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Old 09-07-2009, 04:00 PM   #1
Leslie304
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Join Date: Jun 2009
Location: Hunterdon Cty, New Jersey
Posts: 51
Re: Diagnosed high-risk four years ago and no recurrence

Thanks Christine for your encouraging post. I was diagnosed in April 09 and just weaving my way through all this! Did you ever get the HER2 vaccine? I'm very curious how many have, my onc has not mentioned it but maybe it is premature for me to be thinking about it. I'm still undergoing chemo and anxiously awaiting surgery! Get this stuff out of me! Did you do a bilateral mastectomy?
Thanks for the renewed hope and CONGRATULATIONS!
Leslie
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2009
3-15 Age 48 -found lump
Dx 4/15/09: IBC Stage III w/extensive lymph node involvement HER2+++
5/1/09: Adria/Cytoxan for x 3-no response
6/12/09: Taxol/Herceptin for 1 tx -no response
6/24/09: added Carboplatin to T/H x 3 - no response
7/09 -added F5U -no response
7/29/09: Herceptin/Xeloda/Tykerb no response
8-18-09: 2nd opinion at MDA - IDC not IBC! First Onc disagrees,
BRCA 1/2 Neg
8-19-09: continue on Herceptin/Xeloda/Tykerb-slight response
9-24-09 MRM right breast 10x10 cm tumor! (Huge!) no necrosis - Got clear margins! A miracle!
13 of 18 nodes positive
11-2-09 -12/10 started radiation
12-10-2009 - Finished with radiation!!
2010
1/13/2010-Back on Xeloda x six cycles (have been on Tykerb/Herceptin all along)
4/4/14 - stopped Xeloda/Tykerb one cycle early. Liver enzymes high!
4/20/2010 Clear PET Scan!! NED
6/10/2010 - Finished Herceptin11/8 - Brain METS! CRAP! WBRT only option given. Four mets, separate locations in brain, no SRS
12/10 - Herceptin/Tykerb/Xeloda
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Old 09-07-2009, 09:18 PM   #2
ElaineM
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Wink Re: Diagnosed high-risk four years ago and no recurrence

Good for you. Keep up the good work. I am clapping and cheering for you !!!!!!!!
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ElaineM
12 years and counting
http://her2support.org/vbulletin/showthread.php?t=48247
Lucky 13 !! I hope so !!!!!!
http://her2support.org/vbulletin/showthread.php?t=52807
14 Year Survivor
http://her2support.org/vbulletin/showthread.php?t=57053
"You never know how strong you are until being strong is the only choice you have." author unknown
Shared by a multiple myeloma survivor.
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Old 09-08-2009, 03:03 AM   #3
Christine MH-UK
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Re: Diagnosed high-risk four years ago and no recurrence

Hello everyone,

Well, it is almost six years now. If I had known how long this thread was going to run, I would have put diagnosed October 2003 in the title.

I never did get the her2 vaccine nor did I get a bilateral mastectomy. They are still working on her2 vaccines, so these are only available experimentally even now. As for a bilateral mastectomy, it seemed to me that for my type contralateral recurrences were relatively infrequent and I can't imagine having two arms at risk of lymphedema.
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