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03-02-2008, 05:22 PM
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#21
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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It's so nice to see your beautiful, smiling face back among us.
I am praying that your new tx plan does just what you ask - KNOCKS THOSE PESKY LUNG MET BUGGERS TO THE CURB!!!!!!!!!!!!!!!!!!!!!!!!
Love to you.........
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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03-02-2008, 05:24 PM
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#22
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Senior Member
Join Date: Oct 2007
Location: Portage, IN
Posts: 198
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Kate
Welcome back. I hope you are feeling better. It is nice to see your smiling face again.
__________________
10/15/07: Diagnosed at age 46 lymph node removal (2)
ER/PR - Her2 +++
11/07: Port Installed
11/07 - 1/08: AC
1/30/08: Right Mast Stage lllC
2/28/08: Start Taxol and Herceptin weekly.
5/15/08: Finished Taxol
8/12/08: Finished 33 Rads
1/29/09: Finished Herceptin
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03-02-2008, 05:30 PM
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#23
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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I want to thank each and everyone of you for the wonderful words of concern and support. Pink Girl I love the new picture! I truly don't know what I would do without this wonderful group of men/women. You are truly the best! When I was first told I'd go on Tykerb/Xeloda my heart dropped to my stomach and I thought here we go -- out of options. Now that I've had a few days to digest I feel much more confident. I still know there are plenty of options out there for me but I think right now we need this treatment plan. I will get to NED!
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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03-02-2008, 06:19 PM
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#24
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Senior Member
Join Date: Nov 2007
Location: New Jersey
Posts: 889
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Glad you are back! Sorry to hear that you have had a bumpy road lately. I hope your new meds do the trick for you!
__________________
dx aug 03 invasive dcis 1 cm
er/pr/her2+
bcs 8/4/03
bcs 8/21/03 0/16 nodes
tx 4x ca 36 rad tam
postmenopausal 06 aromasin
sept 07 biopsy node in neck
muga/pet/cat/bone mets to lungs nodes and liver stage iv
tx hki-272
tx not working switched to taxol herceptin
Taxol not working switched to navelbine
navelbine is causing bad neuropathy
starting gemzar
gemzar quit on me now on Ixempra due to increasing number and size of liver mets
another progression starting tykerb/xeloda
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03-02-2008, 06:44 PM
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#25
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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Yes, you will Kate! We are all there with you, praying for you and pulling for you. I just caught a glimpse of Ned. He looks alot like Sam Elliot. He's in his penthouse suite at the five-star hotel, already dressed in his black tuxedo, polishing his dancing shoes. He has already called down to the ballroom on the first floor and ordered a bottle of their finest champagne to be sitting on ice at your table. Ned has purchased a beautiful corsage for you, and as he slips on his polished shoes, he smiles. He gets up, crosses the room to the mirror, adjusts his black tie, and in his mind's eye he sees you sweep into the ballroom, a vision of sheer beauty in your flowing white dress, as he walks up to you, bows formally, then kisses your hand, and pins the red rose corsage onto your gown. "Madam, I have been waiting for you. May I have the pleasure of this dance?" He knows you're coming.
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03-02-2008, 08:31 PM
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#26
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Senior Member
Join Date: Jan 2007
Location: Thornhill, Ontario
Canada
Posts: 2,320
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So glad you are home Kate. I am sending good vibes that that new treatment plan will bring you to NED, ASAP.
all the best
caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08
Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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03-02-2008, 09:19 PM
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#27
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Senior Member
Join Date: Dec 2006
Location: Oregon
Posts: 715
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Welcome Home Kate,
So glad you are home. Just want to let you know I am on your team. So keep up the good work with the excerise an healthy eating. We are the excerise gurus. Maybe we do not pump iron but we get our bodies up and out. Happy you can do this. I hope the pills go down smoothly. You can always chase them with a cupcake. Cupcakes are my new favorite fantasy food.
Hugs and love, Catherine
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Catherine
Found my own lump in the shower
April 2006 at the age of 58
Stage IIB, ER- PR- HER2+++ multi focal tumors, largest 2.3cm
Chemo first: AC/Taxol over 16 weeks
Bilateral mastectomy Sep 06
33 rads after the surgery
1 year of Herceptin completed Dec 07
15 years and no recurrence as of April 2021
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03-02-2008, 09:30 PM
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#28
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Senior Member
Join Date: Feb 2007
Location: Cordoba, Mexico
Posts: 672
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Kate,
There is no place like home, so I am glad you are back and feeling confortable. Hang on there girl!! we will all be praying for you.
