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03-21-2013, 11:07 AM
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#1
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Senior Member
Join Date: Dec 2012
Location: Attica, IN
Posts: 371
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Hot/Cold Flash - Tamox vs Herceptin
I was just wondering about hot flashes! This is my 2nd month on Tamox, and I just had my last Herceptin last Wednesday 3/13.
Today, I have had 4 hot flashs and then 2 times have gotten goose bumps all in a time frame of 7:30 a.m. to 2:00 p.m. 6.5 hours!!
I keep thinking man my body temperature is really screwed up. Saturday after Herceptin on Wednesday I did sweat buckets most of the day and then would chill with achy joints. Now, it is better, but I think will this Tamox level out in the next few months where I want have hot/cold flashes or is it still the Herceptin.
I wondered what others experiences with it.
__________________
myleftlump.wordpress.com - started blogging my
IDC breast cancer
7/2012 diagnosed with multiple solid lesions
7/20/12 biopsy done. ER+ 30 PR -, HER+++,k167 80% Grade 2
9/2012 biopsy on lymph node - showed malignant
9/2012 Pre-adjunctive TCH chemo.
12/6/12 MRI after Pre-adj.
Results: Modest Decrease in size of left breast malignancy As well as the associated satellite lesions and auxiliary Adenopathy compared to prior study. Doctors hoped for better but good response it didn't grow.
12/18/2012 left masectomy with axillary nodes
Size 3.2 CM, Nottingham score 9/9
Grade 3, no evidence of in situ carcinoma
Areas of angiolymphatic are identified
Carcinoma is 0.5 cm from inked deep
Margin of excision
Attached axillary lymph nodes: metastatic
Carcinoma in 6 of 8 nodes.
Size of largest node 1.5 cm
Extracapsular
ER + 73%, PR+2%, HER2+
2/27/13 6 weeks of IMRT radiation finished
2/2013 Started on Tamoxifan 5 years.
8/2013 will take last Herceptin, 17 treatments total every 3 weeks.
BRCA1 & BRAC2 - Negative
August 28, 2013 DIEP flap on the left breast.
February 2014 Nip & Tuck
March 14, 2014 nipple reconstruction and removed port.
August 14, 2014 lump in lymph nodes under arm and above clavicle. Stage IV
August 28, 2014 herceptin And projeta starting and port put back in.
3/18/15 stopped arimidex.
3/18/15 progression....Tdm1
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03-21-2013, 05:47 PM
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#2
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Re: Hot/Cold Flash - Tamox vs Herceptin
To be honest I didn't even think about it, I was so glad to be finished treatments and be able to continue on hormone therapy I really didn't mind what the side effects may be! 
I did have hot flashes though for the first month or so and then they eased quite a lot as I remember but its little compared to dealing with a recurrance I think!
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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03-21-2013, 06:02 PM
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#3
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Senior Member
Join Date: Nov 2010
Location: Doylestown, ohio
Posts: 334
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Re: Hot/Cold Flash - Tamox vs Herceptin
Mine started mid herceptin. I finished herceptin in Nov. 2011 and still getting them. They were worse when herceptin was done but I noticed this past month they are fewer and better. They were horrible but as Tricia said better than the consequences. I would have a flash and 3 minutes later turning on my heater under my desk. The heater was on then off then on again, it was crazy. I don't know about the tamoxifen since I am on femara but my oncologist said the femara would most likely give me hot flashes. She said they may get better or I could have them for 5 years while on the drug. I am hoping they are getting better based on this last month. Good luck.
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DX Sept 30 2010 at the age of 49. Oh crap! 1.5 cm idc, stage 1 grade 3 er/pr+, her2+ no lymph nodes, mastectomy Oct/10. Started 6 rounds of TCH Dec/10 and will continue herceptin until Nov /11 and just started femara.
Stray kitten found my lump while I was playing with it. It is now my pet and my dog is not real happy about that.
Mammo good
last herceptin 11/21/11 YAY
reconstruction 12/09/11
Chapter closed 12/10/11, hopefully, fingers crossed
Bone scan, chest xray, clear
04/27/12 Expander removed, implant put in, ahh sigh of relief, much more comfortable
Sept 30, 2014, 4 years NED
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03-21-2013, 06:34 PM
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#4
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Senior Member
Join Date: May 2008
Location: Hershey, PA. Live The Sweet Life!
Posts: 2,005
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Re: Hot/Cold Flash - Tamox vs Herceptin
Hot flashes are the new norm, I'm afraid. Try dressing in easy to peal layers. On the upside you will no longer mind the winter months!
__________________
Smile On!
Laurel
Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara
15 Years NED
I think I just might hang around awhile....
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03-21-2013, 10:08 PM
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#5
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Senior Member
Join Date: Apr 2012
Location: Melbourne, Australia
Posts: 494
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Re: Hot/Cold Flash - Tamox vs Herceptin
I agree with Laurel - I am back on Tamoxifen and trying to get used to those meltdown moments again! (Thought I had left it behind me...) So layers of clothing, and a little hand held fan can help too.
Best wishes.... Pam
__________________
Diagnosed 2004: Lumpectomy - 2 tumours, both grade 1 infiltrating duct carcinoma, about 12mm. ER+,
C-erbB-2 status 3+.
Clear margins, no nodal involvement.
Radiotherapy, i year Tamoxifen, 4 years Arimidex.
Rediagnosed 2012: Multiple bone metastases.
3/12: began on Marianne trial - T-DM1 + Pertuzamab/Placebo.
5/12:Unexpected development of numerous bilateral liver mets. Came off trial.
Started Docetaxol/ Herceptin + Zometa.
8/12:Bones stable +major regression in liver (!)
