but whatever -- you need to address it. Don't think ca! Don't even go there. Doesn't sound like it anyway. You need a good gastro guy to move on this. Have friends w/gastro probs whose advice you respect re docs and such? Start collecting names and #s. Be ready for Mon first thing.

Sorry your kids aren't cooperating. It's all about them. And they're so cute! But you need some coddling. Hubby away and all... Sending you BIG HUGS, and hopes for a resolution SOON on your pain and inability to eat...
Andi
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'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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Old 10-14-2007, 10:29 PM   #10
Catherine
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Kelly,

I hope you are ready for Monday. It is late Sunday night here in Oregon. But I just want to wish you well for Monday morning in Georgia. ( I lived in Augusta, Georgia in 1969....too hot for me) I agree with Andi, if you can not eat, the doctors need to help you sooner than later. My sister and Mom both had gallbladder pain, I know how horrible it is. I hope this (gallbladder) is your problem and that your doctor has a quick solution. In the meantime, can you take some time off? Time heals all wounds (ha, ha, hee, hee.)

Hugs, Catherine
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Found my own lump in the shower
April 2006 at the age of 58
Stage IIB, ER- PR- HER2+++ multi focal tumors, largest 2.3cm
Chemo first: AC/Taxol over 16 weeks
Bilateral mastectomy Sep 06
33 rads after the surgery
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15 years and no recurrence as of April 2021
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Old 10-15-2007, 07:56 AM   #11
Soccermom
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Kelly,just wanted to wish you well today!

Marcia
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Old 10-15-2007, 12:27 PM   #12
KRISS
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Hi Kelly
I had the same thing going on in Dec of 05. Could not eat a thing without puking moments later. Also was very tender and stomach cramps. Test after test really did not show anything. Finally figured out my gallbladder was slow to work. Had it removed in Feb of 06 and have not puked once since. Even on chemo! I hope that is all that is going on with you. It is an easy fix. Keep you in my thoughts.
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DX IDC AT 42 12/7/06
2.2CM STAGE I GRADE 2
NODE NEG
PARTIAL 12/18/06
HER2+ /ER+(75%) PR+(5%)
4 DD AC CHEMO STARTING 1/10/07
4 DD Taxol Starting 3/5/07
1year weekly Herceptin starting 3/5/07
finished 2/18/08
changed to every 3 weeks 4/23/07
completed 33 radiation treatments 7/6/07
TAH and BSO 9/24/07
start Femarra 10/8/07
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