__________________
Dx. June 30th, 2006 at age 43
Lumpectomy rt breast
2.2 cm tumor, 13 nodes all negative
ER-PR+,her2+++
6 FAC
32 Rads
Dx. Lung fibrosis due to radiation
Ended 1 year herceptin in March, 2008
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03-03-2008, 12:21 AM
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#29
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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Bill,
Thanks for brightening my day! I actually can visualize NED waiting there for me and believe me I'm more than ready to meet him. I really do feel that this combo will work for me. With all the encouragement and prayers I'm receiving I'm bound to meet up with NED.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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03-03-2008, 06:02 PM
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#30
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Senior Member
Join Date: Dec 2006
Posts: 63
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Great that you are back home!! I hope the Xeloda/ Tykerb will do the trick for your lung mets. Best of health.
Hugs,
Anne
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03-03-2008, 09:43 PM
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#31
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Kate, Good plan, to stay out of the hospital! Especially now that you've got that gorgeous NED waiting to wine and dine and dance with you! You are not at all out of options - and Tykerb/Xeloda is a good one.
Take care
Chris
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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03-04-2008, 01:51 PM
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#32
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Senior Member
Join Date: Oct 2007
Location: Australia
Posts: 309
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Really glad you are home Kate! Hope this new treatment works wonders for you.
Tell Tiptoe 'no playing up - just 'cause she's home at your place!' lol !You make a great team 
Blessings sis
Hermiracles
__________________
2003 L/DCIS –> LWE: High G./Comedo - 6 nodes clear 6 wks Rx
04/07 2 miracles born ~ very grateful
06/07 Susp areas L/b
09/07 Stage 2 bilat. mastectomy R/ b. clear extens DCIS/IDC Paget’s 8 nodes clear ER(<5%) HER2+++ CT clear
11/07 Portacath - FEC
15/11/07 Stage 4 Emerg op - hip replacemt #NOF bone mets H/Taxotere
12/07 Rx to 'spots' on spine/R/hip/femur 3wkly H
2008 H+T mets to rib/sternum? Aredia CT clear! Cont. H + Aredia 07/08 1 wk Palliative Care - mets to lungs + ?1 to brain
09/08 Stop H complete Epirubicin 1wk PC new brain mets
10/08 2wks WBR 1wk PC 22/10/08 Tykerb/Xeloda 12/08 6 CEREBRAL METS COMPLETELY GONE! Rib mets down to <1cm.
01/09 Tumour markers normal! Rx to L/arm
03/09 LUNGS CLEAR (ALL NODULES GONE!), brain clear, liver clear. Bones stable! ~ THANK YOU GOD
07/09 Repeat CT Scan ~ ALL organs clear apart from bones which remain stable. I walk in gratitude.
***************
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03-04-2008, 05:59 PM
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#33
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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Kate, I was on Tykerb/Xeloda last summer for 4 months; it was pretty easy to tolerate except as Maryanne says, stay on top of the diarreah! At the first loose stool, take action. I used a dose of Immodium and usually only had to take one or two doses for a day or two, and then I'd be good for a week. Also ate banannas and rice, but that wasn't enough for me to keep it at bay, I also needed the Immodium.
Hand/foot syndrome is something to watch for also, keep your hands and feet moisturized with a good cream.
You may get the "Tykerb rash" on the face/chest area. For me, it ran it's course in 6-7 weeks. It was kind of like itchy pimples. A face cream helps keep it from being too dry, which helps with the itchiness.
Last, SO GLAD you are home from the hospital, and I like your plan; never go there again!
<3 Lolly
__________________
Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.
Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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03-04-2008, 07:24 PM
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#34
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Senior Member
Join Date: Jun 2006
Location: Bradenton,FL
Posts: 977
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Dear Kate,
Just another Her2er happy to welcome you home! Your neverending good spirits make me smile!
Big hugs, Marcia
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03-04-2008, 09:02 PM
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#35
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Senior Member
Join Date: Jun 2007
Location: moved to Lancaster, Pa in June, 2010
Posts: 576
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Welcome back Kate! Glad to hear you are home and have the computer up and running as you will be. Keeping you in my prayers that the tykerb works! God Bless!
__________________
Debbie in North Carolina
Diag 10/2006-high grade invasive ductal carcinoma- mastectomy L breast
2.5 cm tumor ER/PR pos-Her2+++
4 rounds A/C, 4 rounds Taxol
Herceptin every 3 weeks until Jan. 2008
6/18/07 prophylatic mastectomy R breast
8/2007 started aromasin/stopped arimidex (side effects)
12/07 stopped aromasin due to side effects (now what?)
Finished herceptin 1/8/08
started tamoxifen for 2 years then will switch to femera
allergic to tamoxifen started femera 4/2008
June 20, 2008 portacath removed
Learnig to live life to the fullest!
Stopped Femera due to side effects
July 28, 2008 start trial for breast cancer vaccine
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