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Old 09-28-2015, 04:20 PM   #1
embur102
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Join Date: Jun 2012
Posts: 81
Re: Ugh Brain Mets!

Funny, Bev, I am not known for quick responses! Quite the opposite...I am not on this forum regularly, and rarely respond. I just happened to be on the site today!

Yes, I know the sleeplessness very well...spent 8 months on high doses of dex...you should see my house hahahaha....while most women are spending those frantic hours cleaning, I was suddenly "artistic" and felt compelled to do things like decoupage the refrigerator, paint inspiring words like "believe" "vibrant healing" and " focus outward" all over the walls, and scotch tape pictures of sunflowers all over the kitchen! It is quite the masterpiece

For the sleeplessness, I found valerian, and Yogi Kava Stress Relief tea, to be somewhat helpful. Also, the neuro nurse said to stagger the doses throughout the day, getting all doses in before 6 pm, and not take any dex after 6 pm so that maybe I could get some sleep. That worked a little bit, too.

I don't have too much pain, I do have monthly acupuncture and sound therapy ( more if needed) I meditate/pray daily, practice yoga. I do what I can to look forward...obviously that is easier to do when I'm feeling well. This past winter was a rough haul, and I wasn't really feeling the whole "holistic, positive" vibe hahaha
One day at a time

We are out here for you, Bev...maybe not physically with you, but always spiritually. You are never alone

Peacelovehugsjoy
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Dx 4-12-2012
R unilat Mx 5-25-2012 (no reconstruction)
Stage 2B, Grade 3, Her2+++, Er + (15%), Pr -
4.2 cm, 2/14 nodes +
3 AC, 4 T/H
Zoladex 4 months
Oophorectomy Feb 2013
AI daily
Herceptin every 3 wks until Sept 2013
Gamma Knife June 2014, 2 cm brain met
Liver mets Oct 2014
Taxotere/herceptin/perjeta-CLEOPATRA trial Nov 2014-Mar 2015


"RISK BEING SEEN, IN ALL OF YOUR GLORY!" Jim Carrey
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Old 09-29-2015, 04:42 AM   #2
BevinSomerset
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Join Date: Sep 2014
Location: English and living in Somerset, England.
Posts: 10
Smile Re: Ugh Brain Mets!

Embur You are a star that message was just what I needed. Ordered the glasses today and will have prisms fitted next week so double vision should be obliterated from my life. Looking into acupuncture and will stagger Dex - so helpful. Not one for praying but with two of my 3 children now living in USA and discovering they have gained from a Georgia/Florida 'Southern' life adaptation I think its time I learned from them and at least look into Yoga.
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