9/12:Can't take any more Docetaxol! Start on Herceptin and Tamoxifen. Cross fingers!
Changed to Denosumab.
11/12: Scan shows stable - yay!
11/13: Still stable :-) !!!
1/16: All stable, but lowered calcium, so switched to Zometa 3 monthly.
2/19: Happily still stable on Herceptin, Letrozole and 3 monthly Zometa.
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03-22-2013, 11:50 AM
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#6
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Senior Member
Join Date: May 2011
Location: El Paso ,Tx
Posts: 436
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Re: Hot/Cold Flash - Tamox vs Herceptin
I had bad hot flashes through chemo but after a couple of months on Tamox they have almost stopped. I get little ones every now and again but nothing like before. My Dr said everyone is different. I was worried the Tamox was not working if I didn't have hot flashes.
__________________
 dx: DCIS 6/8/10, HER 2+ 7/26/10; Stage I Age 41
Double mast w reconstruction
6 TCH w 1yr herceptin
Tamox.
25 radiation tx
Removal of expander on L due to infection. Tried to save it had 3 bouts of antibiotics and went to see plastic surgeon 2-3x wk to get drained. Saving it was my idea not his. But lost it anyway.
Reconstruction set for December 21st,2011
Finished chemo 12/2010
Finished Herceptin 8/26/11
Reconstruction 12/21/11
Expanders exchanged for silicon 3/19/12
Nipple reconstruction 5/18/12
Nipple tatooing- 7/9/12- All done yay!
11/22/12-Went back to get scar tissue stretched to even the outside of breast, didn't work due to it being radiated skin.
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03-22-2013, 12:39 PM
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#7
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Senior Member
Join Date: Oct 2012
Posts: 645
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Re: Hot/Cold Flash - Tamox vs Herceptin
I can't speak for the Herceptin only - just finished TCH last week (yea!!!!) and will start H only on April 4th.
I was on Tamoxifen for 4.5 years, after 1st bc, post menopausal. It threw me back into the symptoms of menopause for about six months - hot flashes, cranky, etc. I was more concerned with the other side effects of tamox on me - water retention, swollen and sore legs - was afraid I was going to throw a blood clot.
My primary care doc recommended a baby aspirin a day (81mg) for the leg pain. Helped enormously. I also took diuretics (fluid pills) every other day.
Janis
__________________
March, 2000: 48, Post menopausal (5 yrs HRT) Left breast, IDC 3mm/DCIS 1.6cm, ER+/PR-/Her2+++, mod differentiated, MIB low, lumpectomy, node neg via SNB, rads=33 Stage 1a
June, 2000: Tamox 4.5 years,Femara for 5 years (end in Jan. 2010)
Sept, 2012: 61, Via mamm, ultrasound, biopsy, right breast, 2.3cm tumor, ER+/PR-/Her2+++, poorly diff, KI67 60-70%
BRCA 1 and 2 negative
October, 2012: Bi Mast with tissue expanders, port placement
Final Path: IDC 2.8cm, DCIS, 1/4 sentinal nodes positive (@#$%). Stage IIB
Nov 29, 2012: Begin TCH/6x/every 3 wks, H for 1 year/every 3 weeks.
March 14, 2013: Finished chemo
April 9, 2013: Begin radiation 28x
May 22, 2013: Finished rads
June 1st, 2013: Started Aromasin for 5 yrs.
July 15, 2013: Switched to Letrozole (Femara). Probably for the rest of my life
October 16, 2013: Exchange surgery
October 31, 2013: Finished Herceptin
December 5, 2013: Port removed
Glad this year is over!
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03-23-2013, 02:32 PM
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#8
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Senior Member
Join Date: Nov 2009
Location: western ma
Posts: 280
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Re: Hot/Cold Flash - Tamox vs Herceptin
god, i am 3 yrs out and back on tamoxifen after failed attempts at every AI and my life is a non-stop rollercoaster of hot and cold flashes. the only relief is oxybutynin, when i remember to take it. it works pretty well on decreasing hot flashes, but you need to remember to drink tons of water.... but then that's a good thing to do anyway!
__________________
8/09 - IDC 1.8 cm triple positive, lumpectomy left breast
10/09 began chemo (taxotere & carboplatin) and weekly herceptin.
1/21/10 finished chemo, continued on herceptin every 3 weeks until 10/2010.
2/10 began 7 wks of radiation
6/10 mom dies of primary peritoneal ovarian cancer
8/10 got my last remaining ovary out
10/10 mammogram all clear
3/11 MRI shows 5 'spots' in right breast, largest 1 cm unidentifiable on US
needle biopsy proved the largest to be old inflamed cyst -phew!
7/10 switched to Arimidex
8/9 switched to Femara - allergic to arimidex
Femara made me lose hair quickly so switched to Aromasin
Aromasin made my hair fall out too and the bone pain was too much.
back on Tamoxifen 1/2013.
blood clot from trains and planes 5/2014 so on coumadin per onco for as long as i am on tamoxifen
tamoxifen was supposed to be up with my 5 yrs in may but my boyfriend was diagnosed with stage 4 colon cancer so i am staying on tamoxifen indefinitely because i want some ammo against BC, given the stress. lost my husband in only 10 wks in 2007 to stage 4 esophageal cancer.
cancer's screwing with another man i love
2/2016 - 6yrs in remission, off tamoxifen and off coumadin - yay!
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03-24-2013, 03:47 AM
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#9
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Senior Member
Join Date: Sep 2005
Location: france
Posts: 1,648
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Re: Hot/Cold Flash - Tamox vs Herceptin
Are you taking the IAs at night? still will have the hot flashes but less annoying than during the day around people.
take care
sarah
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